I am moving to the Rutherfordton area. I had written the group back in Feb of this year I think saying that I would be moving to NC. I would like very much to...
Please remember to change the subject heading. Apparently it has changed from my original topic of moving to NC to two people reconnecting. Christine Cast all...
Hi all, I wanted to let everyone know about an upcoming event this summer for youth with disabilities. It will be an intensive 3 day leadership development...
I know this email might seem abit strange and maybe not even right for this group and if that is the case please tell me and I will see where else i can find...
Hi, I'm Kathy - I know boards can get quiet around the holidays, just wondering if this board is still active? My godson Christopher has SB Occulta, he's 8 and...
Well the time is near my son John will be going to Kindergarten! The good thing is I will be teaching at the same school that he will be at. I need advice!...
I have a son of 3 years old and I would like to hear from you all about the bowel movement control. I have haerd too many things but i have not tried any....
My son's doctor just suggested that we use a rectal syringe to clean out our son. He suggested using tap water and table salt. Has anyone else used this...
I will be out of the office starting 05/19/2005 and will not return until 05/22/2005. I will respond to your message when I return. If this is regarding Pompe...
My daughter is 6 months old and has been having trouble with constipation. We were told to give her juice, miralax and enemas if needed. Figure out what...
I was wondering if anyone has had success in their insurance paying for diapers or incontience products for their children with Spina Bifida? I have State...
Hello everybody! My child who has a SB will go to school soon. She's being cathed every 3-4 hrs. everday. I am a working mom and I don't know what to think ...
Hello, I have a 6 year old son. with spina Bifda. (he uses crutches and attends public school) I'm plaaning on relocating from NJ to to NC. Which area Raleigh...
My daughter is 3 months old. She is having chiari II symptoms and the neurosurgeons take a conservative approach to the decompression, but they are saying it...
How often do most doctors (and parents) agree is appropriate for doing the CT scans and full xray series to check the status of the shunt? I was told it should...
Hi all! I was just wondering if there are any families out there near high point nc, I have a 4 year old with tcs, nuerogenic bladder and bowel etc. I would...
if anybody is good with dealing with SSI i would really like to talk to you one on one via email. i am having some issues and could use some help. brandon...
My daughter has been followed at UNC since she was born there 2/2000. The clinic is held at the Physical Medicine and Rehabilitation clinic and is held...
<>Spina Bifida Association Updates<> 1. SBA 34th Annual Conference in Louisville Kentucky June 24 - June 27, 2007 Register Online Now SBA's Annual Conference...
SAVE THE DATES! Spina Bifida Association 2007 Annual Conference June 24 – 27, 2006 Louisville, Kentucky Conference Hotel The Galt House & Suites Reservation...
my name is reann i am 25 and from wales (UK) i have 2 kids and pregnant with my 3, we have been told that she has spina bifida. she has the meningocele type...
I found out that my two year old had spina bifida when I was twenty three weeks pregnant. And because I'm a nurse and proactive I had my husband shipped off a...
Hello all. I am new to the group. I have been researching for years people with SB getting and being pregnant. I went through infertility treatments with my...
Hi Friends! We are new to Asheville, with our 7yo with Spina Bifida. Interested in meeting local families, especially children of similar age, as our 7yo "Ana"...
Research Articles Online - Online Resource Now Updated! SBA National Office has just updated the results of a quarterly scientific publication search on Spina ...
It's Not Too Late - Visit www.sbaa.org To Register for SBA's Annual Conference & SAVE June 25-28, 2006 in Atlanta, Georgia Register Now! Reduced Early Bird...
Register at www.sbaa.org and SAVE $60 We're Extending the Low "Early Bird" Registration Rates for SBA's Annual Conference through JUNE 15! You can stretch your...
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