Well the time is near my son John will be going to Kindergarten! The good thing is I will be teaching at the same school that he will be at. I need advice!...
hi, Sherry, my name is Timothy. I bet it's driving you mad having to worry about this situation. I will be 23 this thursday, and I also have Spina Bifida (I...
Timothy, Thank you for your response! It helps to hear from someone who has lived it. So do you think I should let him try going to the bathroom on his own?...
well, the nurse helped me a little bit. and wearing underwear over it is a must. just let him do his thing, but if he needs help, tell him it's okay if the...
My son is 8, so much older. We also use Miralax/Glycolax. He recently had a surgery, appendicitis, and is now recovering. It is difficult getting that bowel...
Thanks for the help. She was an antibiotic for a UTI. I'm glad to hear that it does take a while to get things back to normal. My little girl is going to...
My son's doctor just suggested that we use a rectal syringe to clean out our son. He suggested using tap water and table salt. Has anyone else used this...
I will be out of the office starting 07/28/2007 and will not return until 08/06/2007. I will respond to your message when I return. If this is regarding Pompe...
Joanne Mackey
macke003@...
Jul 30, 2007 8:12 pm
320
I have a 26 year old brother with SB. When he was a teenager, we used to have to help him with his. It was very uncomfortable for him and the person...
Sherry, My son just turned 11yrs old. We used to do that also, but it was very awkward doing it that way. He had what is called a MACE procedure done about a...
Sherry I am in the same situation you are. I'm just found out about your e-mail and I would like to know if you already got some suggestions about your...
I have a son of 3 years old and I would like to hear from you all about the bowel movement control. I have haerd too many things but i have not tried any....
... You want a bowel routine. Talk to your Dr at your SB clinic. We use a cone enema and have been essentially accident free since getting the routine down....
Hi, I'm Kathy - I know boards can get quiet around the holidays, just wondering if this board is still active? My godson Christopher has SB Occulta, he's 8 and...
Hi Kathy, We are in Asheville. Our 9yo daughter "Ana" has SB. We cath for urine and she has a MACE procedure for bowel. She walks with crutches and braces, but...
I know this email might seem abit strange and maybe not even right for this group and if that is the case please tell me and I will see where else i can find...
Hi all, I wanted to let everyone know about an upcoming event this summer for youth with disabilities. It will be an intensive 3 day leadership development...
Nice post on losing 9 lb in a week, but you got anything on losing 150 lbs in a week, lol? j/k, I know that would give you a heart attack. Eric Sills Hickory,...
I am moving to the Rutherfordton area. I had written the group back in Feb of this year I think saying that I would be moving to NC. I would like very much to...
Dear Christine, We have a 9yo Daughter with SB in Asheville. We moved here almost 2 years ago, have not met anyone else with SB here yet, but I know there are...
I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived in NC my whole life, it is a very nice place. I hope your move goes well. ~Jamie...
I'm in Fayetteville which is about 3 hours from Charlotte.?? I'm not sure what is going on with the state association anymore or if the Charlotte or Asheville...
Shelly, Saw your posting and was glad to hear you are doing ok but sad to hear that you are having health problems! How's your Mom? Let her know that I said ...
Joanne Mackey
macke003@...
Jun 3, 2008 2:50 pm
339
Hi Joanne, nice to hear from you.? Yeah, I've had two shunt revisions in the last four years after going 22 years without having one.? I also have lymphedema...
I live in Monroe, NC. I have a 5 yr. old girl with SB. I think you will like it here in NC Christine. I've been here for 6 years now, and I love it! Cynthia ...
Christine, I'm 31 years old, I have SB, and I live in Winston-Salem NC in a HUD-assisted apartment for mobility impaired people who have low income. I've...
Lisa, that is so cool. How do you like it? I have family in Winston and Clemmons.?? I'm in Fayetteville, quite a bit older than you, I will be 40 in January.?...
Hi Shelly...not sure if you remember me from years ago. I was on the Board way back. I also met Joanne Mackey at one time. Julia Grace is now 12. We live...
Susan, yes I do remember you.? You were phasing in on the board as I was leaving.? Yes, I had a shunt last from age 13 to age 34.?? Then after that I had two...
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