Sherry I am in the same situation you are. I'm just found out about your e-mail and I would like to know if you already got some suggestions about your...
I have a son of 3 years old and I would like to hear from you all about the bowel movement control. I have haerd too many things but i have not tried any....
... You want a bowel routine. Talk to your Dr at your SB clinic. We use a cone enema and have been essentially accident free since getting the routine down....
Hi, I'm Kathy - I know boards can get quiet around the holidays, just wondering if this board is still active? My godson Christopher has SB Occulta, he's 8 and...
Hi Kathy, We are in Asheville. Our 9yo daughter "Ana" has SB. We cath for urine and she has a MACE procedure for bowel. She walks with crutches and braces, but...
I know this email might seem abit strange and maybe not even right for this group and if that is the case please tell me and I will see where else i can find...
Hi all, I wanted to let everyone know about an upcoming event this summer for youth with disabilities. It will be an intensive 3 day leadership development...
Nice post on losing 9 lb in a week, but you got anything on losing 150 lbs in a week, lol? j/k, I know that would give you a heart attack. Eric Sills Hickory,...
I am moving to the Rutherfordton area. I had written the group back in Feb of this year I think saying that I would be moving to NC. I would like very much to...
Dear Christine, We have a 9yo Daughter with SB in Asheville. We moved here almost 2 years ago, have not met anyone else with SB here yet, but I know there are...
I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived in NC my whole life, it is a very nice place. I hope your move goes well. ~Jamie...
I'm in Fayetteville which is about 3 hours from Charlotte.?? I'm not sure what is going on with the state association anymore or if the Charlotte or Asheville...
Shelly, Saw your posting and was glad to hear you are doing ok but sad to hear that you are having health problems! How's your Mom? Let her know that I said ...
Joanne Mackey
macke003@...
Jun 3, 2008 2:50 pm
339
Hi Joanne, nice to hear from you.? Yeah, I've had two shunt revisions in the last four years after going 22 years without having one.? I also have lymphedema...
I live in Monroe, NC. I have a 5 yr. old girl with SB. I think you will like it here in NC Christine. I've been here for 6 years now, and I love it! Cynthia ...
Christine, I'm 31 years old, I have SB, and I live in Winston-Salem NC in a HUD-assisted apartment for mobility impaired people who have low income. I've...
Lisa, that is so cool. How do you like it? I have family in Winston and Clemmons.?? I'm in Fayetteville, quite a bit older than you, I will be 40 in January.?...
Hi Shelly...not sure if you remember me from years ago. I was on the Board way back. I also met Joanne Mackey at one time. Julia Grace is now 12. We live...
Susan, yes I do remember you.? You were phasing in on the board as I was leaving.? Yes, I had a shunt last from age 13 to age 34.?? Then after that I had two...
Please remember to change the subject heading. Apparently it has changed from my original topic of moving to NC to two people reconnecting. Christine Cast all...
Hi Shelly, I used to live in Clemmons. My parents live there and I used to live with them until I moved into my apartment in Feb. 2007. I am fortunate that...
thank you all for the responses. I sure hope that more people join this that live in the western part of the state. I would like to connect with some adults...
Dear Chris, We would be interested in being a part of a reconstituted Western NC Chapter, should the opportunity present. Keep in touch with us as you ...
I was going to suggest the same thing that you folks in that area do some networking together and perhaps rebuild the Western NC chapter.? I'm sure the...
Alfred I would very much like to part of a group. Please keep me posted. I have added you to IM yahoo if you have it feel free to add me too. Are you a adult...
Al, I think you're right.? If memory serves me correctly (and it doesn't always) I think it was Thoms Rehabilitation in those parts that had an SB clinic.? I...
Hi Shelly, I am not so concerned about the clinic, as we get good care from Shriners. But, I would really like to get Ana around some other kids with SB, as...
The state chapter is still going, but slowly. The SBAA changed charters and each "chapter" now has to have at least something like $50,000 to be a member and...
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