I have found that it is nearly impossible to find the programs in NC. If
you qualify for SSI (which is income based) then your child automatically
gets Medicaid. The waiver program isn't income based as long as the child
doesn't have a trust fund or something in his/her name. There are two
waivers in NC, one called CAP-C and the other CAP MR/DD. CAP-C is for kids
that are more medically involved than mentally, from my understanding. Have
you called the ARC in your county? ARC stands for Association for retarded
Citizens. they may be able to point you in the right direction. Even if
you are turned down, keep applying or appeal because if you are accepted,
you will get back coverage to the original date of application. I used to
have the sites saved to go to in NC, but I lost them all when my hard drive
failed. Try these...
http://www.workworld.org/wwwebhelp/ssi_state_supplement_north_carolina.htm
http://zeus.dhhs.state.nc.us/olm/manuals/dhs/pol-40/man/medicaid_waiver_reqs
_apps1.htm
http://www.cms.hhs.gov/home/medicaid.asp

Also, you may want to contact Shriner's Hospital. The closest to me is in
Greenville, SC. A lot of times they can provide transportation to and from
appointments if that is a problem for you.

If you still can't find help, let me know and I can get in touch with a lady
in Wisconsin that has links to all the waiver programs. Oh, have you tried
calling Triad First in Families?

Susan

_____

From: sbaofnc@yahoogroups.com [mailto:sbaofnc@yahoogroups.com] On Behalf Of
Kellie Moors
Sent: Saturday, August 26, 2006 3:04 PM
To: sbaofnc@yahoogroups.com
Subject: RE: [SBAofNC] Declined!!



They told me if we don't qualify SSI and because that we didn't qualify for
that we didn't get medicaid,when I asked another way they said a waiver
program,but I've been turned down twice, and yes I think the first time it
was because he was so young, but this second time between the program
protocol and paper and the social worker not returning calls we got turned
down agian for MR/DD. Cognitive is the only area he isn't delayed in, maybe
fine motor too. It's not like I want money or food stamps, but we may be
losing my husbands military insurance soon, which hardly pays visits, but
it's better then nothing. And I was told by the employment comission that I
could have made trouble for my employer, but I was still seven months
pregnant at the time and had other things on my mind at the time, and after
my focus is on my family. I still run into these people and it wouldn't be
worth it, I would rather get the help we really need, but cannot get.

Susan Collins <susancollins@ <mailto:susancollins%40bellsouth.net>
bellsouth.net> wrote: CAP C isn't income dependant. My daughter has CAP C.
You have to qualify
on 3 of the 5 delays that are possible. This is where you have to really
think about where your child is developmentally. I think the areas where
delays need to be include behavioral, gross motor, fine motor, self help and
...maybe emotionally (or is that the same as behavioral??) or could it be
speech? If it is speech, he should qualify under gross motor, speech and my
guess fine motor since a lot of kids with SB struggle with fine motor
issues. Self help will be hard to get at his age as many 2 year olds are
totally dependent on their parents. Don't you have grounds to sue your
employer for firing you due to a family medical leave? Even if you get on
CAP MR/DD in many counties there are waiting lists that are years long.
Also look into Children's special health services, or is it Special
Children's Health Services? What area of NC are you in?
Susan

_____

From: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
[mailto:sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com] On
Behalf Of
kellie_moors
Sent: Friday, August 25, 2006 7:27 PM
To: sbaofnc@yahoogroups <mailto:sbaofnc%40yahoogroups.com> .com
Subject: [SBAofNC] Declined!!

I found out that my two year old had spina bifida when I was twenty
three weeks pregnant. And because I'm a nurse and proactive I had my
husband shipped off a mountian in Afghanistan and we traveled 1000
miles for the MOMs study. Well we were declined because the MRI said
he didn't have any nerve in his meningocele so he wouldn't benefit
from the surgery. Then my employer, declined to have me restart work
because I had been gone 5 weeks. My husband got out of the military
on disablity and we have since been declined by SSI two times, I
cannot get the SBA to call back, Medicaid was approved until he turned
one year. And because my husband doesn't work we have been struggling
with all the therapy appointments and my husband's own diagnosis. And
my other son is suffering 'what about me's. CAP MR/DD just turned us
down after we applied in may and their slots closed in june. But the
mental health case worker dropped the ball and never called. I called
a lawyer, but they aren't accepting new clients. I have taken all
tuesdays off of work for PT and speech but really cannot afford it.
WHAT NEXT? What do you apply for when you've been turned down by
everything? I'm going to try for CAPs C but I've been told we make to
much, I don't see how when I just making bills.

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