my name is reann i am 25 and from wales (UK) i have 2 kids and pregnant with my 3, we have been told that she has spina bifida. she has the meningocele type...
Reann, Congratulations on your new little girl! You did not say if your other children were girls or boys. I am the mother of a child born with Spina Bifida...
Joanne Mackey
macke003@...
Oct 18, 2006 4:44 pm
256
SAVE THE DATES! Spina Bifida Association 2007 Annual Conference June 24 – 27, 2006 Louisville, Kentucky Conference Hotel The Galt House & Suites Reservation...
Hi all! I was just wondering if there are any families out there near high point nc, I have a 4 year old with tcs, nuerogenic bladder and bowel etc. I would...
Hi Faith, We are new to NC too (since August 2006), and living in Asheville. I am unsure how close that is to Highpoint. We are still linking to services. We...
<>Spina Bifida Association Updates<> 1. SBA 34th Annual Conference in Louisville Kentucky June 24 - June 27, 2007 Register Online Now SBA's Annual Conference...
Faith, Hey! I'm a 29 year old female with spina bifida living in the Winston- Salem, NC. I know that Baptist Hospital here in Winston-Salem has a SB clinic...
Hi! We live near Winston-Salem. I have an 11 year old daughter with SB L3. Susan _____ From: sbaofnc@yahoogroups.com [mailto:sbaofnc@yahoogroups.com] On...
Hi Faith, My name is Cynthia, I also have a 3 1/2 child with (Spina Bifida) bladder and Bowel movement problems. We live in Monroe, NC. I would love to...
Al, I have an 8 yo son with SB, neurogenic bladder and bowel, etc. We live in NC too. Can you explain what you said about where to get started with services. I...
We have CAP-C services in Forsyth County and I can get you the name of our cap manager and her phone number. I imagine she can get you to the right number for...
My daughter has Spina bifida Occulta.... There seems to be so much debating going on about whether TCS (tethered cord syndrome) or LMC (lipomyelomeningocele) ...
We live in Whitsett, NC. We now have a daughter who was born Jan. 9 with Spina Bifida. Because we knew through prenatal testing, we were referred to Duke....
Does anyone know if there is a Spina Bifida Clinic in Greenville NC? I am presently being seen at Duke's Clinic but quite frankly I a have been unimpressed...
I don’t know about Greenville, NC but there is in Greeneville, SC. Shriner’s. Also, we go to SB clinic at Wake Forest Univ. Baptist Medical Center in W-S....
We're driving down to the Shriners Clinic in Greenville, SC from Asheville, NC. We haven't actually attended a clinic there yet, but I can tell you from ...
There is one SB Clinic in Greenville, NC. I don't take my daughter here because we are from Union County, I take her in Mecklenburg County. Anyway, below is...
I have been taking my son to Duke also and we live in Union County too. I didn't realize there was a SB Clinic in Mecklenburg, I heard that it was stopped...
The hospital in Chapel Hill is North Carolina Memorial. It's on the campus of UNC.I was a patient there in 1988. I was in my early twenties at the time. They...
I just noticed your response about Duke's Clinic, we have had an excellent relationship with Duke regarding our daughter's (6 years) issues with Spina Bifida...
I also had a bad impression about some doctors in Duke. My child also have a Spina Bifida, she will turn 4 this coming May 2007. When she was 2 months old, her...
I completely agree with you. As a parent you have to keep up with the latest information and become as educated as possible in the condition and medical...
I am sorry I have to respond to this. I had a friend that is no longer with us because of a doctor not at Duke but another hospital that did not do a surgery...
Your absolutely right Lisa. My child has a regular check-up. They do MRI's (Cranial and spine) on her regularly, and other test concerning about her SB. Thanks...
My daughter has been followed at UNC since she was born there 2/2000. The clinic is held at the Physical Medicine and Rehabilitation clinic and is held...
if anybody is good with dealing with SSI i would really like to talk to you one on one via email. i am having some issues and could use some help. brandon...
As a pediatric nurse and the mother of a two year old with spina bifida I have had experiences with most of the hospitals and specialists in the eastern Nc...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
