Dear Friends,

My daughter Emily has a Chiari Malformation II. When she was 1 month
old the neurosurgeon wants to do a Cranial Decompression on her. We
didn't let him do it. When she was 4 yrs. old this neurosurgeon did
another MRI to Emily and he said that there is no change since she was
1 month old and he didn't suggest any decompression. Anyway, now that
Emily is 5 years old, our nurse that takes care of her thinks that may
be the chiari is the one that makes her fall sometimes, etc. Please
tell me more about chiari malformation's symptoms and effect to our
kids with SB. I don't want to make a decision that will not help my
child. She is walking without help, she doesn't have a shunt, she is in
Kindergarten, and she is a very happy child. Please...help me to know
more about this defect.

Thanks!
Cynthia