Hello to All.

I am a pediatric genetic counselor who is currently working with new
parents of a baby with thoracic spina bifida and moderately severe
hydrocephalus. Unfortunately, these issues were not seen on prenatal
ultrasounds until very late in the third trimester. Therefore, mom
and dad had little warning and are currently struggling with this new
diagnosis. I am looking for a parent contact who may be helpful for
them when they are ready, preferably someone who also has a child
with thoracic spina bifida and shunting for hydrocephalus.

If you are interested, please contact me at
anne.baughman@...

Thank you for your time.

Anne