Cathie, Yes, my daughter's pediatrician prescribed the patch. My one thought regarding the endometrial ablation is to question if that is in effect a form of...
Hi I have a 6 yr old girl with SB. We live in Chapel Hill. Was wondering if anyone has any ideas/info on summer camps. We know about Camp Carefree and Victory...
Thanks to the generosity of Coloplast, a long term sponsor of SBA, we are pleased to announce the opportunity for you (and all in the Spina Bifida Community)...
Hi, I have a beautiful son with spina bifida, he has a VP that has already malfunctioned. He has had to endure 5 surgeries in his short life. But despite all...
Hi! Have you contacted the support group in your area? I am Susan and I have a 10 yr old daughter with SB. We live in the Winston-Salem area. The prolapsed...
Hi, I have a son that also has spina bifida, and a VP Shunt. He will be 5 in May of this year. He did have problems with his bowels also. His doctor prescribed...
hi all ,I have started a site http://www.outofstress.com which deals all aspects of stress and recovery.Our objective is to help peoplethose who are suffering...
Our pediatrician recomends against solids for for the first 6 months for all kids to reduce the likelihood of developing food alergies. (2 years for foods like...
Hi! We are new to the group. We are considering a move to Asheville, NC in the future and were wondering about resources for our 7yo daughter, who has SB...
<><><><><><><><><><><><><><><><><><><><><><> NATIONAL SURVEY OF THE SPINA BIFIDA COMMUNITY/ ENCUESTA DE ESPINA BÍFIDA - PARA ADULTOS Y FAMILIAS ... ...
NATIONAL SURVEY OF THE SPINA BIFIDA COMMUNITY The National Survey of the Spina Bifida Community is a biannual project of the Spina Bifida Association (SBA)....
Register at www.sbaa.org and SAVE $60 We're Extending the Low "Early Bird" Registration Rates for SBA's Annual Conference through JUNE 15! You can stretch your...
It's Not Too Late - Visit www.sbaa.org To Register for SBA's Annual Conference & SAVE June 25-28, 2006 in Atlanta, Georgia Register Now! Reduced Early Bird...
Research Articles Online - Online Resource Now Updated! SBA National Office has just updated the results of a quarterly scientific publication search on Spina ...
Hi Friends! We are new to Asheville, with our 7yo with Spina Bifida. Interested in meeting local families, especially children of similar age, as our 7yo "Ana"...
Hi, My son has SB, he is 7.5. He is starting to realize his limitations too and becoming more aware of how he can't play regular sports. We live south of ...
... limitations too and ... Behalf Of ... our ... Hi Al & Karen, Mari, I'm one of those guys that grew to adulthood with SB. I'll be 43 in December. I remember...
Hello all. I am new to the group. I have been researching for years people with SB getting and being pregnant. I went through infertility treatments with my...
Rita, There have been many women who were born with spina bifida and who have had successful pregnancies. I would say that your first step would be to find a...
Joanne Mackey
macke003@...
Aug 21, 2006 1:02 pm
247
I found out that my two year old had spina bifida when I was twenty three weeks pregnant. And because I'm a nurse and proactive I had my husband shipped off a...
CAP C isn't income dependant. My daughter has CAP C. You have to qualify on 3 of the 5 delays that are possible. This is where you have to really think...
They told me if we don't qualify SSI and because that we didn't qualify for that we didn't get medicaid,when I asked another way they said a waiver program,but...
... qualify for that we didn't get medicaid,when I asked another way they said a waiver program,but I've been turned down twice, and yes I think the first time...
I have found that it is nearly impossible to find the programs in NC. If you qualify for SSI (which is income based) then your child automatically gets...
Well we heard about the shriners, I tried calling the local shriners club but no one ever picks up their phone. But they only do orthopedic diagnosis help,...
my name is reann i am 25 and from wales (UK) i have 2 kids and pregnant with my 3, we have been told that she has spina bifida. she has the meningocele type...
Reann, Congratulations on your new little girl! You did not say if your other children were girls or boys. I am the mother of a child born with Spina Bifida...
Joanne Mackey
macke003@...
Oct 18, 2006 4:44 pm
256
SAVE THE DATES! Spina Bifida Association 2007 Annual Conference June 24 – 27, 2006 Louisville, Kentucky Conference Hotel The Galt House & Suites Reservation...
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