Hi Kathy,

We are in Asheville. Our 9yo daughter "Ana" has SB. We
cath for urine and she has a MACE procedure for bowel.
She walks with crutches and braces, but uses a
wheelchair for longer distances. She is very smart and
is mainstreamed in 3rd grade.

We have not had any difficulty (yet) with the other
kids. They have not noticed yet that Ana wears
pull-up's. She had one 'accident' at school last year,
but the teacher and aid handled the situation quickly
and were able to get her out of the room before the
other students knew what was going on. Of course, with
the wheelchair and crutches and all of that, the kids
already know Ana is 'different'.

I would suggest talking with the teacher about your
concerns and asking for feedback about how the
socialization with other kids is going. I know some
parents have prepared little 5 minute presentations
where they go to the class and 'teach' the classmates
about SB. In our case, the teachers suggested that it
wasn't necessary, as there had not been any problems,
and they did not want to emphasize Ana's differences.

Last, but not least, I think we need to teach our kids
to be thick-skinned and encourage their self-esteem
and resilience. I am able-bodied, but when I was a kid
they picked on me for acne and being fat, so if it is
not the SB, the kids would find something else. This
is what kids tend to do.

Regarding the list, it has been my experience that it
does not get much traffic, regardless of the time of
year. Please feel free to keep in touch, though.

Al & Karen and family in Asheville


--- XChpmunkx <xchpmunkx@...> wrote:

> Hi, I'm Kathy - I know boards can get quiet around
> the holidays, just
> wondering if this board is still active?
>
> My godson Christopher has SB Occulta, he's 8 and was
> just diagnosed
> this past summer. I am still learning much about
> this and came upon
> this site.
>
> His teachers at school are not helpful with the
> regimented bathroom
> trips. I had remembered that my eldest son had a 504
> plan in school
> for his diabetes, and found on the SBA pre-made 504
> forms - YEAH!
> This will help his family.
>
> How would SB be best explained to my little one who
> is 7 and is best
> friends with with Christopher. So far he has not
> been aware of any BM
> accidents, he has never commented on the fact that
> Christopher now
> wears pull ups. (They have been friends since my
> son was born, the
> incontinence didn't become a problem until last
> school year).
>
> Christopher is sure that when his friends find out
> that he has
> accidents and can't control it that they will not
> want to be friends
> anymore. I'm sure that is a normal fear given the
> age and situation.
>
> Thanks for any info, Kathy
>
>
>
>
> Yahoo! Groups Links
>
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>