--- In sbaofnc@yahoogroups.com, Kellie Moors <kellie_moors@...>
wrote:
>
> They told me if we don't qualify SSI and because that we didn't
qualify for that we didn't get medicaid,when I asked another way
they said a waiver program,but I've been turned down twice, and yes
I think the first time it was because he was so young, but this
second time between the program protocol and paper and the social
worker not returning calls we got turned down agian for MR/DD.
Cognitive is the only area he isn't delayed in, maybe fine motor
too. It's not like I want money or food stamps, but we may be
losing my husbands military insurance soon, which hardly pays
visits, but it's better then nothing. And I was told by the
employment comission that I could have made trouble for my employer,
but I was still seven months pregnant at the time and had other
things on my mind at the time, and after my focus is on my family.
I still run into these people and it wouldn't be worth it, I would
rather get the help we really need, but cannot get.
>
> Susan Collins <susancollins@...> wrote: CAP C isn't
income dependant. My daughter has CAP C. You have to qualify
> on 3 of the 5 delays that are possible. This is where you have to
really
> think about where your child is developmentally. I think the areas
where
> delays need to be include behavioral, gross motor, fine motor,
self help and
> ...maybe emotionally (or is that the same as behavioral??) or
could it be
> speech? If it is speech, he should qualify under gross motor,
speech and my
> guess fine motor since a lot of kids with SB struggle with fine
motor
> issues. Self help will be hard to get at his age as many 2 year
olds are
> totally dependent on their parents. Don't you have grounds to sue
your
> employer for firing you due to a family medical leave? Even if you
get on
> CAP MR/DD in many counties there are waiting lists that are years
long.
> Also look into Children's special health services, or is it Special
> Children's Health Services? What area of NC are you in?
> Susan
>
> _____
>
> From: sbaofnc@yahoogroups.com [mailto:sbaofnc@yahoogroups.com] On
Behalf Of
> kellie_moors
> Sent: Friday, August 25, 2006 7:27 PM
> To: sbaofnc@yahoogroups.com
> Subject: [SBAofNC] Declined!!
>
> I found out that my two year old had spina bifida when I was
twenty
> three weeks pregnant. And because I'm a nurse and proactive I had
my
> husband shipped off a mountian in Afghanistan and we traveled 1000
> miles for the MOMs study. Well we were declined because the MRI
said
> he didn't have any nerve in his meningocele so he wouldn't benefit
> from the surgery. Then my employer, declined to have me restart
work
> because I had been gone 5 weeks. My husband got out of the
military
> on disablity and we have since been declined by SSI two times, I
> cannot get the SBA to call back, Medicaid was approved until he
turned
> one year. And because my husband doesn't work we have been
struggling
> with all the therapy appointments and my husband's own diagnosis.
And
> my other son is suffering 'what about me's. CAP MR/DD just turned
us
> down after we applied in may and their slots closed in june. But
the
> mental health case worker dropped the ball and never called. I
called
> a lawyer, but they aren't accepting new clients. I have taken all
> tuesdays off of work for PT and speech but really cannot afford
it.
> WHAT NEXT? What do you apply for when you've been turned down by
> everything? I'm going to try for CAPs C but I've been told we make
to
> much, I don't see how when I just making bills.
>
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>
>
>
>
>
>
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