My daughter is 3 months old. She is having chiari II symptoms and
the neurosurgeons take a conservative approach to the decompression,
but they are saying it looks like we will need to go ahead and do
this. her chiari is around level c3 or c4. She is aspirating her
food, stridor is more apparent and more fequent. her vocal cords
were checked a few weeks ago and they were normal, ENT will look at
them MOnday to see if there is a change and a sleep study has also
been ordered.
I haven't done nearly enough research on this, but it is also hard
to find info about chiari II. If anyone has had any experience with
this and has some tips/advice I'd appreciate the help.
Thank you,
Marie