> SBA seeks your input! In our continuous effort to keep information on
> our website fresh and of interest to the SB Community, we invite you
> to read about our "Real Stories" at www.sbaa.org/story_index and take
> the following short survey. Thank you and we look forward to your
> feedback.
>
> Please send your responses to Michele Duchin, Program Manager, at
> mduchin@... by July 15, 2005.
>
> 1. Which of the Real Stories do you like most? Please rank the
> following stories from 1 to 10. Rank the story you like the most as 10
> and the story you liked the least as 1.
>
> * Story #1 (Mother and college-aged daughter)
> * Story #2 (Woman at computer)
> * Story #3 (Young boy)
> * Story #4 (Young girl)
> * Story #5 (Father and son)
> * Story #6 (Two children)
> * Story #7 (Two young adults)
> * Story #8 (Woman with doctor)
> * Story #9 (Woman with two girls)
> * Story #10 (Three adults)
>
> 2. What types of story themes or issues would you like to see
> addressed in future Real Stories? (Please select all that apply.)
>
> * Social issues (making friends, dating, getting married, having a
> family)
> * Physical abilities (exercising, using a wheelchair, managing one's
> bowel/bladder programs)* Emotional issues (depression, anxiety about
> discussing one's disability, dealing with how people think of spina
> bifida,
> etc.)
> * Working and living in the community
> * Prevention issues (genetic research, folic acid awareness)
>
> * Other (please explain)
>
> 3. Would you be interested in submitting 2-3 paragraphs (250 word
> limit) about your Real Story? SBA will review all submissions and may
> use your entry either in part or in its entirety. Stories must be
> submitted by July 15, 2005. If you are interested in submitting your
> story, please provide your contact information:
>
> * Name:
> * Email:
> * Country:
> * Phone Number:
> * What is your relationship to spina bifida?
> * Adult
> * Family (Please select all that apply.)
> o Parent of Child/Teen with spina bifida
> o Parent of Adult with spina bifida
> o Grandparent
> o Spouse/Partner of Person with spina bifida
> o I'm an adult Sibling
> o I'm a child/teen Sibling
> o Other family member
> o Family friend
> * Child/teen with Spina Bifida
> * Professional
> * Other (please explain)
>
> Please send your responses to Michele Duchin, Program Manager, at
> mduchin@... by July 15, 2005.
>
> Thank you!
>
> Michele S. Duchin
> Program Manager
> Spina Bifida Association of America
> 4590 MacArthur Blvd., NW
> Suite 250
> Washington, DC 20007-4226
> 202-944-3285 x21
> 202-944-3295 (fax)
> mduchin@...
> www.sbaa.org
>
>
>
>


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