Sherry,



My son just turned 11yrs old. We used to do that also, but it was very
awkward doing it that way. He had what is called a MACE procedure done
about a yr and half ago. Basically, (if I remember correctly) they pull the
colon to the skin and leave a hole for a catheter to be inserted in order to
flush him out. Thankfully it worked out so the hole is in his belly button,
so no additional scaring or extra holes. So when it is time to flush out,
he inserts the catheter into his belly button and I will assist him in
pushing the water mixed with table salt into the catheter. Occasionally,
his 6yr old brother will help with the flushing out. In the beginning we
flushed out every day. But once his body was on a routine we started just
every other day. It was a great help, but occasionally he will have an
accident. We have to be careful what he eats. Also in the winter, when all
the different stomach bugs are going around we may flush out every day for a
few days to make sure he doesn't have an accident. If you would like more
details please let me know and I can get them. Any more questions please
let me know.



Keith, my son, has 2 younger brothers and a younger sister, none of which
have SB. If anyone would every like to get together please let me know.
Kevin@...

We live in Nashville, NC about 40mins east of Raleigh of HWY 64.



Kevin Jones



From: sbaofnc@yahoogroups.com [mailto:sbaofnc@yahoogroups.com] On Behalf Of
Sherry Thurman
Sent: Monday, July 30, 2007 5:20 PM
To: sbaofnc@yahoogroups.com
Subject: [SBAofNC] Bowel Program



My son's doctor just suggested that we use a rectal syringe to clean out our
son. He suggested using tap water and table salt. Has anyone else used this
method and was it successful? Also, once you put the water solution in how
long before did the bowel movement take place. I want to make sure I know
what I am doing BEFORE I do it! I don't want to freak him out and I want him
to be prepare.

Thanks,
Sherry





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