The state chapter is still going, but slowly.  The SBAA changed charters and
each "chapter" now has to have at least something like $50,000 to be a
member and considered a Chapter.  SBANC doesn't have that much.  So Kim
still is executive director but we aren't listed as part of the SBANC
anymore due to lack of funds.  I had tried to do a support group in this
area but no one came.  We tried Winston first, ten moved to Greensboro.  We
never had but a couple of people.  I am no longer on the SBANC Board but
Julie is listed as support group leader now.  I think she may be VP as well,
but I am not sure as I am out of the loop.  My name and number are still
listed on the SBANC website so I still get calls occasionally, mostly about
groups wanting to do reports or studies on kids with special needs for a
school project.  Every now and then I get a parent calling.  It'd be great
if we could have a place to talk about our used equipment and maybe loaning
it out to other SBANC members.  We have kept JG's old wheelchair for now to
use in smaller spaces but before long, she won't fit in the old chair.  I
know someone that was looking to re-home an EasyStand mobile stander.


Susan
mom to Jessica, 17, Christopher, 15 and Julia Grace, 12, SB L3, latex
allergic, full time wheeler
http://www.poochiepals.com/Jjaan.htm http://juliagrace.blessed4sure5.org/
http://www.kidsonwheels.us/
http://www.waisman.wisc.edu/~rowley/sb-kids/photos/julia_grace/



   _____

From: sbaofnc@yahoogroups.com [mailto:sbaofnc@yahoogroups.com] On Behalf Of
Shelly Mendenhall
Sent: Wednesday, June 04, 2008 12:18 PM
To: sbaofnc@yahoogroups.com
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
to NC



Al, I think you're right.? If memory serves me correctly (and it doesn't
always) I think it was Thoms Rehabilitation in those parts that had an SB
clinic.? I do know that you can go online to the National Chapter and look
up all active state chapters.? I didn't see NC listed anymore which leads me
to believe the state association is defunct as well.? I honestly don't
know.? But even though I am in Fayetteville, if you folks decide to get
something going again and need some help doing some networking, don't
hesitate to ask.? I think I have a few contacts left that can help you out.

Shelly

?

-----Original Message-----
From: Alfred Lyons <AlfredLyons@ <mailto:AlfredLyons%40yahoo.com> yahoo.com>
To: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
Sent: Wed, 4 Jun 2008 11:14 am
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
to NC

Dear Shelly,

I don't know if Mission Hospitals in Asheville has an
SB clinic. We have been going down to Shriners
Hospital in Greenville, SC.

AL.

--- Shelly Mendenhall <ShellyontheWeb@ <mailto:ShellyontheWeb%40aol.com>
aol.com> wrote:

> I was going to suggest the same thing that you folks
> in that area do some networking together and perhaps
> rebuild the Western NC chapter.? I'm sure the
> hospital in Asheville would allow you to advertise
> during their clinic (do they still have an SB
> clinic) that you are trying to rebuild the group.??
> It just takes interested parties!
>
> Shelly
>
>
> ?
>
>
> -----Original Message-----
> From: Alfred Lyons <AlfredLyons@ <mailto:AlfredLyons%40yahoo.com>
yahoo.com>
> To: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
> Sent: Wed, 4 Jun 2008 10:40 am
> Subject: Re: [SBAofNC] Re: Is this group active
> still? Moving by late summer to NC
>
>
>
>
>
>
> Dear Chris,
>
> We would be interested in being a part of a
> reconstituted Western NC Chapter, should the
> opportunity present. Keep in touch with us as you
> relocate!
>
> THanks, Al Lyons & Family in Asheville
>
> --- Chris <christine1970_ <mailto:christine1970_2000%40yahoo.com>
2000@...> wrote:
>
> > thank you all for the responses. I sure hope that
> > more people join this that live in the western
> part
> > of the state. I would like to connect with some
> > adults with SB. I love it that there are parents
> > with little ones on here that live in the Western
> > part of the state. I hope that maybe I can be an
> > encouragement to you.
> >
> > Christine
> >
> >
> > Cast all your cares on him because he cares for
> you
> > . 1st Peter 5:7
> >
> >
> >
> >
> > ----- Original Message ----
> > From: Lisa Pubantz <lpubantz77@triad. <mailto:lpubantz77%40triad.rr.com>
rr.com>
> > To: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
> > Sent: Tuesday, June 3, 2008 4:55:22 PM
> > Subject: Re: [SBAofNC] Re: Is this group active
> > still? Moving by late summer to NC
> >
> >
> > Christine,
> > I'm 31 years old, I have SB, and I live in
> > Winston-Salem NC in a HUD-assisted apartment for
> > mobility impaired people who have low income. I've
> > been living in NC all my life and I love it! Hope
> > you enjoy it here as much as I do!
> >
> > Lisa Pubantz
> > ----- Original Message -----
> > From: cynthia teresa
> > To: sbaofnc@yahoogroups .com
> > Sent: Tuesday, June 03, 2008 5:34 PM
> > Subject: Re: [SBAofNC] Re: Is this group active
> > still? Moving by late summer to NC
> >
> > I live in Monroe, NC. I have a 5 yr. old girl with
> > SB. I think you will like it here in NC Christine.
> > I've been here for 6 years now, and I love it!
> >
> > Cynthia
> >
> > lost_star_vega <no_reply@yahoogroup s.com> wrote:
> > I'm in the Charlotte area. I have a 3 yr old girl
> > with SB. I have lived
> > in NC my whole life, it is a very nice place. I
> hope
> > your move goes
> > well.
> >
> > ~Jamie
> >
> > --- In sbaofnc@yahoogroups .com, "christine"
> > <christine1970_ 2000@...>
> > wrote:
> > >
> > > I am moving to the Rutherfordton area. I had
> > written the group back in
> > > Feb of this year I think saying that I would be
> > moving to NC. I would
> > > like very much to meet up with some adults with
> SB
> > if there are any on
> > > this list. I am 37 years old. Been living in
> > Budapest Hungary for the
> > > last 8yrs. Will be in PA for the summer but
> should
> > be in the
> > > Rutherfordton area by late summer. I see there
> is
> > a group from
> > > Asheville. Are their any adults with SB involved
> > in the group? If not
> > > I would be more than happy to be a mentor or
> > something to any one that
> > > would like one. Or just be a friend to someone
> > >
> > > Blessings
> > > Christine
> > >
> >
> > [Non-text portions of this message have been
> > removed]
> >
> > [Non-text portions of this message have been
> > removed]
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been
> > removed]
> >
> >
> > ------------------------------------
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
>
>
>
>
>
>
> [Non-text portions of this message have been
> removed]
>
>
> ------------------------------------
>
> Yahoo! Groups Links
>
>
>
>
>

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

Hi Shelly,

I am not so concerned about the clinic, as we get good
care from Shriners. But, I would really like to get
Ana around some other kids with SB, as she is
mainstreamed in school, she sometimes asks questions,
like why is she the only kid with crutches and braces,
or the only kid in a wheelchair, etc. If we can get
something together, will try to get all the help we
can, including our friend Shelly in Fayetteville!

Al.

--- Shelly Mendenhall <ShellyontheWeb@...> wrote:

> Al, I think you're right.? If memory serves me
> correctly (and it doesn't always) I think it was
> Thoms Rehabilitation in those parts that had an SB
> clinic.? I do know that you can go online to the
> National Chapter and look up all active state
> chapters.? I didn't see NC listed anymore which
> leads me to believe the state association is defunct
> as well.? I honestly don't know.? But even though I
> am in Fayetteville, if you folks decide to get
> something going again and need some help doing some
> networking, don't hesitate to ask.? I think I have a
> few contacts left that can help you out.
>
> Shelly
>
>
> ?
>
>
> -----Original Message-----
> From: Alfred Lyons <AlfredLyons@...>
> To: sbaofnc@yahoogroups.com
> Sent: Wed, 4 Jun 2008 11:14 am
> Subject: Re: [SBAofNC] Re: Is this group active
> still? Moving by late summer to NC
>
>
>
>
>
>
> Dear Shelly,
>
> I don't know if Mission Hospitals in Asheville has
> an
> SB clinic. We have been going down to Shriners
> Hospital in Greenville, SC.
>
> AL.
>
> --- Shelly Mendenhall <ShellyontheWeb@...>
> wrote:
>
> > I was going to suggest the same thing that you
> folks
> > in that area do some networking together and
> perhaps
> > rebuild the Western NC chapter.? I'm sure the
> > hospital in Asheville would allow you to advertise
> > during their clinic (do they still have an SB
> > clinic) that you are trying to rebuild the
> group.??
> > It just takes interested parties!
> >
> > Shelly
> >
> >
> > ?
> >
> >
> > -----Original Message-----
> > From: Alfred Lyons <AlfredLyons@...>
> > To: sbaofnc@yahoogroups.com
> > Sent: Wed, 4 Jun 2008 10:40 am
> > Subject: Re: [SBAofNC] Re: Is this group active
> > still? Moving by late summer to NC
> >
> >
> >
> >
> >
> >
> > Dear Chris,
> >
> > We would be interested in being a part of a
> > reconstituted Western NC Chapter, should the
> > opportunity present. Keep in touch with us as you
> > relocate!
> >
> > THanks, Al Lyons & Family in Asheville
> >
> > --- Chris <christine1970_2000@...> wrote:
> >
> > > thank you all for the responses. I sure hope
> that
> > > more people join this that live in the western
> > part
> > > of the state. I would like to connect with some
> > > adults with SB. I love it that there are parents
> > > with little ones on here that live in the
> Western
> > > part of the state. I hope that maybe I can be an
> > > encouragement to you.
> > >
> > > Christine
> > >
> > >
> > > Cast all your cares on him because he cares for
> > you
> > > . 1st Peter 5:7
> > >
> > >
> > >
> > >
> > > ----- Original Message ----
> > > From: Lisa Pubantz <lpubantz77@...>
> > > To: sbaofnc@yahoogroups.com
> > > Sent: Tuesday, June 3, 2008 4:55:22 PM
> > > Subject: Re: [SBAofNC] Re: Is this group active
> > > still? Moving by late summer to NC
> > >
> > >
> > > Christine,
> > > I'm 31 years old, I have SB, and I live in
> > > Winston-Salem NC in a HUD-assisted apartment for
> > > mobility impaired people who have low income.
> I've
> > > been living in NC all my life and I love it!
> Hope
> > > you enjoy it here as much as I do!
> > >
> > > Lisa Pubantz
> > > ----- Original Message -----
> > > From: cynthia teresa
> > > To: sbaofnc@yahoogroups .com
> > > Sent: Tuesday, June 03, 2008 5:34 PM
> > > Subject: Re: [SBAofNC] Re: Is this group active
> > > still? Moving by late summer to NC
> > >
> > > I live in Monroe, NC. I have a 5 yr. old girl
> with
> > > SB. I think you will like it here in NC
> Christine.
> > > I've been here for 6 years now, and I love it!
> > >
> > > Cynthia
> > >
> > > lost_star_vega <no_reply@yahoogroup s.com>
> wrote:
> > > I'm in the Charlotte area. I have a 3 yr old
> girl
> > > with SB. I have lived
> > > in NC my whole life, it is a very nice place. I
> > hope
> > > your move goes
> > > well.
> > >
> > > ~Jamie
> > >
> > > --- In sbaofnc@yahoogroups .com, "christine"
> > > <christine1970_ 2000@...>
> > > wrote:
> > > >
> > > > I am moving to the Rutherfordton area. I had
> > > written the group back in
> > > > Feb of this year I think saying that I would
> be
> > > moving to NC. I would
> > > > like very much to meet up with some adults
> with
> > SB
> > > if there are any on
> > > > this list. I am 37 years old. Been living in
> > > Budapest Hungary for the
> > > > last 8yrs. Will be in PA for the summer but
> > should
> > > be in the
> > > > Rutherfordton area by late summer. I see there
> > is
> > > a group from
> > > > Asheville. Are their any adults with SB
> involved
> > > in the group? If not
> > > > I would be more than happy to be a mentor or
> > > something to any one that
> > > > would like one. Or just be a friend to someone
> > > >
> > > > Blessings
> > > > Christine
> > > >
> > >
> > > [Non-text portions of this message have been
> > > removed]
> > >
> > > [Non-text portions of this message have been
> > > removed]
> > >
> > >
> > >
> > >
> > >
> > >
> > > [Non-text portions of this message have been
> > > removed]
> > >
> > >
> > > ------------------------------------
> > >
> > > Yahoo! Groups Links
> > >
> > >
>
=== message truncated ===

Al, I think you're right.? If memory serves me correctly (and it doesn't always)
I think it was Thoms Rehabilitation in those parts that had an SB clinic.? I do
know that you can go online to the National Chapter and look up all active state
chapters.? I didn't see NC listed anymore which leads me to believe the state
association is defunct as well.? I honestly don't know.? But even though I am in
Fayetteville, if you folks decide to get something going again and need some
help doing some networking, don't hesitate to ask.? I think I have a few
contacts left that can help you out.

Shelly


?


-----Original Message-----
From: Alfred Lyons <AlfredLyons@...>
To: sbaofnc@yahoogroups.com
Sent: Wed, 4 Jun 2008 11:14 am
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer to
NC






Dear Shelly,

I don't know if Mission Hospitals in Asheville has an
SB clinic. We have been going down to Shriners
Hospital in Greenville, SC.

AL.

--- Shelly Mendenhall <ShellyontheWeb@...> wrote:

> I was going to suggest the same thing that you folks
> in that area do some networking together and perhaps
> rebuild the Western NC chapter.? I'm sure the
> hospital in Asheville would allow you to advertise
> during their clinic (do they still have an SB
> clinic) that you are trying to rebuild the group.??
> It just takes interested parties!
>
> Shelly
>
>
> ?
>
>
> -----Original Message-----
> From: Alfred Lyons <AlfredLyons@...>
> To: sbaofnc@yahoogroups.com
> Sent: Wed, 4 Jun 2008 10:40 am
> Subject: Re: [SBAofNC] Re: Is this group active
> still? Moving by late summer to NC
>
>
>
>
>
>
> Dear Chris,
>
> We would be interested in being a part of a
> reconstituted Western NC Chapter, should the
> opportunity present. Keep in touch with us as you
> relocate!
>
> THanks, Al Lyons & Family in Asheville
>
> --- Chris <christine1970_2000@...> wrote:
>
> > thank you all for the responses. I sure hope that
> > more people join this that live in the western
> part
> > of the state. I would like to connect with some
> > adults with SB. I love it that there are parents
> > with little ones on here that live in the Western
> > part of the state. I hope that maybe I can be an
> > encouragement to you.
> >
> > Christine
> >
> >
> > Cast all your cares on him because he cares for
> you
> > . 1st Peter 5:7
> >
> >
> >
> >
> > ----- Original Message ----
> > From: Lisa Pubantz <lpubantz77@...>
> > To: sbaofnc@yahoogroups.com
> > Sent: Tuesday, June 3, 2008 4:55:22 PM
> > Subject: Re: [SBAofNC] Re: Is this group active
> > still? Moving by late summer to NC
> >
> >
> > Christine,
> > I'm 31 years old, I have SB, and I live in
> > Winston-Salem NC in a HUD-assisted apartment for
> > mobility impaired people who have low income. I've
> > been living in NC all my life and I love it! Hope
> > you enjoy it here as much as I do!
> >
> > Lisa Pubantz
> > ----- Original Message -----
> > From: cynthia teresa
> > To: sbaofnc@yahoogroups .com
> > Sent: Tuesday, June 03, 2008 5:34 PM
> > Subject: Re: [SBAofNC] Re: Is this group active
> > still? Moving by late summer to NC
> >
> > I live in Monroe, NC. I have a 5 yr. old girl with
> > SB. I think you will like it here in NC Christine.
> > I've been here for 6 years now, and I love it!
> >
> > Cynthia
> >
> > lost_star_vega <no_reply@yahoogroup s.com> wrote:
> > I'm in the Charlotte area. I have a 3 yr old girl
> > with SB. I have lived
> > in NC my whole life, it is a very nice place. I
> hope
> > your move goes
> > well.
> >
> > ~Jamie
> >
> > --- In sbaofnc@yahoogroups .com, "christine"
> > <christine1970_ 2000@...>
> > wrote:
> > >
> > > I am moving to the Rutherfordton area. I had
> > written the group back in
> > > Feb of this year I think saying that I would be
> > moving to NC. I would
> > > like very much to meet up with some adults with
> SB
> > if there are any on
> > > this list. I am 37 years old. Been living in
> > Budapest Hungary for the
> > > last 8yrs. Will be in PA for the summer but
> should
> > be in the
> > > Rutherfordton area by late summer. I see there
> is
> > a group from
> > > Asheville. Are their any adults with SB involved
> > in the group? If not
> > > I would be more than happy to be a mentor or
> > something to any one that
> > > would like one. Or just be a friend to someone
> > >
> > > Blessings
> > > Christine
> > >
> >
> > [Non-text portions of this message have been
> > removed]
> >
> > [Non-text portions of this message have been
> > removed]
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been
> > removed]
> >
> >
> > ------------------------------------
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
>
>
>
>
>
>
> [Non-text portions of this message have been
> removed]
>
>
> ------------------------------------
>
> Yahoo! Groups Links
>
>
>
>
>






[Non-text portions of this message have been removed]

Dear Shelly,

I don't know if Mission Hospitals in Asheville has an
SB clinic. We have been going down to Shriners
Hospital in Greenville, SC.

AL.

--- Shelly Mendenhall <ShellyontheWeb@...> wrote:

> I was going to suggest the same thing that you folks
> in that area do some networking together and perhaps
> rebuild the Western NC chapter.? I'm sure the
> hospital in Asheville would allow you to advertise
> during their clinic (do they still have an SB
> clinic) that you are trying to rebuild the group.??
> It just takes interested parties!
>
> Shelly
>
>
> ?
>
>
> -----Original Message-----
> From: Alfred Lyons <AlfredLyons@...>
> To: sbaofnc@yahoogroups.com
> Sent: Wed, 4 Jun 2008 10:40 am
> Subject: Re: [SBAofNC] Re: Is this group active
> still? Moving by late summer to NC
>
>
>
>
>
>
> Dear Chris,
>
> We would be interested in being a part of a
> reconstituted Western NC Chapter, should the
> opportunity present. Keep in touch with us as you
> relocate!
>
> THanks, Al Lyons & Family in Asheville
>
> --- Chris <christine1970_2000@...> wrote:
>
> > thank you all for the responses. I sure hope that
> > more people join this that live in the western
> part
> > of the state. I would like to connect with some
> > adults with SB. I love it that there are parents
> > with little ones on here that live in the Western
> > part of the state. I hope that maybe I can be an
> > encouragement to you.
> >
> > Christine
> >
> >
> > Cast all your cares on him because he cares for
> you
> > . 1st Peter 5:7
> >
> >
> >
> >
> > ----- Original Message ----
> > From: Lisa Pubantz <lpubantz77@...>
> > To: sbaofnc@yahoogroups.com
> > Sent: Tuesday, June 3, 2008 4:55:22 PM
> > Subject: Re: [SBAofNC] Re: Is this group active
> > still? Moving by late summer to NC
> >
> >
> > Christine,
> > I'm 31 years old, I have SB, and I live in
> > Winston-Salem NC in a HUD-assisted apartment for
> > mobility impaired people who have low income. I've
> > been living in NC all my life and I love it! Hope
> > you enjoy it here as much as I do!
> >
> > Lisa Pubantz
> > ----- Original Message -----
> > From: cynthia teresa
> > To: sbaofnc@yahoogroups .com
> > Sent: Tuesday, June 03, 2008 5:34 PM
> > Subject: Re: [SBAofNC] Re: Is this group active
> > still? Moving by late summer to NC
> >
> > I live in Monroe, NC. I have a 5 yr. old girl with
> > SB. I think you will like it here in NC Christine.
> > I've been here for 6 years now, and I love it!
> >
> > Cynthia
> >
> > lost_star_vega <no_reply@yahoogroup s.com> wrote:
> > I'm in the Charlotte area. I have a 3 yr old girl
> > with SB. I have lived
> > in NC my whole life, it is a very nice place. I
> hope
> > your move goes
> > well.
> >
> > ~Jamie
> >
> > --- In sbaofnc@yahoogroups .com, "christine"
> > <christine1970_ 2000@...>
> > wrote:
> > >
> > > I am moving to the Rutherfordton area. I had
> > written the group back in
> > > Feb of this year I think saying that I would be
> > moving to NC. I would
> > > like very much to meet up with some adults with
> SB
> > if there are any on
> > > this list. I am 37 years old. Been living in
> > Budapest Hungary for the
> > > last 8yrs. Will be in PA for the summer but
> should
> > be in the
> > > Rutherfordton area by late summer. I see there
> is
> > a group from
> > > Asheville. Are their any adults with SB involved
> > in the group? If not
> > > I would be more than happy to be a mentor or
> > something to any one that
> > > would like one. Or just be a friend to someone
> > >
> > > Blessings
> > > Christine
> > >
> >
> > [Non-text portions of this message have been
> > removed]
> >
> > [Non-text portions of this message have been
> > removed]
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been
> > removed]
> >
> >
> > ------------------------------------
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
>
>
>
>
>
>
> [Non-text portions of this message have been
> removed]
>
>
> ------------------------------------
>
> Yahoo! Groups Links
>
>
>
>
>

Alfred
I would very much like to part of a group. Please keep me posted. I have added
you to IM yahoo if you have it feel free to add me too. Are you a adult with SB
or are you a parent of a child with SB?

Christine


Cast all your cares on him because he cares for you . 1st Peter 5:7




----- Original Message ----
From: Alfred Lyons <AlfredLyons@...>
To: sbaofnc@yahoogroups.com
Sent: Wednesday, June 4, 2008 9:40:38 AM
Subject: Re: [SBAofNC] Re: Is this group active still?  Moving by late summer to
NC


Dear Chris,

We would be interested in being a part of a
reconstituted Western NC Chapter, should the
opportunity present. Keep in touch with us as you
relocate!

THanks, Al Lyons & Family in Asheville

--- Chris <christine1970_ 2000@yahoo. com> wrote:

> thank you all for the responses. I sure hope that
> more people join this that live in the western part
> of the state. I would like to connect with some
> adults with SB. I love it that there are parents
> with little ones on here that live in the Western
> part of the state. I hope that maybe I can be an
> encouragement to you.
>
> Christine
>
>
> Cast all your cares on him because he cares for you
> . 1st Peter 5:7
>
>
>
>
> ----- Original Message ----
> From: Lisa Pubantz <lpubantz77@triad. rr.com>
> To: sbaofnc@yahoogroups .com
> Sent: Tuesday, June 3, 2008 4:55:22 PM
> Subject: Re: [SBAofNC] Re: Is this group active
> still?  Moving by late summer to NC
>
>
> Christine,
> I'm 31 years old, I have SB,  and I live in
> Winston-Salem NC in a HUD-assisted apartment for
> mobility impaired people who have low income.  I've
> been living in NC all my life and I love it!  Hope
> you enjoy it here as much as I do!
>
> Lisa Pubantz
> ----- Original Message -----
> From: cynthia teresa
> To: sbaofnc@yahoogroups .com
> Sent: Tuesday, June 03, 2008 5:34 PM
> Subject: Re: [SBAofNC] Re: Is this group active
> still? Moving by late summer to NC
>
> I live in Monroe, NC. I have a 5 yr. old girl with
> SB. I think you will like it here in NC Christine.
> I've been here for 6 years now, and I love it!
>
> Cynthia
>
> lost_star_vega <no_reply@yahoogrou p s.com> wrote:
> I'm in the Charlotte area. I have a 3 yr old girl
> with SB. I have lived
> in NC my whole life, it is a very nice place. I hope
> your move goes
> well.
>
> ~Jamie
>
> --- In sbaofnc@yahoogroups .com, "christine"
> <christine1970_ 2000@...>
> wrote:
> >
> > I am moving to the Rutherfordton area. I had
> written the group back in
> > Feb of this year I think saying that I would be
> moving to NC. I would
> > like very much to meet up with some adults with SB
> if there are any on
> > this list. I am 37 years old. Been living in
> Budapest Hungary for the
> > last 8yrs. Will be in PA for the summer but should
> be in the
> > Rutherfordton area by late summer. I see there is
> a group from
> > Asheville. Are their any adults with SB involved
> in the group? If not
> > I would be more than happy to be a mentor or
> something to any one that
> > would like one. Or just be a friend to someone
> >
> > Blessings
> > Christine
> >
>
> [Non-text portions of this message have been
> removed]
>
> [Non-text portions of this message have been
> removed]
>
>
>
>
>
>
> [Non-text portions of this message have been
> removed]
>
>
> ------------ --------- --------- ------
>
> Yahoo! Groups Links
>
>
>
>
>






[Non-text portions of this message have been removed]

I was going to suggest the same thing that you folks in that area do some
networking together and perhaps rebuild the Western NC chapter.? I'm sure the
hospital in Asheville would allow you to advertise during their clinic (do they
still have an SB clinic) that you are trying to rebuild the group.?? It just
takes interested parties!

Shelly


?


-----Original Message-----
From: Alfred Lyons <AlfredLyons@...>
To: sbaofnc@yahoogroups.com
Sent: Wed, 4 Jun 2008 10:40 am
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer to
NC






Dear Chris,

We would be interested in being a part of a
reconstituted Western NC Chapter, should the
opportunity present. Keep in touch with us as you
relocate!

THanks, Al Lyons & Family in Asheville

--- Chris <christine1970_2000@...> wrote:

> thank you all for the responses. I sure hope that
> more people join this that live in the western part
> of the state. I would like to connect with some
> adults with SB. I love it that there are parents
> with little ones on here that live in the Western
> part of the state. I hope that maybe I can be an
> encouragement to you.
>
> Christine
>
>
> Cast all your cares on him because he cares for you
> . 1st Peter 5:7
>
>
>
>
> ----- Original Message ----
> From: Lisa Pubantz <lpubantz77@...>
> To: sbaofnc@yahoogroups.com
> Sent: Tuesday, June 3, 2008 4:55:22 PM
> Subject: Re: [SBAofNC] Re: Is this group active
> still? Moving by late summer to NC
>
>
> Christine,
> I'm 31 years old, I have SB, and I live in
> Winston-Salem NC in a HUD-assisted apartment for
> mobility impaired people who have low income. I've
> been living in NC all my life and I love it! Hope
> you enjoy it here as much as I do!
>
> Lisa Pubantz
> ----- Original Message -----
> From: cynthia teresa
> To: sbaofnc@yahoogroups .com
> Sent: Tuesday, June 03, 2008 5:34 PM
> Subject: Re: [SBAofNC] Re: Is this group active
> still? Moving by late summer to NC
>
> I live in Monroe, NC. I have a 5 yr. old girl with
> SB. I think you will like it here in NC Christine.
> I've been here for 6 years now, and I love it!
>
> Cynthia
>
> lost_star_vega <no_reply@yahoogroup s.com> wrote:
> I'm in the Charlotte area. I have a 3 yr old girl
> with SB. I have lived
> in NC my whole life, it is a very nice place. I hope
> your move goes
> well.
>
> ~Jamie
>
> --- In sbaofnc@yahoogroups .com, "christine"
> <christine1970_ 2000@...>
> wrote:
> >
> > I am moving to the Rutherfordton area. I had
> written the group back in
> > Feb of this year I think saying that I would be
> moving to NC. I would
> > like very much to meet up with some adults with SB
> if there are any on
> > this list. I am 37 years old. Been living in
> Budapest Hungary for the
> > last 8yrs. Will be in PA for the summer but should
> be in the
> > Rutherfordton area by late summer. I see there is
> a group from
> > Asheville. Are their any adults with SB involved
> in the group? If not
> > I would be more than happy to be a mentor or
> something to any one that
> > would like one. Or just be a friend to someone
> >
> > Blessings
> > Christine
> >
>
> [Non-text portions of this message have been
> removed]
>
> [Non-text portions of this message have been
> removed]
>
>
>
>
>
>
> [Non-text portions of this message have been
> removed]
>
>
> ------------------------------------
>
> Yahoo! Groups Links
>
>
>
>
>






[Non-text portions of this message have been removed]

Dear Chris,

We would be interested in being a part of a
reconstituted Western NC Chapter, should the
opportunity present. Keep in touch with us as you
relocate!

THanks, Al Lyons & Family in Asheville

--- Chris <christine1970_2000@...> wrote:

> thank you all for the responses. I sure hope that
> more people join this that live in the western part
> of the state. I would like to connect with some
> adults with SB. I love it that there are parents
> with little ones on here that live in the Western
> part of the state. I hope that maybe I can be an
> encouragement to you.
>
> Christine
>
>
> Cast all your cares on him because he cares for you
> . 1st Peter 5:7
>
>
>
>
> ----- Original Message ----
> From: Lisa Pubantz <lpubantz77@...>
> To: sbaofnc@yahoogroups.com
> Sent: Tuesday, June 3, 2008 4:55:22 PM
> Subject: Re: [SBAofNC] Re: Is this group active
> still?  Moving by late summer to NC
>
>
> Christine,
> I'm 31 years old, I have SB,  and I live in
> Winston-Salem NC in a HUD-assisted apartment for
> mobility impaired people who have low income.  I've
> been living in NC all my life and I love it!  Hope
> you enjoy it here as much as I do!
>
> Lisa Pubantz
> ----- Original Message -----
> From: cynthia teresa
> To: sbaofnc@yahoogroups .com
> Sent: Tuesday, June 03, 2008 5:34 PM
> Subject: Re: [SBAofNC] Re: Is this group active
> still? Moving by late summer to NC
>
> I live in Monroe, NC. I have a 5 yr. old girl with
> SB. I think you will like it here in NC Christine.
> I've been here for 6 years now, and I love it!
>
> Cynthia
>
> lost_star_vega <no_reply@yahoogroup s.com> wrote:
> I'm in the Charlotte area. I have a 3 yr old girl
> with SB. I have lived
> in NC my whole life, it is a very nice place. I hope
> your move goes
> well.
>
> ~Jamie
>
> --- In sbaofnc@yahoogroups .com, "christine"
> <christine1970_ 2000@...>
> wrote:
> >
> > I am moving to the Rutherfordton area. I had
> written the group back in
> > Feb of this year I think saying that I would be
> moving to NC. I would
> > like very much to meet up with some adults with SB
> if there are any on
> > this list. I am 37 years old. Been living in
> Budapest Hungary for the
> > last 8yrs. Will be in PA for the summer but should
> be in the
> > Rutherfordton area by late summer. I see there is
> a group from
> > Asheville. Are their any adults with SB involved
> in the group? If not
> > I would be more than happy to be a mentor or
> something to any one that
> > would like one. Or just be a friend to someone
> >
> > Blessings
> > Christine
> >
>
> [Non-text portions of this message have been
> removed]
>
> [Non-text portions of this message have been
> removed]
>
>
>
>
>
>
> [Non-text portions of this message have been
> removed]
>
>
> ------------------------------------
>
> Yahoo! Groups Links
>
>
>
>
>

thank you all for the responses. I sure hope that more people join this that
live in the western part of the state. I would like to connect with some adults
with SB. I love it that there are parents with little ones on here that live in
the Western part of the state. I hope that maybe I can be an encouragement to
you.

Christine


Cast all your cares on him because he cares for you . 1st Peter 5:7




----- Original Message ----
From: Lisa Pubantz <lpubantz77@...>
To: sbaofnc@yahoogroups.com
Sent: Tuesday, June 3, 2008 4:55:22 PM
Subject: Re: [SBAofNC] Re: Is this group active still?  Moving by late summer to
NC


Christine,
I'm 31 years old, I have SB,  and I live in Winston-Salem NC in a HUD-assisted
apartment for mobility impaired people who have low income.  I've been living in
NC all my life and I love it!  Hope you enjoy it here as much as I do!

Lisa Pubantz
----- Original Message -----
From: cynthia teresa
To: sbaofnc@yahoogroups .com
Sent: Tuesday, June 03, 2008 5:34 PM
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer to
NC

I live in Monroe, NC. I have a 5 yr. old girl with SB. I think you will like it
here in NC Christine. I've been here for 6 years now, and I love it!

Cynthia

lost_star_vega <no_reply@yahoogroup s.com> wrote:
I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived
in NC my whole life, it is a very nice place. I hope your move goes
well.

~Jamie

--- In sbaofnc@yahoogroups .com, "christine" <christine1970_ 2000@...>
wrote:
>
> I am moving to the Rutherfordton area. I had written the group back in
> Feb of this year I think saying that I would be moving to NC. I would
> like very much to meet up with some adults with SB if there are any on
> this list. I am 37 years old. Been living in Budapest Hungary for the
> last 8yrs. Will be in PA for the summer but should be in the
> Rutherfordton area by late summer. I see there is a group from
> Asheville. Are their any adults with SB involved in the group? If not
> I would be more than happy to be a mentor or something to any one that
> would like one. Or just be a friend to someone
>
> Blessings
> Christine
>

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

Hi Shelly,
I used to live in Clemmons.  My parents live there and I used to live with them
until I moved into my apartment in Feb. 2007.  I am fortunate that my apartment
is right in the heart of downtown Winston-Salem where the public bus system
runs.  It only costs 50 cents for elderly and disabled to ride, $1 for everyone
else.  There is also Trans-Aid which is primarily for people with disabilities. 
They aren't as reliable though as the regular bus system.  I was able to take
driver's ed and get my driver's license in 2005.  I drove a car equipped with
hand controls...that is, until I totaled it in October of 2006.  Unfortunately,
I don't have the money right now for another car, but I can still get around
thanks to the bus system.

Lisa Pubantz
   ----- Original Message -----
   From: susan collins
   To: sbaofnc@yahoogroups.com
   Sent: Tuesday, June 03, 2008 9:14 PM
   Subject: RE: [SBAofNC] Re: Is this group active still? Moving by late summer
to NC


   Hi Shelly...not sure if you remember me from years ago. I was on the Board
   way back. I also met Joanne Mackey at one time. Julia Grace is now 12. We
   live in Clemmons. Did you say you had a shunt (working) for 22 years? Wow!
   Maybe there is hope that JG isn't headed towards a malfunction. Her is
   almost 13 years old and it scares me that it could go any time...much more
   so than from ages 4-10. I sure wish we had more resources in NC so people
   could get together more often. JG plays basketball in Charlotte with the
   Rollin' Bobcats and lots of the kids have SB, so she gets to see others,
   plus she goes to Camp Carefree and next year, we hope, to Victory Junction
   again.


   Susan
   mom to Jessica, 17, Christopher, 15 and Julia Grace, 12, SB L3, latex
   allergic, full time wheeler
   http://www.poochiepals.com/Jjaan.htm http://juliagrace.blessed4sure5.org/
   http://www.kidsonwheels.us/
   http://www.waisman.wisc.edu/~rowley/sb-kids/photos/julia_grace/

   _____

   From: sbaofnc@yahoogroups.com [mailto:sbaofnc@yahoogroups.com] On Behalf Of
   Shelly Mendenhall
   Sent: Tuesday, June 03, 2008 6:14 PM
   To: sbaofnc@yahoogroups.com
   Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
   to NC

   Lisa, that is so cool. How do you like it? I have family in Winston and
   Clemmons.?? I'm in Fayetteville, quite a bit older than you, I will be 40 in
   January.? We have transportation issues in Fayetteville so that is primarily
   the reason I don't live away from home.? What has Winston got?

   Shelly

   ?

   -----Original Message-----
   From: Lisa Pubantz <lpubantz77@triad. <mailto:lpubantz77%40triad.rr.com>
   rr.com>
   To: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
   Sent: Tue, 3 Jun 2008 5:55 pm
   Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
   to NC

   Christine,
   I'm 31 years old, I have SB, and I live in Winston-Salem NC in a
   HUD-assisted apartment for mobility impaired people who have low income.
   I've been living in NC all my life and I love it! Hope you enjoy it here as
   much as I do!

   Lisa Pubantz
   ----- Original Message -----
   From: cynthia teresa
   To: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
   Sent: Tuesday, June 03, 2008 5:34 PM
   Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
   to NC

   I live in Monroe, NC. I have a 5 yr. old girl with SB. I think you will like
   it here in NC Christine. I've been here for 6 years now, and I love it!

   Cynthia

   lost_star_vega <no_reply@yahoogroup <mailto:no_reply%40yahoogroups.com>
   s.com> wrote:
   I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived
   in NC my whole life, it is a very nice place. I hope your move goes
   well.

   ~Jamie

   --- In sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com,
   "christine" <christine1970_2000@...>
   wrote:
   >
   > I am moving to the Rutherfordton area. I had written the group back in
   > Feb of this year I think saying that I would be moving to NC. I would
   > like very much to meet up with some adults with SB if there are any on
   > this list. I am 37 years old. Been living in Budapest Hungary for the
   > last 8yrs. Will be in PA for the summer but should be in the
   > Rutherfordton area by late summer. I see there is a group from
   > Asheville. Are their any adults with SB involved in the group? If not
   > I would be more than happy to be a mentor or something to any one that
   > would like one. Or just be a friend to someone
   >
   > Blessings
   > Christine
   >

   [Non-text portions of this message have been removed]

   [Non-text portions of this message have been removed]

   [Non-text portions of this message have been removed]

   [Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]

Please remember to change the subject heading. Apparently it has changed from my
original topic of moving to NC to two people reconnecting.
Christine


Cast all your cares on him because he cares for you . 1st Peter 5:7




----- Original Message ----
From: susan collins <susancollins@...>
To: sbaofnc@yahoogroups.com
Sent: Tuesday, June 3, 2008 8:14:54 PM
Subject: RE: [SBAofNC] Re: Is this group active still?  Moving by late summer to
NC


Hi Shelly...not sure if you remember me from years ago.  I was on the Board
way back.  I also met Joanne Mackey at one time.  Julia Grace is now 12.  We
live in Clemmons.  Did you say you had a shunt (working) for 22 years?  Wow!
Maybe there is hope that JG isn't headed towards a malfunction.  Her is
almost 13 years old and it scares me that it could go any time...much more
so than from ages 4-10.  I sure wish we had more resources in NC so people
could get together more often.  JG plays basketball in Charlotte with the
Rollin' Bobcats and lots of the kids have SB, so she gets to see others,
plus she goes to Camp Carefree and next year, we hope, to Victory Junction
again.


Susan
mom to Jessica, 17, Christopher, 15 and Julia Grace, 12, SB L3, latex
allergic, full time wheeler
http://www.poochiep als.com/Jjaan. htm http://juliagrace. blessed4sure5. org/
http://www.kidsonwh eels.us/
http://www.waisman. wisc.edu/ ~rowley/sb- kids/photos/ julia_grace/

_____

From: sbaofnc@yahoogroups .com [mailto:sbaofnc@yahoogroups .com] On Behalf Of
Shelly Mendenhall
Sent: Tuesday, June 03, 2008 6:14 PM
To: sbaofnc@yahoogroups .com
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
to NC

Lisa, that is so cool. How do you like it? I have family in Winston and
Clemmons.?? I'm in Fayetteville, quite a bit older than you, I will be 40 in
January.? We have transportation issues in Fayetteville so that is primarily
the reason I don't live away from home.? What has Winston got?

Shelly

?

-----Original Message-----
From: Lisa Pubantz <lpubantz77@ triad. <mailto:lpubantz77% 40triad.rr. com>
rr.com>
To: sbaofnc@yahoogroups <mailto:sbaofnc% 40yahoogroups. com> .com
Sent: Tue, 3 Jun 2008 5:55 pm
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
to NC

Christine,
I'm 31 years old, I have SB, and I live in Winston-Salem NC in a
HUD-assisted apartment for mobility impaired people who have low income.
I've been living in NC all my life and I love it! Hope you enjoy it here as
much as I do!

Lisa Pubantz
----- Original Message -----
From: cynthia teresa
To: sbaofnc@yahoogroups <mailto:sbaofnc% 40yahoogroups. com> .com
Sent: Tuesday, June 03, 2008 5:34 PM
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
to NC

I live in Monroe, NC. I have a 5 yr. old girl with SB. I think you will like
it here in NC Christine. I've been here for 6 years now, and I love it!

Cynthia

lost_star_vega <no_reply@yahoogrou p <mailto:no_reply% 40yahoogroups. com>
s.com> wrote:
I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived
in NC my whole life, it is a very nice place. I hope your move goes
well.

~Jamie

--- In sbaofnc@yahoogroups <mailto:sbaofnc% 40yahoogroups. com> .com,
"christine" <christine1970_ 2000@...>
wrote:
>
> I am moving to the Rutherfordton area. I had written the group back in
> Feb of this year I think saying that I would be moving to NC. I would
> like very much to meet up with some adults with SB if there are any on
> this list. I am 37 years old. Been living in Budapest Hungary for the
> last 8yrs. Will be in PA for the summer but should be in the
> Rutherfordton area by late summer. I see there is a group from
> Asheville. Are their any adults with SB involved in the group? If not
> I would be more than happy to be a mentor or something to any one that
> would like one. Or just be a friend to someone
>
> Blessings
> Christine
>

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

Susan, yes I do remember you.? You were phasing in on the board as I was
leaving.? Yes, I had a shunt last from age 13 to age 34.?? Then after that I had
two redone with in the span of less than two years.?? My current one is not
quite three years old.?? Gosh your kids have grown.? She was a little bitty
thing the last time I saw her.? She's my niece's age.? Good to hear from you.

Shelly


?


-----Original Message-----
From: susan collins <susancollins@...>
To: sbaofnc@yahoogroups.com
Sent: Tue, 3 Jun 2008 9:14 pm
Subject: RE: [SBAofNC] Re: Is this group active still? Moving by late summer to
NC






Hi Shelly...not sure if you remember me from years ago. I was on the Board
way back. I also met Joanne Mackey at one time. Julia Grace is now 12. We
live in Clemmons. Did you say you had a shunt (working) for 22 years? Wow!
Maybe there is hope that JG isn't headed towards a malfunction. Her is
almost 13 years old and it scares me that it could go any time...much more
so than from ages 4-10. I sure wish we had more resources in NC so people
could get together more often. JG plays basketball in Charlotte with the
Rollin' Bobcats and lots of the kids have SB, so she gets to see others,
plus she goes to Camp Carefree and next year, we hope, to Victory Junction
again.


Susan
mom to Jessica, 17, Christopher, 15 and Julia Grace, 12, SB L3, latex
allergic, full time wheeler
http://www.poochiepals.com/Jjaan.htm http://juliagrace.blessed4sure5.org/
http://www.kidsonwheels.us/
http://www.waisman.wisc.edu/~rowley/sb-kids/photos/julia_grace/

_____

From: sbaofnc@yahoogroups.com [mailto:sbaofnc@yahoogroups.com] On Behalf Of
Shelly Mendenhall
Sent: Tuesday, June 03, 2008 6:14 PM
To: sbaofnc@yahoogroups.com
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
to NC

Lisa, that is so cool. How do you like it? I have family in Winston and
Clemmons.?? I'm in Fayetteville, quite a bit older than you, I will be 40 in
January.? We have transportation issues in Fayetteville so that is primarily
the reason I don't live away from home.? What has Winston got?

Shelly

?

-----Original Message-----
From: Lisa Pubantz <lpubantz77@triad. <mailto:lpubantz77%40triad.rr.com>
rr.com>
To: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
Sent: Tue, 3 Jun 2008 5:55 pm
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
to NC

Christine,
I'm 31 years old, I have SB, and I live in Winston-Salem NC in a
HUD-assisted apartment for mobility impaired people who have low income.
I've been living in NC all my life and I love it! Hope you enjoy it here as
much as I do!

Lisa Pubantz
----- Original Message -----
From: cynthia teresa
To: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
Sent: Tuesday, June 03, 2008 5:34 PM
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
to NC

I live in Monroe, NC. I have a 5 yr. old girl with SB. I think you will like
it here in NC Christine. I've been here for 6 years now, and I love it!

Cynthia

lost_star_vega <no_reply@yahoogroup <mailto:no_reply%40yahoogroups.com>
s.com> wrote:
I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived
in NC my whole life, it is a very nice place. I hope your move goes
well.

~Jamie

--- In sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com,
"christine" <christine1970_2000@...>
wrote:
>
> I am moving to the Rutherfordton area. I had written the group back in
> Feb of this year I think saying that I would be moving to NC. I would
> like very much to meet up with some adults with SB if there are any on
> this list. I am 37 years old. Been living in Budapest Hungary for the
> last 8yrs. Will be in PA for the summer but should be in the
> Rutherfordton area by late summer. I see there is a group from
> Asheville. Are their any adults with SB involved in the group? If not
> I would be more than happy to be a mentor or something to any one that
> would like one. Or just be a friend to someone
>
> Blessings
> Christine
>

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

Hi Shelly...not sure if you remember me from years ago.  I was on the Board
way back.  I also met Joanne Mackey at one time.  Julia Grace is now 12.  We
live in Clemmons.  Did you say you had a shunt (working) for 22 years?  Wow!
Maybe there is hope that JG isn't headed towards a malfunction.  Her is
almost 13 years old and it scares me that it could go any time...much more
so than from ages 4-10.  I sure wish we had more resources in NC so people
could get together more often.  JG plays basketball in Charlotte with the
Rollin' Bobcats and lots of the kids have SB, so she gets to see others,
plus she goes to Camp Carefree and next year, we hope, to Victory Junction
again.


Susan
mom to Jessica, 17, Christopher, 15 and Julia Grace, 12, SB L3, latex
allergic, full time wheeler
http://www.poochiepals.com/Jjaan.htm http://juliagrace.blessed4sure5.org/
http://www.kidsonwheels.us/
http://www.waisman.wisc.edu/~rowley/sb-kids/photos/julia_grace/



   _____

From: sbaofnc@yahoogroups.com [mailto:sbaofnc@yahoogroups.com] On Behalf Of
Shelly Mendenhall
Sent: Tuesday, June 03, 2008 6:14 PM
To: sbaofnc@yahoogroups.com
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
to NC



Lisa, that is so cool. How do you like it? I have family in Winston and
Clemmons.?? I'm in Fayetteville, quite a bit older than you, I will be 40 in
January.? We have transportation issues in Fayetteville so that is primarily
the reason I don't live away from home.? What has Winston got?

Shelly

?

-----Original Message-----
From: Lisa Pubantz <lpubantz77@triad. <mailto:lpubantz77%40triad.rr.com>
rr.com>
To: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
Sent: Tue, 3 Jun 2008 5:55 pm
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
to NC

Christine,
I'm 31 years old, I have SB, and I live in Winston-Salem NC in a
HUD-assisted apartment for mobility impaired people who have low income.
I've been living in NC all my life and I love it! Hope you enjoy it here as
much as I do!

Lisa Pubantz
----- Original Message -----
From: cynthia teresa
To: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
Sent: Tuesday, June 03, 2008 5:34 PM
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
to NC

I live in Monroe, NC. I have a 5 yr. old girl with SB. I think you will like
it here in NC Christine. I've been here for 6 years now, and I love it!

Cynthia

lost_star_vega <no_reply@yahoogroup <mailto:no_reply%40yahoogroups.com>
s.com> wrote:
I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived
in NC my whole life, it is a very nice place. I hope your move goes
well.

~Jamie

--- In sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com,
"christine" <christine1970_2000@...>
wrote:
>
> I am moving to the Rutherfordton area. I had written the group back in
> Feb of this year I think saying that I would be moving to NC. I would
> like very much to meet up with some adults with SB if there are any on
> this list. I am 37 years old. Been living in Budapest Hungary for the
> last 8yrs. Will be in PA for the summer but should be in the
> Rutherfordton area by late summer. I see there is a group from
> Asheville. Are their any adults with SB involved in the group? If not
> I would be more than happy to be a mentor or something to any one that
> would like one. Or just be a friend to someone
>
> Blessings
> Christine
>

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

Lisa, that is so cool. How do you like it? I have family in Winston and
Clemmons.?? I'm in Fayetteville, quite a bit older than you, I will be 40 in
January.? We have transportation issues in Fayetteville so that is primarily the
reason I don't live away from home.? What has Winston got?

Shelly


?


-----Original Message-----
From: Lisa Pubantz <lpubantz77@...>
To: sbaofnc@yahoogroups.com
Sent: Tue, 3 Jun 2008 5:55 pm
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer to
NC






Christine,
I'm 31 years old, I have SB, and I live in Winston-Salem NC in a HUD-assisted
apartment for mobility impaired people who have low income. I've been living in
NC all my life and I love it! Hope you enjoy it here as much as I do!

Lisa Pubantz
----- Original Message -----
From: cynthia teresa
To: sbaofnc@yahoogroups.com
Sent: Tuesday, June 03, 2008 5:34 PM
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer to
NC

I live in Monroe, NC. I have a 5 yr. old girl with SB. I think you will like it
here in NC Christine. I've been here for 6 years now, and I love it!

Cynthia

lost_star_vega <no_reply@yahoogroups.com> wrote:
I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived
in NC my whole life, it is a very nice place. I hope your move goes
well.

~Jamie

--- In sbaofnc@yahoogroups.com, "christine" <christine1970_2000@...>
wrote:
>
> I am moving to the Rutherfordton area. I had written the group back in
> Feb of this year I think saying that I would be moving to NC. I would
> like very much to meet up with some adults with SB if there are any on
> this list. I am 37 years old. Been living in Budapest Hungary for the
> last 8yrs. Will be in PA for the summer but should be in the
> Rutherfordton area by late summer. I see there is a group from
> Asheville. Are their any adults with SB involved in the group? If not
> I would be more than happy to be a mentor or something to any one that
> would like one. Or just be a friend to someone
>
> Blessings
> Christine
>

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

Christine,
I'm 31 years old, I have SB,  and I live in Winston-Salem NC in a HUD-assisted
apartment for mobility impaired people who have low income.  I've been living in
NC all my life and I love it!  Hope you enjoy it here as much as I do!

Lisa Pubantz
   ----- Original Message -----
   From: cynthia teresa
   To: sbaofnc@yahoogroups.com
   Sent: Tuesday, June 03, 2008 5:34 PM
   Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
to NC


   I live in Monroe, NC. I have a 5 yr. old girl with SB. I think you will like
it here in NC Christine. I've been here for 6 years now, and I love it!

   Cynthia

   lost_star_vega <no_reply@yahoogroups.com> wrote:
   I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived
   in NC my whole life, it is a very nice place. I hope your move goes
   well.

   ~Jamie

   --- In sbaofnc@yahoogroups.com, "christine" <christine1970_2000@...>
   wrote:
   >
   > I am moving to the Rutherfordton area. I had written the group back in
   > Feb of this year I think saying that I would be moving to NC. I would
   > like very much to meet up with some adults with SB if there are any on
   > this list. I am 37 years old. Been living in Budapest Hungary for the
   > last 8yrs. Will be in PA for the summer but should be in the
   > Rutherfordton area by late summer. I see there is a group from
   > Asheville. Are their any adults with SB involved in the group? If not
   > I would be more than happy to be a mentor or something to any one that
   > would like one. Or just be a friend to someone
   >
   > Blessings
   > Christine
   >

   [Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]

I live in Monroe, NC. I have a 5 yr. old girl with SB. I think you will like it
here in NC Christine. I've been here for 6 years now, and I love it!

   Cynthia

lost_star_vega <no_reply@yahoogroups.com> wrote:
           I'm in the Charlotte area. I have a 3 yr old girl with SB. I have
lived
in NC my whole life, it is a very nice place. I hope your move goes
well.

~Jamie

--- In sbaofnc@yahoogroups.com, "christine" <christine1970_2000@...>
wrote:
>
> I am moving to the Rutherfordton area. I had written the group back in
> Feb of this year I think saying that I would be moving to NC. I would
> like very much to meet up with some adults with SB if there are any on
> this list. I am 37 years old. Been living in Budapest Hungary for the
> last 8yrs. Will be in PA for the summer but should be in the
> Rutherfordton area by late summer. I see there is a group from
> Asheville. Are their any adults with SB involved in the group? If not
> I would be more than happy to be a mentor or something to any one that
> would like one. Or just be a friend to someone
>
> Blessings
> Christine
>







[Non-text portions of this message have been removed]

Hi Joanne, nice to hear from you.? Yeah, I've had two shunt revisions in the
last four years after going 22 years without having one.? I also have lymphedema
in my legs that is being treated in Fayetteville.? That's my biggest hurdle the
last few years.? Lots of infections from the weeping it will do from time to
time, etc.?? My birth father died last September from lung cancer, Frankie had a
heart attack and didn't work for four months, and Mom had atrial fibrillation
that has been being treated for the last 6 months after she spent a week at Cape
Fear.? She still works with the psychiatric hospital at Cape Fear although now
with adults.? Frankie is retiring in January.? There are 9 grandkids in this
family.?? My sister has two of her own, a stepson that she and his father are
raising, Chris married in 2001 and his wife had two children from a previous
marriage, plus they have had two of their own, and Tonia has two teenagers.??
Her husband Matt just retired from the Army and they have settled here.??

I spent three days at Duke in November myself we thought I was having shunt
failure again but it was a MRSA infection in my leg and a pretty severe case of
a urinary tract infection.? I still have the urostomy pouch that was done by the
doctor that was there prior to George Webster (yeah that was 32 years ago) but
Cary Z had previously talked to me (like when I was in my early 20's) about the
Mitrofanoff and ACE procedures.? I dismissed him at the time because quite
honestly I was fed up with surgeries and of course in our youth we try to avoid
as much of that as possible.?? However, I am at a point now with these issues
that the urostomy is not serving me well and I've never had good bowel issues,
so I am going to talk with Cary Z when I see them again in October to see what
they feel in regards to me being a candidate for these procedures irregardless
of whether they would want to perform them.?? I'll be 40 in January 2009.? Time
flies when you are living life.? Notice I did not say having fun.? It fell to me
to advocate for my father and make arrangements for his hospice care (he had
lung cancer), and ultimately we have an inpatient hospice here in town that I
placed him in for his last few days and then it fell to me to arrange his
funeral arrangements which weren't that hard since he was from Pittsboro, I went
with that.??

I figured you were still at Duke.? You know even though folks change positions
and things change around a bit, the same people seem to stay at Duke for a long
time so I've always known that even if I get to Duke and run across an issue I'm
not familiar with, that I can page you and you'd find me the answer :)

Take care, it's good to hear from you!

Shelly


?


-----Original Message-----
From: Joanne Mackey <macke003@...>
To: sbaofnc@yahoogroups.com
Sent: Tue, 3 Jun 2008 10:49 am
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer to
NC






Shelly,
Saw your posting and was glad to hear you are doing ok but sad to hear that
you are having health problems! How's your Mom? Let her know that I said
Hi! I am still at Duke although as you know not with the SB clinic
anymore. I do hear from some of the now adults every now and then. Chris
is doing well, working in Chapel Hill in the NC Office of Disability and
Health. He has a house in Durham that he has made fully accessible.
My other kids are all over the place - but now 4 of the 6 live in NC! I
have 5 grandchildren and 2 more on the way!
Give my best to your family,
Joanne

Joanne Mackey, RN, MSN, CPNP
Duke University Medical Center
Division of Medical Genetics
(919)681-1945

"The information contained in this electronic mail transmission contains
confidential information belonging to the sender that is legally
privileged.
This information is intended only for the use of the individual or entity
named
above. The authorized recipient of this information is prohibited from
disseminating, distributing, or copying this information. If you have
received
this information in error please delete this message, any attachments, and
all
copies and backups from your computer and notify the sender immediately by
replying to this message or call 919.668-1100 or 1.800.MED-DUKE."

Shelly Mendenhall
<ShellyontheWeb@a
ol.com> To
Sent by: sbaofnc@yahoogroups.com
sbaofnc@yahoogrou cc
ps.com
Subject
Re: [SBAofNC] Re: Is this group
06/02/2008 08:19 active still? Moving by late
PM summer to NC


Please respond to
sbaofnc@yahoogrou
ps.com



I'm in Fayetteville which is about 3 hours from Charlotte.?? I'm not sure what
is
going on with the state association anymore or if the Charlotte or Asheville
support groups are still active.? I am the former Executive Director of the
state
association, but resigned due to family and health reasons in 2000.?? We used to
have a 1-800 # with the state office and I turned it over to the gal that
replaced
me in 2000 who lives in Iron Station outside of Charlotte. I'm not sure if they
still have it or if the number is still active even but here it is, you can call
it and see if it's active and see what if anything is going on.? I know our
Fayetteville group which my Mom was president of is defunct due to lack of
participation, as well as ongoing health issues with me.? But here's the state #
call it and see if you get even the recording anymore 1-800-847-2262.?? If not,
I
don't know where to lead you because I've been out of the loop the last 8 years
or
so and I don't even attend the comprehensive SB clinics anymore......... my
lifestyle is such that it's more productive for me to go to the separate urology
and neurosurgery clinics at Duke.? I do know that the gentleman that was leading
the Asheville group when I resigned from the state board of directors, passed
away
about 5 years ago.? I'm not sure the group got back on it's feet afterwards.

Hope that helps!!?

Shelly Mendenhall

?

-----Original Message-----
From: lost_star_vega <no_reply@yahoogroups.com>
To: sbaofnc@yahoogroups.com
Sent: Mon, 2 Jun 2008 8:04 pm
Subject: [SBAofNC] Re: Is this group active still? Moving by late summer to NC

I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived
in NC my whole life, it is a very nice place. I hope your move goes
well.

~Jamie

--- In sbaofnc@yahoogroups.com, "christine" <christine1970_2000@...>
wrote:
>
> I am moving to the Rutherfordton area. I had written the group back in
> Feb of this year I think saying that I would be moving to NC. I would
> like very much to meet up with some adults with SB if there are any on
> this list. I am 37 years old. Been living in Budapest Hungary for the
> last 8yrs. Will be in PA for the summer but should be in the
> Rutherfordton area by late summer. I see there is a group from
> Asheville. Are their any adults with SB involved in the group? If not
> I would be more than happy to be a mentor or something to any one that
> would like one. Or just be a friend to someone
>
> Blessings
> Christine
>

[Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

Shelly,
Saw your posting and was glad to hear you are doing ok but sad to hear that
you are having health problems!  How's your Mom?  Let her know that I said
Hi!  I am still at Duke although as you know not with the SB clinic
anymore. I do hear from some of the now adults every now and then.  Chris
is doing well, working in Chapel Hill in the NC Office of Disability and
Health.  He has a house in Durham that he has made fully accessible.
My other kids are all over the place - but now 4 of the 6 live in NC!  I
have 5 grandchildren and 2 more on the way!
Give my best to your family,
Joanne

Joanne Mackey, RN, MSN, CPNP
Duke University Medical Center
Division of Medical Genetics
(919)681-1945

"The information contained in this electronic mail transmission contains
confidential information belonging to the sender that is legally
privileged.
This information is intended only for the use of the individual or entity
named
above.  The authorized recipient of this information is prohibited from
disseminating, distributing, or copying this information.  If you have
received
this information in error please delete this message, any attachments, and
all
copies and backups from your computer and notify the sender immediately by
replying to this message or call 919.668-1100 or 1.800.MED-DUKE."



              Shelly Mendenhall
              <ShellyontheWeb@a
              ol.com>                                                    To
              Sent by:                  sbaofnc@yahoogroups.com
              sbaofnc@yahoogrou                                          cc
              ps.com
                                                                    Subject
                                        Re: [SBAofNC] Re: Is this group
              06/02/2008 08:19          active still?  Moving by late
              PM                        summer to NC


              Please respond to
              sbaofnc@yahoogrou
                   ps.com











  I'm in Fayetteville which is about 3 hours from Charlotte.?? I'm not sure what
is
  going on with the state association anymore or if the Charlotte or Asheville
  support groups are still active.? I am the former Executive Director of the
state
  association, but resigned due to family and health reasons in 2000.?? We used
to
  have a 1-800 # with the state office and I turned it over to the gal that
replaced
  me in 2000 who lives in Iron Station outside of Charlotte. I'm not sure if they
  still have it or if the number is still active even but here it is, you can
call
  it and see if it's active and see what if anything is going on.? I know our
  Fayetteville group which my Mom was president of is defunct due to lack of
  participation, as well as ongoing health issues with me.? But here's the state
#
  call it and see if you get even the recording anymore 1-800-847-2262.?? If not,
I
  don't know where to lead you because I've been out of the loop the last 8 years
or
  so and I don't even attend the comprehensive SB clinics anymore......... my
  lifestyle is such that it's more productive for me to go to the separate
urology
  and neurosurgery clinics at Duke.? I do know that the gentleman that was
leading
  the Asheville group when I resigned from the state board of directors, passed
away
  about 5 years ago.? I'm not sure the group got back on it's feet afterwards.

  Hope that helps!!?

  Shelly Mendenhall

  ?

  -----Original Message-----
  From: lost_star_vega <no_reply@yahoogroups.com>
  To: sbaofnc@yahoogroups.com
  Sent: Mon, 2 Jun 2008 8:04 pm
  Subject: [SBAofNC] Re: Is this group active still? Moving by late summer to NC

  I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived
  in NC my whole life, it is a very nice place. I hope your move goes
  well.

  ~Jamie

  --- In sbaofnc@yahoogroups.com, "christine" <christine1970_2000@...>
  wrote:
  >
  > I am moving to the Rutherfordton area. I had written the group back in
  > Feb of this year I think saying that I would be moving to NC. I would
  > like very much to meet up with some adults with SB if there are any on
  > this list. I am 37 years old. Been living in Budapest Hungary for the
  > last 8yrs. Will be in PA for the summer but should be in the
  > Rutherfordton area by late summer. I see there is a group from
  > Asheville. Are their any adults with SB involved in the group? If not
  > I would be more than happy to be a mentor or something to any one that
  > would like one. Or just be a friend to someone
  >
  > Blessings
  > Christine
  >

  [Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]

I'm in Fayetteville which is about 3 hours from Charlotte.?? I'm not sure what
is going on with the state association anymore or if the Charlotte or Asheville
support groups are still active.? I am the former Executive Director of the
state association, but resigned due to family and health reasons in 2000.?? We
used to have a 1-800 # with the state office and I turned it over to the gal
that replaced me in 2000 who lives in Iron Station outside of Charlotte. I'm not
sure if they still have it or if the number is still active even but here it is,
you can call it and see if it's active and see what if anything is going on.? I
know our Fayetteville group which my Mom was president of is defunct due to lack
of participation, as well as ongoing health issues with me.? But here's the
state # call it and see if you get even the recording anymore 1-800-847-2262.??
If not, I don't know where to lead you because I've been out of the loop the
last 8 years or so and I don't even attend the comprehensive SB clinics
anymore......... my lifestyle is such that it's more productive for me to go to
the separate urology and neurosurgery clinics at Duke.? I do know that the
gentleman that was leading the Asheville group when I resigned from the state
board of directors, passed away about 5 years ago.? I'm not sure the group got
back on it's feet afterwards.

Hope that helps!!?

Shelly Mendenhall


?


-----Original Message-----
From: lost_star_vega <no_reply@yahoogroups.com>
To: sbaofnc@yahoogroups.com
Sent: Mon, 2 Jun 2008 8:04 pm
Subject: [SBAofNC] Re: Is this group active still? Moving by late summer to NC






I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived
in NC my whole life, it is a very nice place. I hope your move goes
well.

~Jamie

--- In sbaofnc@yahoogroups.com, "christine" <christine1970_2000@...>
wrote:
>
> I am moving to the Rutherfordton area. I had written the group back in
> Feb of this year I think saying that I would be moving to NC. I would
> like very much to meet up with some adults with SB if there are any on
> this list. I am 37 years old. Been living in Budapest Hungary for the
> last 8yrs. Will be in PA for the summer but should be in the
> Rutherfordton area by late summer. I see there is a group from
> Asheville. Are their any adults with SB involved in the group? If not
> I would be more than happy to be a mentor or something to any one that
> would like one. Or just be a friend to someone
>
> Blessings
> Christine
>






[Non-text portions of this message have been removed]

I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived
in NC my whole life, it is a very nice place. I hope your move goes
well.


~Jamie



  --- In sbaofnc@yahoogroups.com, "christine" <christine1970_2000@...>
wrote:
>
> I am moving to the Rutherfordton area. I had written the group back in
> Feb of this year I think saying that I would be moving to NC. I would
> like very much to meet up with some adults with SB if there are any on
> this list. I am 37 years old. Been living in Budapest Hungary for the
> last 8yrs. Will be in PA for the summer but should be in the
> Rutherfordton area by late summer. I see there is a group from
> Asheville. Are their any adults with SB involved in the group? If not
> I would be more than happy to be a mentor or something to any one that
> would like one. Or just be a friend to someone
>
> Blessings
> Christine
>

Dear Christine,

We have a 9yo Daughter with SB in Asheville. We moved
here almost 2 years ago, have not met anyone else with
SB here yet, but I know there are some folks in the
area. Western NC is a great place to live. Welcome!

Al Lyons

--- christine <christine1970_2000@...> wrote:

> I am moving to the Rutherfordton area. I had written
> the group back in
> Feb of this year I think saying that I would be
> moving to NC. I would
> like very much to meet up with some adults with SB
> if there are any on
> this list. I am 37 years old. Been living in
> Budapest Hungary for the
> last 8yrs. Will be in PA for the summer but should
> be in the
> Rutherfordton area by late summer. I see there is a
> group from
> Asheville. Are their any adults with SB involved in
> the group? If not
> I would be more than happy to be a mentor or
> something to any one that
> would like one. Or just be a friend to someone
>
> Blessings
> Christine
>
>
> ------------------------------------
>
> Yahoo! Groups Links
>
>
>
>
>

I am moving to the Rutherfordton area. I had written the group back in
Feb of this year I think saying that I would be moving to NC. I would
like very much to meet up with some adults with SB if there are any on
this list. I am 37 years old. Been living in Budapest Hungary for the
last 8yrs. Will be in PA for the summer but should be in the
Rutherfordton area by late summer. I see there is a group from
Asheville. Are their any adults with SB involved in the group? If not
I would be more than happy to be a mentor or something to any one that
would like one. Or just be a friend to someone

Blessings
Christine

Nice post on losing 9 lb in a week, but you got anything on losing 150 lbs in a
week, lol?  j/k, I know that would give you a heart attack.

Eric Sills
Hickory, NC

[Non-text portions of this message have been removed]

Hi all,

I wanted to let everyone know about an upcoming event this summer for
youth with disabilities. It will be an intensive 3 day leadership
development forum for youth ages 16-28.  The forum will be held July
12th-15th at UNC-Pembroke. Lodging, food, and accomodations are free
for delegates selected. Participants will stay in accesible dorms on
campus. Anyone who lives in NC, has a disability and is 16-28 is
eligible to attend. The forum will focusing on different forms of
leadership development within disability advocacy and activism both on
the local and national level. We will be selecting 40 delegates from
all across NC to attend. We are specifically looking for youth with
disabilities who have some leadership experience or who show
leadership potential. Please spread the word to youth who may be
interested. Email me at either rypinion@... or
ncyouthforum@... if you would like an application. You can also
email me or post back if you have any questions concerning the event
or application process We really want to make the participation
diverse as far as the disabilities and the regions across the state
represented. Please disperse this announcement far and wide.

Thanks,
The NC Youth Leadership Forum Committee

I know this email might seem abit strange and maybe not even right
for this group and if that is the case please tell me and I will see
where else i can find some information.

My name is Christine I am 37 yrs old. I was born with SB Myelo. I
walk with braces and crutches. I once in awhile will use a chair for
long distances. I have been living in Budapest, Hungary with my
parents fo the last 7 yrs. I am still here in Budapet. But the family
will be moving back to the US in the next 6-7 months. The reason I am
writing is because I will be moving possibly to either the Charlotte
area or Rutherfordton area of North Carolina. All depends on where my
dad's job takes him. He has been offered several option. I was
wondering if there was any support for adults with SB in either of
those areas? I am looking at in the next year of becoming independent
living on my own. I know of a program in PA, where we are orginally
from and there is that possiblity that we might move to PA but in
case the NC opportunities come through I wanted to see what kinds of
things there might be for me in NC.

I hope this makes sense and if anyone would like to communicate with
me off list feel free to email me at christine1970_2000@...

Thanks
Christine

Hi Kathy,

We are in Asheville. Our 9yo daughter "Ana" has SB. We
cath for urine and she has a MACE procedure for bowel.
She walks with crutches and braces, but uses a
wheelchair for longer distances. She is very smart and
is mainstreamed in 3rd grade.

We have not had any difficulty (yet) with the other
kids. They have not noticed yet that Ana wears
pull-up's. She had one 'accident' at school last year,
but the teacher and aid handled the situation quickly
and were able to get her out of the room before the
other students knew what was going on. Of course, with
the wheelchair and crutches and all of that, the kids
already know Ana is 'different'.

I would suggest talking with the teacher about your
concerns and asking for feedback about how the
socialization with other kids is going. I know some
parents have prepared little 5 minute presentations
where they go to the class and 'teach' the classmates
about SB. In our case, the teachers suggested that it
wasn't necessary, as there had not been any problems,
and they did not want to emphasize Ana's differences.

Last, but not least, I think we need to teach our kids
to be thick-skinned and encourage their self-esteem
and resilience. I am able-bodied, but when I was a kid
they picked on me for acne and being fat, so if it is
not the SB, the kids would find something else. This
is what kids tend to do.

Regarding the list, it has been my experience that it
does not get much traffic, regardless of the time of
year. Please feel free to keep in touch, though.

Al & Karen and family in Asheville


--- XChpmunkx <xchpmunkx@...> wrote:

> Hi, I'm Kathy - I know boards can get quiet around
> the holidays, just
> wondering if this board is still active?
>
> My godson Christopher has SB Occulta, he's 8 and was
> just diagnosed
> this past summer.  I am still learning much about
> this and came upon
> this site.
>
> His teachers at school are not helpful with the
> regimented bathroom
> trips. I had remembered that my eldest son had a 504
> plan in school
> for his diabetes, and found on the SBA pre-made 504
> forms - YEAH!
> This will help his family.
>
> How would SB be best explained to my little one who
> is 7 and is best
> friends with with Christopher. So far he has not
> been aware of any BM
> accidents, he has never commented on the fact that
> Christopher now
> wears pull ups.  (They have been friends since my
> son was born, the
> incontinence didn't become a problem until last
> school year).
>
> Christopher is sure that when his friends find out
> that he has
> accidents and can't control it that they will not
> want to be friends
> anymore. I'm sure that is a normal fear given the
> age and situation.
>
> Thanks for any info, Kathy
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>

Hi, I'm Kathy - I know boards can get quiet around the holidays, just
wondering if this board is still active?

My godson Christopher has SB Occulta, he's 8 and was just diagnosed
this past summer.  I am still learning much about this and came upon
this site.

His teachers at school are not helpful with the regimented bathroom
trips. I had remembered that my eldest son had a 504 plan in school
for his diabetes, and found on the SBA pre-made 504 forms - YEAH!
This will help his family.

How would SB be best explained to my little one who is 7 and is best
friends with with Christopher. So far he has not been aware of any BM
accidents, he has never commented on the fact that Christopher now
wears pull ups.  (They have been friends since my son was born, the
incontinence didn't become a problem until last school year).

Christopher is sure that when his friends find out that he has
accidents and can't control it that they will not want to be friends
anymore. I'm sure that is a normal fear given the age and situation.

Thanks for any info, Kathy

---- yacquevicent <yacquevicent@...> wrote:
> I have a son of 3 years old and I would like to hear from you all
> about the bowel movement control. I have haerd too many things but i
> have not tried any. Doctors suggested me to use a syringe,
> suppositories, etc.. but I am afraid to damage something else on him.

You want a bowel routine. Talk to your Dr at your SB clinic. We use a cone enema
and have been essentially accident free since getting the routine down.  We
started at about your son's age.  If you don't have an SB clinic, make an
appointment at Shriners Hospital in Greenville, SC. Tell them you want to see
Jean Brown while you are there. The care is completely free, and Jean is
nationally known as the poop nurse.  She knows more about pooping than you would
think there is to be known. She will ask you many questions about diet,
frequency, consistency, etc and make a recommendation to put you on the path to
bowel continence.

Good luck

Yacqueline,

I can tell you what I chose to do, whether it is best or not, but it works for
us.  I chose to put John under a 504 plan with only one accommodation which was
being able to use the staff bathroom.  I chose this because I wanted John's
school experience to be free of any children knowing he wore diapers etc.  I
know that I only have a few years to keep him safe from children realizing that
he may do things differently.  I wanted John to focus on school academics and
not worry about the bathroom.  I can help him at home on that.  What I do is I
get to school at 7:30am.  I change him in the staff bathroom before my students
arrive.  He comes to my room at 10:15am just before lunch to be changed, 12:30pm
after play time and my mom picks him up at 3:00pm and changes as soon as she
gets home.  I did have a 1:30pm time scheduled but he was barely wet so we took
it off the schedule.  I will say that I am VERY fortunate to work with great
teachers.  His teacher's first words to me was don't worry about a thing I will
take care of him.  Although I chose to be the primary person to change John it
does not take away from my teacher duties as I have the time scheduled during
specials or playtime for my room as well.  If I am not there the teacher changes
him.  If he has a accident like a BM during the day and the teacher smells him
she just sends him to me.  It has been wonderful to see John excel academically.
The total changing time is about 4 mins. John gets all his supplies out himself.
I hope this helps, just remember to make their school years the most positive
experience as possible.

Sherry
----- Original Message -----
   From: yacquevicent
   To: sbaofnc@yahoogroups.com
   Sent: Tuesday, December 04, 2007 10:58 AM
   Subject: [SBAofNC] Re: School Bathroom Suggestions


   Sherry I am in the same situation you are. I'm just found out about
   your e-mail and I would like to know if you already got some
   suggestions about your problem. I am a school teacher also and I am
   thinking about enrolling my son soon here. Please let me know what
   you found out. My situation is like yours. I am surprised.

   Yacqueline

   --- In sbaofnc@yahoogroups.com, "Sherry Thurman" <thurman@...> wrote:
   >
   > Well the time is near my son John will be going to Kindergarten!
   The good thing is I will be teaching at the same school that he will
   be at. I need advice! He is not cathed and he wears diapers /
   goodnites. I have been working on a bowel program and he has been
   consistent on most days. Do you allow him to go to the restroom
   with the class and manage on his own and if he needs to be changed
   he can come and get me or do I just set a schedule for him to use
   the private bathroom and I meet him there? What have others done
   who have children that are not cathed yet? I don't want him to be
   dependent on me, but I want him to feel comfortable as he starts
   school. Background info: He walks with braces but has good balance
   and can pull down clothes and pull them up etc. He had not been
   telling be when he has to use the bathroom or when he has a bowel
   movement. I get upset because I think he plays me because he may
   not be able to feel it, but he should be able to smell! Has other
   parents experienced this and if so when did your child tell you they
   were wet or had a bowel movement? I feel so fortunate to be able to
   be at the same school to ensure he is well taken care of but I don't
   want to hold him back. I have never treated him differently! Also,
   do any of you have a toileting plan or a medical plan in place for
   your child? If so could you share?
   >
   > Sherry
   > Mom to John will be 5 on 7/28. Lesion S1, walking, running, not
   cathed, shunt. Leann 9 bright and loves her brother, also mothers
   him!
   >
   > [Non-text portions of this message have been removed]
   >





[Non-text portions of this message have been removed]

I have a son of 3 years old and I would like to hear from you all
about the bowel movement control. I have haerd too many things but i
have not tried any. Doctors suggested me to use a syringe,
suppositories, etc.. but I am afraid to damage something else on him.
i want to hear about your experience. Please let me know about how to
manage this situation in the school.
May God Bless you all
Yacqueline

Sherry I am in the same situation you are. I'm just found out about
your e-mail and I would like to know if you already got some
suggestions about your problem. I am a school teacher also and I am
thinking about enrolling my son soon here. Please let me know what
you found out. My situation is like yours. I am surprised.

Yacqueline

--- In sbaofnc@yahoogroups.com, "Sherry Thurman" <thurman@...> wrote:
>
> Well the time is near my son John will be going to Kindergarten!
The good thing is I will be teaching at the same school that he will
be at.  I need advice!  He is not cathed and he wears diapers /
goodnites.  I have been working on a bowel program and he has been
consistent on most days.  Do you allow him to go to the restroom
with the class and manage on his own and if he needs to be changed
he can come and get me or do I just set a schedule for him to use
the private bathroom and I meet him there?  What have others done
who have children that are not cathed yet?  I don't want him to be
dependent on me, but I want him to feel comfortable as he starts
school.  Background info:  He walks with braces but has good balance
and can pull down clothes and pull them up etc.  He had not been
telling be when he has to use the bathroom or when he has a bowel
movement.  I get upset because I think he plays me because he may
not be able to feel it, but he should be able to smell!  Has other
parents experienced this and if so when did your child tell you they
were wet or had a bowel movement?  I feel so fortunate to be able to
be at the same school to ensure he is well taken care of but I don't
want to hold him back.  I have never treated him differently!  Also,
do any of you have a toileting plan or a medical plan in place for
your child?  If so could you share?
>
> Sherry
> Mom to John will be 5 on 7/28.  Lesion S1, walking, running, not
cathed, shunt.  Leann 9 bright and loves her brother, also mothers
him!
>
> [Non-text portions of this message have been removed]
>