I am moving to the Rutherfordton area. I had written the group back in
Feb of this year I think saying that I would be moving to NC. I would
like very much to meet up with some adults with SB if there are any on
this list. I am 37 years old. Been living in Budapest Hungary for the
last 8yrs. Will be in PA for the summer but should be in the
Rutherfordton area by late summer. I see there is a group from
Asheville. Are their any adults with SB involved in the group? If not
I would be more than happy to be a mentor or something to any one that
would like one. Or just be a friend to someone
I am moving to the Rutherfordton area. I had written the group back in Feb of this year I think saying that I would be moving to NC. I would like very much to...
Dear Christine, We have a 9yo Daughter with SB in Asheville. We moved here almost 2 years ago, have not met anyone else with SB here yet, but I know there are...
I'm in the Charlotte area. I have a 3 yr old girl with SB. I have lived in NC my whole life, it is a very nice place. I hope your move goes well. ~Jamie...
I'm in Fayetteville which is about 3 hours from Charlotte.?? I'm not sure what is going on with the state association anymore or if the Charlotte or Asheville...
Shelly, Saw your posting and was glad to hear you are doing ok but sad to hear that you are having health problems! How's your Mom? Let her know that I said ...
Joanne Mackey
macke003@...
Jun 3, 2008 2:50 pm
Hi Joanne, nice to hear from you.? Yeah, I've had two shunt revisions in the last four years after going 22 years without having one.? I also have lymphedema...
I live in Monroe, NC. I have a 5 yr. old girl with SB. I think you will like it here in NC Christine. I've been here for 6 years now, and I love it! Cynthia ...
Christine, I'm 31 years old, I have SB, and I live in Winston-Salem NC in a HUD-assisted apartment for mobility impaired people who have low income. I've...
Lisa, that is so cool. How do you like it? I have family in Winston and Clemmons.?? I'm in Fayetteville, quite a bit older than you, I will be 40 in January.?...
Hi Shelly...not sure if you remember me from years ago. I was on the Board way back. I also met Joanne Mackey at one time. Julia Grace is now 12. We live...
Susan, yes I do remember you.? You were phasing in on the board as I was leaving.? Yes, I had a shunt last from age 13 to age 34.?? Then after that I had two...
Hi Shelly, I used to live in Clemmons. My parents live there and I used to live with them until I moved into my apartment in Feb. 2007. I am fortunate that...
thank you all for the responses. I sure hope that more people join this that live in the western part of the state. I would like to connect with some adults...
Dear Chris, We would be interested in being a part of a reconstituted Western NC Chapter, should the opportunity present. Keep in touch with us as you ...
I was going to suggest the same thing that you folks in that area do some networking together and perhaps rebuild the Western NC chapter.? I'm sure the...
Al, I think you're right.? If memory serves me correctly (and it doesn't always) I think it was Thoms Rehabilitation in those parts that had an SB clinic.? I...
Hi Shelly, I am not so concerned about the clinic, as we get good care from Shriners. But, I would really like to get Ana around some other kids with SB, as...
Al, the reason I mentioned the clinic is not for you to change your medical care but to see if they would let you promote a possible new support group for your...
Al, Camp Carefree has a week set aside for children with Spina Bifida which is great fun and terrific peer interaction. And for the young adults out there,...
Joanne Mackey
macke003@...
Jun 4, 2008 5:27 pm
Hi Joanne, We are working on the Camp Carefree application right now. Dr. Sandlin recommended it. He comes over to Asheville now and then and we see him about...
GREAT, I know both you and your daughter will be glad! It's a wonderful place! Joanne Joanne Mackey, RN, MSN, CPNP Duke University Medical Center Division of...
Joanne Mackey
macke003@...
Jun 4, 2008 5:43 pm
The state chapter is still going, but slowly. The SBAA changed charters and each "chapter" now has to have at least something like $50,000 to be a member and...
Alfred I would very much like to part of a group. Please keep me posted. I have added you to IM yahoo if you have it feel free to add me too. Are you a adult...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
Online Now 
Send Email
