They told me if we don't qualify SSI and because that we didn't qualify for that
we didn't get medicaid,when I asked another way they said a waiver program,but
I've been turned down twice, and yes I think the first time it was because he
was so young, but this second time between the program protocol and paper and
the social worker not returning calls we got turned down agian for MR/DD.
Cognitive is the only area he isn't delayed in, maybe fine motor too. It's not
like I want money or food stamps, but we may be losing my husbands military
insurance soon, which hardly pays visits, but it's better then nothing. And I
was told by the employment comission that I could have made trouble for my
employer, but I was still seven months pregnant at the time and had other things
on my mind at the time, and after my focus is on my family. I still run into
these people and it wouldn't be worth it, I would rather get the help we really
need, but cannot get.

Susan Collins <susancollins@...> wrote: CAP C isn't income
dependant. My daughter has CAP C. You have to qualify
on 3 of the 5 delays that are possible. This is where you have to really
think about where your child is developmentally. I think the areas where
delays need to be include behavioral, gross motor, fine motor, self help and
...maybe emotionally (or is that the same as behavioral??) or could it be
speech? If it is speech, he should qualify under gross motor, speech and my
guess fine motor since a lot of kids with SB struggle with fine motor
issues. Self help will be hard to get at his age as many 2 year olds are
totally dependent on their parents. Don't you have grounds to sue your
employer for firing you due to a family medical leave? Even if you get on
CAP MR/DD in many counties there are waiting lists that are years long.
Also look into Children's special health services, or is it Special
Children's Health Services? What area of NC are you in?
Susan

_____

From: sbaofnc@yahoogroups.com [mailto:sbaofnc@yahoogroups.com] On Behalf Of
kellie_moors
Sent: Friday, August 25, 2006 7:27 PM
To: sbaofnc@yahoogroups.com
Subject: [SBAofNC] Declined!!

I found out that my two year old had spina bifida when I was twenty
three weeks pregnant. And because I'm a nurse and proactive I had my
husband shipped off a mountian in Afghanistan and we traveled 1000
miles for the MOMs study. Well we were declined because the MRI said
he didn't have any nerve in his meningocele so he wouldn't benefit
from the surgery. Then my employer, declined to have me restart work
because I had been gone 5 weeks. My husband got out of the military
on disablity and we have since been declined by SSI two times, I
cannot get the SBA to call back, Medicaid was approved until he turned
one year. And because my husband doesn't work we have been struggling
with all the therapy appointments and my husband's own diagnosis. And
my other son is suffering 'what about me's. CAP MR/DD just turned us
down after we applied in may and their slots closed in june. But the
mental health case worker dropped the ball and never called. I called
a lawyer, but they aren't accepting new clients. I have taken all
tuesdays off of work for PT and speech but really cannot afford it.
WHAT NEXT? What do you apply for when you've been turned down by
everything? I'm going to try for CAPs C but I've been told we make to
much, I don't see how when I just making bills.

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