Hi,
I have a son that also has spina bifida, and a VP Shunt. He will be 5 in May
of this year. He did have problems with his bowels also. His doctor prescribed
him a medication that keeps his stools soft. It's called Glycolax. It's a powder
that I put in his drink every morning. It has no taste so he doesn't even know
that it is in his drink.
I hope this information may help.
Amy of Gastonia
Stormie <counselorwillingham@...> wrote:
Hi,
I have a beautiful son with spina bifida, he has a VP that has
already malfunctioned. He has had to endure 5 surgeries in his
short life. But despite all he flourishes and is a healthy, loving
good natured baby. He no longer requires catheterization, and has
no symptoms of the Chiari malformation thus far. I have a question
though that maybe one of you has an answer for. Well actually 2
questions. First, my sons rectum constantly protrudes and bleeds.
The doctor said it's because his muscle is lax and that it should
get better with time. They gave me some ointment to apply to numb it
but it looks so painful and he constantly stools and crys when he
does. Have any of you dealt with this and can offer any advise to
make bowel movements more comfortable for him? Also, what foods
must I keep away from him becuse of his potential to develop Latex
allergies? I fed him bananas yesterday, he loved them, but I read
today he could eventually be allergic to them. I have three older
children ( 2 girls 12 and 11 and another son 7), but it has been so
long it is almost like starting over and with his condition it is
even more new for me. I would welcome any advise. I treat him like
any other baby. He has no ability to move his legs from the thigh
down but outside that..he is just my sweet baby boy whom we all
adore.





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