Well we heard about the shriners, I tried calling the local shriners
club but no one ever picks up their phone. But they only do
orthopedic diagnosis help, they helped my friends daughter with her
knee surgery. My son is cognitivly at his age, so I don't know if
any mentally handicapped agencies can help out. I really think We
should get CAP C this time around. I've never heard of TRiad
families, I'm down on the coast, alot of the resources avialable are
inland.

--- In sbaofnc@yahoogroups.com, "Susan Collins" <susancollins@...>
wrote:
>
> I have found that it is nearly impossible to find the programs in
NC. If
> you qualify for SSI (which is income based) then your child
automatically
> gets Medicaid. The waiver program isn't income based as long as
the child
> doesn't have a trust fund or something in his/her name. There are
two
> waivers in NC, one called CAP-C and the other CAP MR/DD. CAP-C is
for kids
> that are more medically involved than mentally, from my
understanding. Have
> you called the ARC in your county? ARC stands for Association for
retarded
> Citizens. they may be able to point you in the right direction.
Even if
> you are turned down, keep applying or appeal because if you are
accepted,
> you will get back coverage to the original date of application. I
used to
> have the sites saved to go to in NC, but I lost them all when my
hard drive
> failed. Try these...
>
http://www.workworld.org/wwwebhelp/ssi_state_supplement_north_carolin
a.htm
> http://zeus.dhhs.state.nc.us/olm/manuals/dhs/pol-
40/man/medicaid_waiver_reqs
> _apps1.htm
> http://www.cms.hhs.gov/home/medicaid.asp
>
> Also, you may want to contact Shriner's Hospital. The closest to
me is in
> Greenville, SC. A lot of times they can provide transportation to
and from
> appointments if that is a problem for you.
>
> If you still can't find help, let me know and I can get in touch
with a lady
> in Wisconsin that has links to all the waiver programs. Oh, have
you tried
> calling Triad First in Families?
>
> Susan
>
> _____
>
> From: sbaofnc@yahoogroups.com [mailto:sbaofnc@yahoogroups.com] On
Behalf Of
> Kellie Moors
> Sent: Saturday, August 26, 2006 3:04 PM
> To: sbaofnc@yahoogroups.com
> Subject: RE: [SBAofNC] Declined!!
>
>
>
> They told me if we don't qualify SSI and because that we didn't
qualify for
> that we didn't get medicaid,when I asked another way they said a
waiver
> program,but I've been turned down twice, and yes I think the first
time it
> was because he was so young, but this second time between the
program
> protocol and paper and the social worker not returning calls we
got turned
> down agian for MR/DD. Cognitive is the only area he isn't delayed
in, maybe
> fine motor too. It's not like I want money or food stamps, but we
may be
> losing my husbands military insurance soon, which hardly pays
visits, but
> it's better then nothing. And I was told by the employment
comission that I
> could have made trouble for my employer, but I was still seven
months
> pregnant at the time and had other things on my mind at the time,
and after
> my focus is on my family. I still run into these people and it
wouldn't be
> worth it, I would rather get the help we really need, but cannot
get.
>
> Susan Collins <susancollins@ <mailto:susancollins%40bellsouth.net>
> bellsouth.net> wrote: CAP C isn't income dependant. My daughter
has CAP C.
> You have to qualify
> on 3 of the 5 delays that are possible. This is where you have to
really
> think about where your child is developmentally. I think the areas
where
> delays need to be include behavioral, gross motor, fine motor,
self help and
> ...maybe emotionally (or is that the same as behavioral??) or
could it be
> speech? If it is speech, he should qualify under gross motor,
speech and my
> guess fine motor since a lot of kids with SB struggle with fine
motor
> issues. Self help will be hard to get at his age as many 2 year
olds are
> totally dependent on their parents. Don't you have grounds to sue
your
> employer for firing you due to a family medical leave? Even if you
get on
> CAP MR/DD in many counties there are waiting lists that are years
long.
> Also look into Children's special health services, or is it Special
> Children's Health Services? What area of NC are you in?
> Susan
>
> _____
>
> From: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
> [mailto:sbaofnc@yahoogroups <mailto:sbaofnc%
40yahoogroups.com> .com] On
> Behalf Of
> kellie_moors
> Sent: Friday, August 25, 2006 7:27 PM
> To: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
> Subject: [SBAofNC] Declined!!
>
> I found out that my two year old had spina bifida when I was
twenty
> three weeks pregnant. And because I'm a nurse and proactive I had
my
> husband shipped off a mountian in Afghanistan and we traveled 1000
> miles for the MOMs study. Well we were declined because the MRI
said
> he didn't have any nerve in his meningocele so he wouldn't benefit
> from the surgery. Then my employer, declined to have me restart
work
> because I had been gone 5 weeks. My husband got out of the
military
> on disablity and we have since been declined by SSI two times, I
> cannot get the SBA to call back, Medicaid was approved until he
turned
> one year. And because my husband doesn't work we have been
struggling
> with all the therapy appointments and my husband's own diagnosis.
And
> my other son is suffering 'what about me's. CAP MR/DD just turned
us
> down after we applied in may and their slots closed in june. But
the
> mental health case worker dropped the ball and never called. I
called
> a lawyer, but they aren't accepting new clients. I have taken all
> tuesdays off of work for PT and speech but really cannot afford
it.
> WHAT NEXT? What do you apply for when you've been turned down by
> everything? I'm going to try for CAPs C but I've been told we make
to
> much, I don't see how when I just making bills.
>
> [Non-text portions of this message have been removed]
>
>
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