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sbaofnc · SBANC Talk: Spina Bifida Association of NC Members
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Reply | Forward Message #310 of 415 |
Well the time is near my son John will be going to Kindergarten! The good thing
is I will be teaching at the same school that he will be at. I need advice! He
is not cathed and he wears diapers / goodnites. I have been working on a bowel
program and he has been consistent on most days. Do you allow him to go to the
restroom with the class and manage on his own and if he needs to be changed he
can come and get me or do I just set a schedule for him to use the private
bathroom and I meet him there? What have others done who have children that are
not cathed yet? I don't want him to be dependent on me, but I want him to feel
comfortable as he starts school. Background info: He walks with braces but has
good balance and can pull down clothes and pull them up etc. He had not been
telling be when he has to use the bathroom or when he has a bowel movement. I
get upset because I think he plays me because he may not be able to feel it, but
he should be able to smell! Has other parents experienced this and if so when
did your child tell you they were wet or had a bowel movement? I feel so
fortunate to be able to be at the same school to ensure he is well taken care of
but I don't want to hold him back. I have never treated him differently! Also,
do any of you have a toileting plan or a medical plan in place for your child?
If so could you share?

Sherry
Mom to John will be 5 on 7/28. Lesion S1, walking, running, not cathed, shunt.
Leann 9 bright and loves her brother, also mothers him!

[Non-text portions of this message have been removed]




Mon Jul 2, 2007 2:42 pm

sherryt2005
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Message #310 of 415 |
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Well the time is near my son John will be going to Kindergarten! The good thing is I will be teaching at the same school that he will be at. I need advice!...
Sherry Thurman
sherryt2005
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Jul 2, 2007
11:30 am

hi, Sherry, my name is Timothy. I bet it's driving you mad having to worry about this situation. I will be 23 this thursday, and I also have Spina Bifida (I...
timothy
shadxcruz
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Jul 2, 2007
2:17 pm

Timothy, Thank you for your response! It helps to hear from someone who has lived it. So do you think I should let him try going to the bathroom on his own?...
Sherry Thurman
sherryt2005
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Jul 2, 2007
3:16 pm

well, the nurse helped me a little bit. and wearing underwear over it is a must. just let him do his thing, but if he needs help, tell him it's okay if the...
shadxcruz@...
shadxcruz
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Jul 3, 2007
2:11 am

Sherry I am in the same situation you are. I'm just found out about your e-mail and I would like to know if you already got some suggestions about your...
yacquevicent
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Dec 4, 2007
6:58 pm

Yacqueline, I can tell you what I chose to do, whether it is best or not, but it works for us. I chose to put John under a 504 plan with only one...
Sherry Thurman
sherryt2005
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Dec 6, 2007
1:12 am
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