Hi, My name is Amy. I live in Gastonia N.C. I also have a son with Spina Bifida. He is 4 years old and is the joy in our lives. He also has a shunt. He's...
We are in the RTP area too. Do you have SB? My son, age 14 has SB. It would be nice to meet some success story type people. Actually anybody with SB would...
My family has been dealing with my brother being sentenced to prison. I have come to find out that more 2.5 million families are in the same situtation. Just...
Hi! I just wanted to introduce myself. I am a 33 year old lady who enjoys living life. I am from close to the Raleigh area in North Carolina. I look forward to...
SIBLING RESEARCH PROJECT Volunteers 11-18 years of age with a brother or sister with spina bifida and their parent are needed to take part in a study conducted...
SIBLING RESEARCH PROJECT Volunteers 11-18 years of age with a brother or sister with spina bifida and their parent are needed to take part in a study conducted...
I found this article in the Charlotte Observer today. There's a new company called Willow that will be bringing REAL work-from-home jobs in customer service to...
Yes, I have heard of both of these procedures. My daughter, now 9, had the bladder neck done when she was 3. It was done at the same time as a uretur ...
Has anyone heard of either of these surgeries? If you have can you please tell me a little about them. My son, Keith - 8yrs old, is scheduled to have the...
Hi, and welcome to NC! Not sure where you live in NC, but we are in the Charlotte area. Have used an approved contractor (named Vann Mann)for a van lift. We...
... No idea what it costs, my daughter is years away from driving. The major automakers (GM, Ford, Chrysler, Toyota, ??) offer $1000 rebates on retrofitting by...
In NC kids can get their driving permits at 15, right? Does anybody have experience with SB kids/adults driving? Garion has L3-L4 Meylo and walks with AFOs...
I will be out of the office starting 05/19/2005 and will not return until 05/22/2005. I will respond to your message when I return. If this is regarding Pompe...
Joanne Mackey
macke003@...
May 21, 2005 5:03 am
143
<><><><><><><><><><><><><><><> Early Bird Reduced SBA Conference Registration Extended Through JUNE 1 SBA'S ANNUAL CONFERENCE “Building Bridges to Advance...
Children With Spina Bifida is group intend for parents of children that have SB, expectant parents of child that will be born with SB, Adults with SB & to make...
Hello to All. I am a pediatric genetic counselor who is currently working with new parents of a baby with thoracic spina bifida and moderately severe ...
SBAA Annual Conference: June 26-29 Register Online at www.sbaa.org Make plans now to attend SBAA's Annual Conference, June 26-29 at the Hyatt Regency,...
GRETCHEN WESTER <cntrygrl23@...> wrote: The dr just gave us miralax for my son. We have been trying to control his bowel with prune juice, and it was...
The dr just gave us miralax for my son. We have been trying to control his bowel with prune juice, and it was working, but it seems to have started to loose...
ONLY 4 DAYS LEFT TO TAKE THE SURVEY!! <><><><><><><><><><><><><><><><><><><> Last Day of Survey - April 8 <><><><><><><><><><><><><><><><><><> The National...
We are new to the Triangle area and are looking forward to networking with other SB families. My son is 14 and has SB. Is anyone intersted in getting...
TO: ALL CAREER PLACEMENT OFFICERS, AHEAD COUNCELORS, JOB AND CAREER COUNSELORS, AND ALL ASSOCIATIONS AND SOCIETIES THAT WORK WITH PEOPLE WITH DISABILITIES. ...
*National Survey of the Spina Bifida Community* Take the survey in March! Visit: http://66.34.105.118/ <><><><><><><><><><><><><><><><><><> The National Survey...
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