We live in Whitsett, NC. We now have a daughter who was born Jan. 9 with Spina
Bifida. Because we knew through prenatal testing, we were referred to Duke. We
are learning the process of who we talk to and also how to receive services.
Duke has been excellent in helping us understand what we need to do to help care
for our little girl. I have learned that Duke has a myleo clinic once a month
where we will continue to return for follow up visits with the team of drs. that
are following her. So far we know we need to cath every 6 hrs. It is my
understanding that her nerves are still in shock from her surgery to close her
back so we really won't know what nerves have been affected until later on. She
also had a shunt surgery this past Tuesday. She is doing wonderful and we are
expected to be discharged from the hospital today if all continues to go well.
Feel free to contact me as well!! I'm also a prek teacher in Guilford county
schools and am somewhat familiar with preschool exceptional children's
department.
Marie


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