Shelly,
Saw your posting and was glad to hear you are doing ok but sad to hear that
you are having health problems! How's your Mom? Let her know that I said
Hi! I am still at Duke although as you know not with the SB clinic
anymore. I do hear from some of the now adults every now and then. Chris
is doing well, working in Chapel Hill in the NC Office of Disability and
Health. He has a house in Durham that he has made fully accessible.
My other kids are all over the place - but now 4 of the 6 live in NC! I
have 5 grandchildren and 2 more on the way!
Give my best to your family,
Joanne

Joanne Mackey, RN, MSN, CPNP
Duke University Medical Center
Division of Medical Genetics
(919)681-1945

"The information contained in this electronic mail transmission contains
confidential information belonging to the sender that is legally
privileged.
This information is intended only for the use of the individual or entity
named
above. The authorized recipient of this information is prohibited from
disseminating, distributing, or copying this information. If you have
received
this information in error please delete this message, any attachments, and
all
copies and backups from your computer and notify the sender immediately by
replying to this message or call 919.668-1100 or 1.800.MED-DUKE."



Shelly Mendenhall
<ShellyontheWeb@a
ol.com> To
Sent by: sbaofnc@yahoogroups.com
sbaofnc@yahoogrou cc
ps.com
Subject
Re: [SBAofNC] Re: Is this group
06/02/2008 08:19 active still? Moving by late
PM summer to NC


Please respond to
sbaofnc@yahoogrou
ps.com











I'm in Fayetteville which is about 3 hours from Charlotte.?? I'm not sure what
is
going on with the state association anymore or if the Charlotte or Asheville
support groups are still active.? I am the former Executive Director of the
state
association, but resigned due to family and health reasons in 2000.?? We used
to
have a 1-800 # with the state office and I turned it over to the gal that
replaced
me in 2000 who lives in Iron Station outside of Charlotte. I'm not sure if they
still have it or if the number is still active even but here it is, you can
call
it and see if it's active and see what if anything is going on.? I know our
Fayetteville group which my Mom was president of is defunct due to lack of
participation, as well as ongoing health issues with me.? But here's the state
#
call it and see if you get even the recording anymore 1-800-847-2262.?? If not,
I
don't know where to lead you because I've been out of the loop the last 8 years
or
so and I don't even attend the comprehensive SB clinics anymore......... my
lifestyle is such that it's more productive for me to go to the separate
urology
and neurosurgery clinics at Duke.? I do know that the gentleman that was
leading
the Asheville group when I resigned from the state board of directors, passed
away
about 5 years ago.? I'm not sure the group got back on it's feet afterwards.

Hope that helps!!?

Shelly Mendenhall

?

-----Original Message-----
From: lost_star_vega <no_reply@yahoogroups.com>
To: sbaofnc@yahoogroups.com
Sent: Mon, 2 Jun 2008 8:04 pm
Subject: [SBAofNC] Re: Is this group active still? Moving by late summer to NC

I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived
in NC my whole life, it is a very nice place. I hope your move goes
well.

~Jamie

--- In sbaofnc@yahoogroups.com, "christine" <christine1970_2000@...>
wrote:
>
> I am moving to the Rutherfordton area. I had written the group back in
> Feb of this year I think saying that I would be moving to NC. I would
> like very much to meet up with some adults with SB if there are any on
> this list. I am 37 years old. Been living in Budapest Hungary for the
> last 8yrs. Will be in PA for the summer but should be in the
> Rutherfordton area by late summer. I see there is a group from
> Asheville. Are their any adults with SB involved in the group? If not
> I would be more than happy to be a mentor or something to any one that
> would like one. Or just be a friend to someone
>
> Blessings
> Christine
>

[Non-text portions of this message have been removed]





[Non-text portions of this message have been removed]