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sbaofnc · SBANC Talk: Spina Bifida Association of NC Members
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Reply | Forward Message #328 of 415 |
Hi, I'm Kathy - I know boards can get quiet around the holidays, just
wondering if this board is still active?

My godson Christopher has SB Occulta, he's 8 and was just diagnosed
this past summer. I am still learning much about this and came upon
this site.

His teachers at school are not helpful with the regimented bathroom
trips. I had remembered that my eldest son had a 504 plan in school
for his diabetes, and found on the SBA pre-made 504 forms - YEAH!
This will help his family.

How would SB be best explained to my little one who is 7 and is best
friends with with Christopher. So far he has not been aware of any BM
accidents, he has never commented on the fact that Christopher now
wears pull ups. (They have been friends since my son was born, the
incontinence didn't become a problem until last school year).

Christopher is sure that when his friends find out that he has
accidents and can't control it that they will not want to be friends
anymore. I'm sure that is a normal fear given the age and situation.

Thanks for any info, Kathy




Thu Jan 3, 2008 2:53 am

XChpmunkx
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Message #328 of 415 |
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Hi, I'm Kathy - I know boards can get quiet around the holidays, just wondering if this board is still active? My godson Christopher has SB Occulta, he's 8 and...
XChpmunkx
Offline Send Email
Jan 3, 2008
2:53 am

Hi Kathy, We are in Asheville. Our 9yo daughter "Ana" has SB. We cath for urine and she has a MACE procedure for bowel. She walks with crutches and braces, but...
Alfred Lyons
alfredlyons
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Jan 3, 2008
4:18 pm
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