Hi! Have you contacted the support group in your area?
I am Susan and I have a 10 yr old daughter with SB. We live in the
Winston-Salem area.
The prolapsed rectum isn't uncommon with SB. Keeping the bowel movements as
soft as possible can help keep the rectum from "falling out". It may get
better with time. A few kids do require surgery for this. The foods "high"
on the latex precautions list include avocado, bananas, chestnuts, kiwi and
papaya. Many doctors don't suggest limiting foods until an actual
sensitivity has been established. However, others do. It really is up to
you as a parent to decide what you want to do. For babies, the only common
food would be bananas. There are three levels of foods that are considered
similar in proteins to latex. The high risk foods are mentioned above (not
sure if I missed any). Level 2 (not as likely to cause cross-reactions)
include common foods such as tomatoes (which would include tomato
sauces--hard to avoid in baby "2nd" foods.
I am sorry you have had to deal with so many surgeries so early in his life.
I know how stressful that can be, especially dealing with postpartum
hormones as well! It is great that you are looking for info on the web.
Let me know if I can help and if you are interested in more online support
groups for parents.
Susan

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From: sbaofnc@yahoogroups.com [mailto:sbaofnc@yahoogroups.com] On Behalf Of
Stormie
Sent: Sunday, March 19, 2006 4:55 PM
To: sbaofnc@yahoogroups.com
Subject: [SBAofNC] I have a 7 week old son with sb


Hi,
I have a beautiful son with spina bifida, he has a VP that has
already malfunctioned. He has had to endure 5 surgeries in his
short life. But despite all he flourishes and is a healthy, loving
good natured baby. He no longer requires catheterization, and has
no symptoms of the Chiari malformation thus far. I have a question
though that maybe one of you has an answer for. Well actually 2
questions. First, my sons rectum constantly protrudes and bleeds.
The doctor said it's because his muscle is lax and that it should
get better with time. They gave me some ointment to apply to numb it
but it looks so painful and he constantly stools and crys when he
does. Have any of you dealt with this and can offer any advise to
make bowel movements more comfortable for him? Also, what foods
must I keep away from him becuse of his potential to develop Latex
allergies? I fed him bananas yesterday, he loved them, but I read
today he could eventually be allergic to them. I have three older
children ( 2 girls 12 and 11 and another son 7), but it has been so
long it is almost like starting over and with his condition it is
even more new for me. I would welcome any advise. I treat him like
any other baby. He has no ability to move his legs from the thigh
down but outside that..he is just my sweet baby boy whom we all
adore.





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