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Is this group active still? Moving by late summer to NC   Message List  
Reply | Forward Message #354 of 415 |
SBANC

The state chapter is still going, but slowly. The SBAA changed charters and
each "chapter" now has to have at least something like $50,000 to be a
member and considered a Chapter. SBANC doesn't have that much. So Kim
still is executive director but we aren't listed as part of the SBANC
anymore due to lack of funds. I had tried to do a support group in this
area but no one came. We tried Winston first, ten moved to Greensboro. We
never had but a couple of people. I am no longer on the SBANC Board but
Julie is listed as support group leader now. I think she may be VP as well,
but I am not sure as I am out of the loop. My name and number are still
listed on the SBANC website so I still get calls occasionally, mostly about
groups wanting to do reports or studies on kids with special needs for a
school project. Every now and then I get a parent calling. It'd be great
if we could have a place to talk about our used equipment and maybe loaning
it out to other SBANC members. We have kept JG's old wheelchair for now to
use in smaller spaces but before long, she won't fit in the old chair. I
know someone that was looking to re-home an EasyStand mobile stander.


Susan
mom to Jessica, 17, Christopher, 15 and Julia Grace, 12, SB L3, latex
allergic, full time wheeler
http://www.poochiepals.com/Jjaan.htm http://juliagrace.blessed4sure5.org/
http://www.kidsonwheels.us/
http://www.waisman.wisc.edu/~rowley/sb-kids/photos/julia_grace/



_____

From: sbaofnc@yahoogroups.com [mailto:sbaofnc@yahoogroups.com] On Behalf Of
Shelly Mendenhall
Sent: Wednesday, June 04, 2008 12:18 PM
To: sbaofnc@yahoogroups.com
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
to NC



Al, I think you're right.? If memory serves me correctly (and it doesn't
always) I think it was Thoms Rehabilitation in those parts that had an SB
clinic.? I do know that you can go online to the National Chapter and look
up all active state chapters.? I didn't see NC listed anymore which leads me
to believe the state association is defunct as well.? I honestly don't
know.? But even though I am in Fayetteville, if you folks decide to get
something going again and need some help doing some networking, don't
hesitate to ask.? I think I have a few contacts left that can help you out.

Shelly

?

-----Original Message-----
From: Alfred Lyons <AlfredLyons@ <mailto:AlfredLyons%40yahoo.com> yahoo.com>
To: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
Sent: Wed, 4 Jun 2008 11:14 am
Subject: Re: [SBAofNC] Re: Is this group active still? Moving by late summer
to NC

Dear Shelly,

I don't know if Mission Hospitals in Asheville has an
SB clinic. We have been going down to Shriners
Hospital in Greenville, SC.

AL.

--- Shelly Mendenhall <ShellyontheWeb@ <mailto:ShellyontheWeb%40aol.com>
aol.com> wrote:

> I was going to suggest the same thing that you folks
> in that area do some networking together and perhaps
> rebuild the Western NC chapter.? I'm sure the
> hospital in Asheville would allow you to advertise
> during their clinic (do they still have an SB
> clinic) that you are trying to rebuild the group.??
> It just takes interested parties!
>
> Shelly
>
>
> ?
>
>
> -----Original Message-----
> From: Alfred Lyons <AlfredLyons@ <mailto:AlfredLyons%40yahoo.com>
yahoo.com>
> To: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
> Sent: Wed, 4 Jun 2008 10:40 am
> Subject: Re: [SBAofNC] Re: Is this group active
> still? Moving by late summer to NC
>
>
>
>
>
>
> Dear Chris,
>
> We would be interested in being a part of a
> reconstituted Western NC Chapter, should the
> opportunity present. Keep in touch with us as you
> relocate!
>
> THanks, Al Lyons & Family in Asheville
>
> --- Chris <christine1970_ <mailto:christine1970_2000%40yahoo.com>
2000@...> wrote:
>
> > thank you all for the responses. I sure hope that
> > more people join this that live in the western
> part
> > of the state. I would like to connect with some
> > adults with SB. I love it that there are parents
> > with little ones on here that live in the Western
> > part of the state. I hope that maybe I can be an
> > encouragement to you.
> >
> > Christine
> >
> >
> > Cast all your cares on him because he cares for
> you
> > . 1st Peter 5:7
> >
> >
> >
> >
> > ----- Original Message ----
> > From: Lisa Pubantz <lpubantz77@triad. <mailto:lpubantz77%40triad.rr.com>
rr.com>
> > To: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
> > Sent: Tuesday, June 3, 2008 4:55:22 PM
> > Subject: Re: [SBAofNC] Re: Is this group active
> > still? Moving by late summer to NC
> >
> >
> > Christine,
> > I'm 31 years old, I have SB, and I live in
> > Winston-Salem NC in a HUD-assisted apartment for
> > mobility impaired people who have low income. I've
> > been living in NC all my life and I love it! Hope
> > you enjoy it here as much as I do!
> >
> > Lisa Pubantz
> > ----- Original Message -----
> > From: cynthia teresa
> > To: sbaofnc@yahoogroups .com
> > Sent: Tuesday, June 03, 2008 5:34 PM
> > Subject: Re: [SBAofNC] Re: Is this group active
> > still? Moving by late summer to NC
> >
> > I live in Monroe, NC. I have a 5 yr. old girl with
> > SB. I think you will like it here in NC Christine.
> > I've been here for 6 years now, and I love it!
> >
> > Cynthia
> >
> > lost_star_vega <no_reply@yahoogroup s.com> wrote:
> > I'm in the Charlotte area. I have a 3 yr old girl
> > with SB. I have lived
> > in NC my whole life, it is a very nice place. I
> hope
> > your move goes
> > well.
> >
> > ~Jamie
> >
> > --- In sbaofnc@yahoogroups .com, "christine"
> > <christine1970_ 2000@...>
> > wrote:
> > >
> > > I am moving to the Rutherfordton area. I had
> > written the group back in
> > > Feb of this year I think saying that I would be
> > moving to NC. I would
> > > like very much to meet up with some adults with
> SB
> > if there are any on
> > > this list. I am 37 years old. Been living in
> > Budapest Hungary for the
> > > last 8yrs. Will be in PA for the summer but
> should
> > be in the
> > > Rutherfordton area by late summer. I see there
> is
> > a group from
> > > Asheville. Are their any adults with SB involved
> > in the group? If not
> > > I would be more than happy to be a mentor or
> > something to any one that
> > > would like one. Or just be a friend to someone
> > >
> > > Blessings
> > > Christine
> > >
> >
> > [Non-text portions of this message have been
> > removed]
> >
> > [Non-text portions of this message have been
> > removed]
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been
> > removed]
> >
> >
> > ------------------------------------
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
>
>
>
>
>
>
> [Non-text portions of this message have been
> removed]
>
>
> ------------------------------------
>
> Yahoo! Groups Links
>
>
>
>
>

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]




Wed Jun 4, 2008 5:05 pm

susiecol1
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Forward
Message #354 of 415 |
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I am moving to the Rutherfordton area. I had written the group back in Feb of this year I think saying that I would be moving to NC. I would like very much to...
christine
christine197...
Offline Send Email
Jun 2, 2008
3:10 pm

Dear Christine, We have a 9yo Daughter with SB in Asheville. We moved here almost 2 years ago, have not met anyone else with SB here yet, but I know there are...
Alfred Lyons
alfredlyons
Offline Send Email
Jun 2, 2008
9:00 pm

I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived in NC my whole life, it is a very nice place. I hope your move goes well. ~Jamie...
lost_star_vega
Offline
Jun 3, 2008
12:04 am

I'm in Fayetteville which is about 3 hours from Charlotte.?? I'm not sure what is going on with the state association anymore or if the Charlotte or Asheville...
Shelly Mendenhall
sbaofnc
Offline Send Email
Jun 3, 2008
12:19 am

Shelly, Saw your posting and was glad to hear you are doing ok but sad to hear that you are having health problems! How's your Mom? Let her know that I said ...
Joanne Mackey
macke003@...
Send Email
Jun 3, 2008
2:50 pm

Hi Joanne, nice to hear from you.? Yeah, I've had two shunt revisions in the last four years after going 22 years without having one.? I also have lymphedema...
Shelly Mendenhall
sbaofnc
Offline Send Email
Jun 3, 2008
5:51 pm

I live in Monroe, NC. I have a 5 yr. old girl with SB. I think you will like it here in NC Christine. I've been here for 6 years now, and I love it! Cynthia ...
cynthia teresa
cteresausa2003
Offline Send Email
Jun 3, 2008
9:34 pm

Christine, I'm 31 years old, I have SB, and I live in Winston-Salem NC in a HUD-assisted apartment for mobility impaired people who have low income. I've...
Lisa Pubantz
stranger478
Online Now Send Email
Jun 3, 2008
9:56 pm

Lisa, that is so cool. How do you like it? I have family in Winston and Clemmons.?? I'm in Fayetteville, quite a bit older than you, I will be 40 in January.?...
Shelly Mendenhall
sbaofnc
Offline Send Email
Jun 3, 2008
10:13 pm

Hi Shelly...not sure if you remember me from years ago. I was on the Board way back. I also met Joanne Mackey at one time. Julia Grace is now 12. We live...
susan collins
susiecol1
Offline Send Email
Jun 4, 2008
1:15 am

Susan, yes I do remember you.? You were phasing in on the board as I was leaving.? Yes, I had a shunt last from age 13 to age 34.?? Then after that I had two...
Shelly Mendenhall
sbaofnc
Offline Send Email
Jun 4, 2008
1:22 am

Hi Shelly, I used to live in Clemmons. My parents live there and I used to live with them until I moved into my apartment in Feb. 2007. I am fortunate that...
Lisa Pubantz
stranger478
Online Now Send Email
Jun 4, 2008
6:22 am

thank you all for the responses. I sure hope that more people join this that live in the western part of the state. I would like to connect with some adults...
Chris
christine197...
Offline Send Email
Jun 4, 2008
1:00 pm

Dear Chris, We would be interested in being a part of a reconstituted Western NC Chapter, should the opportunity present. Keep in touch with us as you ...
Alfred Lyons
alfredlyons
Offline Send Email
Jun 4, 2008
2:40 pm

I was going to suggest the same thing that you folks in that area do some networking together and perhaps rebuild the Western NC chapter.? I'm sure the...
Shelly Mendenhall
sbaofnc
Offline Send Email
Jun 4, 2008
2:46 pm

Dear Shelly, I don't know if Mission Hospitals in Asheville has an SB clinic. We have been going down to Shriners Hospital in Greenville, SC. AL....
Alfred Lyons
alfredlyons
Offline Send Email
Jun 4, 2008
3:14 pm

Al, I think you're right.? If memory serves me correctly (and it doesn't always) I think it was Thoms Rehabilitation in those parts that had an SB clinic.? I...
Shelly Mendenhall
sbaofnc
Offline Send Email
Jun 4, 2008
4:18 pm

Hi Shelly, I am not so concerned about the clinic, as we get good care from Shriners. But, I would really like to get Ana around some other kids with SB, as...
Alfred Lyons
alfredlyons
Offline Send Email
Jun 4, 2008
4:35 pm

Al, the reason I mentioned the clinic is not for you to change your medical care but to see if they would let you promote a possible new support group for your...
Shelly Mendenhall
sbaofnc
Offline Send Email
Jun 4, 2008
5:21 pm

Al, Camp Carefree has a week set aside for children with Spina Bifida which is great fun and terrific peer interaction. And for the young adults out there,...
Joanne Mackey
macke003@...
Send Email
Jun 4, 2008
5:27 pm

Hi Joanne, We are working on the Camp Carefree application right now. Dr. Sandlin recommended it. He comes over to Asheville now and then and we see him about...
Alfred Lyons
alfredlyons
Offline Send Email
Jun 4, 2008
5:36 pm

GREAT, I know both you and your daughter will be glad! It's a wonderful place! Joanne Joanne Mackey, RN, MSN, CPNP Duke University Medical Center Division of...
Joanne Mackey
macke003@...
Send Email
Jun 4, 2008
5:43 pm

The state chapter is still going, but slowly. The SBAA changed charters and each "chapter" now has to have at least something like $50,000 to be a member and...
susan collins
susiecol1
Offline Send Email
Jun 4, 2008
5:06 pm

Alfred I would very much like to part of a group. Please keep me posted. I have added you to IM yahoo if you have it feel free to add me too. Are you a adult...
Chris
christine197...
Offline Send Email
Jun 4, 2008
2:49 pm
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