Hi Nikki. My name is Susan and I am mom to three kids, the youngest has SB.
She is only 7 so not a good chat partner. If you aren't succcessful
finding a teen chat partner on this list, there is a chat for teens with SB
called SBTeens. I met the moderator a few years ago online then person to
person at a national conference. Her name is Carrie and she has occipital
menigocele and lipomyelomeningocele. I believe she is a freshman at the
Univ. of Minn. Anyway, the teen mailing list (it really is a mailing list
not really a real-time chat until you get to know some people then give out
the AIM, yahoo or MSN IDs out) is for teeens from 12 to young adults. I am
on a parents list and from that list, the teen list was born. Some of us
realized that our kids were growing up and needed interaction with otehr
kids dealing withthe same things. If you are interested, let me know and I
can get the URL to join. You may want to try a search at Yahoogroups.com.
I believe it is called SB-Teens. Once subscribed you will get email
messsages. If you answer, they will be sent to the group and it acts like a
chat. Also, you may want to look into your local support group meetings and
see if there are other teens that would like to do stuff with you.
Susan
-------Original Message-------
From: sbaofnc@yahoogroups.com
Date: Wednesday, January 29, 2003 9:04:06 PM
To: sbaofnc@yahoogroups.com
Subject: [SBAofNC] Im new here
Hi im Nikki, I'm 17 yrs old. and i just joined this bc i want to see
if there are many teens who are like me. If your a teen and u have
Spina Bifida, IM me on or e-mail me. my Sn on Yahoo who is Nicole2423
and on AOL AIM its Nicole10702, id love to hear from you. I live in
Charlotte, nc so i hope i can find someone i can talk to about what i
was born with. thanks alot! god bless!
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