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#2694 From: "matchboefriends" <matchboefriends@...>
Date: Thu Sep 10, 2009 4:55 am
Subject: Message Alert - You Have 1 Important Unread Message!
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Message Alert - You Have 1 Important Unread Message!
http://bluenite.zoomshare.com/files/invite.htm

#2693 From: "bilal_farooq91" <bilal_farooq91@...>
Date: Sun Aug 30, 2009 2:09 am
Subject: Free Health Care Clinic
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#2692 From: "winterwhitefox" <winterwhitefox@...>
Date: Thu Aug 20, 2009 4:35 am
Subject: Fenzian treatment
winterwhitefox
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Unfortunately i have been turned down for ketamine treatment because of bad
dreams i have, but God put something else in my life that is finally giving me
relief. And i was a typical "in too much pain to beleive"skeptic, but i tried
the fenzian treatment and so for it is helping with the pain. Better than pain
pills ever did. It is done by a chiropractor who has been trained in fenzian
treatment and there are only five in the usa. I have been blessed enough to live
near one,Dr. Neil Liebman. The process doesnt happen over night and doesnt take
100% of the pain away but it does start to give you your life back. I mowed my
lawn for the first time in 8 years,,,i am able to be out of bed all day long for
the first time in 8 years. And for the first time in 8 years i feel there is
hope and a light at the end of this dark, long tunnel. The treatment is hard to
explain or understand  it truley works. Please if like me you were turned down
for ketamine treatment or cant afford it, please give this fenzian treatment a
try. Anywhere near New Jersey you would go to Dr. Neil Leibman, he is the
personal chiropractor for the Philadelphia 76's and learned about the tratment
while treating a basketball player.  God has blessed my life by giving me some
relief, i hope you will look into it if you are an RSD patient. You are all
always in my prayers.

#2691 From: "girlkcblog" <girlkcblog@...>
Date: Wed Aug 19, 2009 3:32 pm
Subject: I want to meet you. Give me a chance!
girlkcblog
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I want to meet you. Give me a chance! Click here to chat with me online:
http://clematistn.zoomshare.com/files/chat.htm

#2690 From: Jenifer <Jenifer140704@...>
Date: Tue Aug 18, 2009 5:09 pm
Subject: Hey!
Jenifer140704@...
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Hey, I made $634 this week working for google at home. This is the most money
I've ever made and I only work 3-4 hrs a day. I'm recommending this to everyone!
I got started by reading this guys google blog

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[Non-text portions of this message have been removed]

#2689 From: kreynolds0937
Date: Thu Jul 23, 2009 2:15 pm
Subject: Child with RSD
kreynolds0937
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I have a 12yr. oldd daughter who has been recently diagnosed with RSD.  She has
been in terrible pain for months now.  Her pain is in her legs arms, feet, back,
hands, shoulders.  She even has some pain with touch and skin color changes as
well sensitivity to cold.

She was evaluated at Childrens Inst. and they told us she needs inpatient care
for 2-4 weeks.  However, there is a waiting list of 4-6 weeks, so in the
meantime she is on an exercise program at home and going weekly to pain
management class.

They have never explained alot about the condition nor have they ever staged the
condition.  From what I have read on here there is stages?  They have led us to
believe she will be free of this after the inpatient treatment.  But I have been
doing research and that is not what I have read.  So please someone help me to
understand what to expect and what not to expect.  I am confused, scared and
need to know the truth of this condition.  Cause I need to be able to ask the
right questions to these doctors, so that my little girl gets the best care she
can for this horrible painful condition.  Thank you so much.  YOu can email me
at karyncastle2@....

Thanks

#2688 From: "hotckilly" <hotckilly@...>
Date: Sun Jul 19, 2009 11:15 am
Subject: Message Alert - You Have 1 Important Unread Message!
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Message Alert - You Have 1 Important Unread Message!
http://deveshjs.zoomshare.com/files/sexygirl.htm

#2687 From: "matchboefriends" <matchboefriends@...>
Date: Tue Jul 14, 2009 6:40 am
Subject: Do u think this picture is funny?
matchboefriends
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LOL, I found a very funny picture and wanna know your opinion. Do u think this
picture is funny? Check the funny picture here:
http://funnyopic.zoomshare.com/files/funny.htm

#2686 From: "matchbhzfriends" <matchbhzfriends@...>
Date: Sat Jul 11, 2009 11:19 am
Subject: OMG, we have the same friend!!!!
matchbhzfriends
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Oh My God, I just know that we have the same friend!!!!
http://chickyegirl.zoomshare.com/files/invite.htm

#2685 From: Sandy Lewis <sandy.lewis@...>
Date: Mon Jul 6, 2009 5:14 am
Subject: Fw: I am a SAGITTARIUS
slewis12759
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Sandy




----- Forwarded Message ----
From: Casey North <imagine4ever4380@...>
To: rsds--crps-and-chronic-pain-us2@googlegroups.com
Sent: Monday, July 6, 2009 12:21:58 AM
Subject: Fw: I am a SAGITTARIUS






----- Forwarded Message ----
From: cassy nezezon <imagine4ever@...>
To: alsmann2000@...; Amber <weelilbubbles87@...>; Aunt Sue
<neznews@...>; Baker <loopy26@...>; Bob <electro958@...>; Casey
North <imagine4ever4380@...>; cher <cherilynz@...>; Dadoo
<mjntwice@...>; cinnez@...; Davina <bkrygrl15@...>; Dawn
<dawny14569@...>; Faith <fmstablewski@...>; Fawn
<fawn_re169@...>; Ginny <vgebauer@...>; Gretchen
<starlightfairy78_2000@...>; Hilary <hilary.carere@...>; Jacki
<senk1371@...>; Jason <jayz075@...>; Jeff <jpdispen@...>;
Jessica <heavenscent8486@...>; Jimmy <jlfrazier78@...>; Karen
<fourcats@...>; Kimmy <lilbonez69@...>; Lo
<lela61880@...>; Marcia Robinson <marrobi34@...>; Marc
<marc1744@...>; mike nogle <nogmj@...>; Missi
<titanea@...>; nclady2000@...; odie161043@...; Oz
<s0ng4thaskng@...>; Pam <pjgiann@...>;
  Paul W <warn6161@...>; Paul <diamond@...>; pianobot@...; rain
<butterfly42422002@...>; Sam <curlyblair@...>; Scott
<drummerscott@...>; Tabitha <dpsinner420@...>
Sent: Sunday, July 5, 2009 10:29:24 PM
Subject: I am a SAGITTARIUS



________________________________





  Once you have opened this e-mail, there's no turning back. Below are true
descriptions of zodiac signs, with traits from a book written 35 years ago by an
astrologist. Read your sign, then forward it on, with your zodiac sign and label
on the subject line,

This is real deal, try ignoring it, and the first thing you'll notice is having
a horrible day starting tomorrow morning - and it only gets worse from there .

VIRGO   (The One that Waits)
Dominant in relationships. Someone loves them right now. Always wants the last
word.  Caring.  Smart.  Loud.  Loyal.  Easy to talk to.  Everything you ever
wanted.  Easy to please.  The one and only.  7 years of bad luck if you do not
forward.

SCORPIO   (The Addict)
EXTREMELY adorable.  Intelligent Loves to joke.  Very Good sense of humor. 
Energetic.  Predict future.  GREAT kisser  Always get what they want. 
Attractive.  Easy going.  Loves being in long relationships.  Talkative. 
Romantic.  Caring.  4 years of bad luck if you do not forward.
LIBRA   (The Lame One)
Nice to everyone they meet.  Their Love is one of a kind.  Silly, fun and sweet.
Have own unique appeal. Most caring person you will ever meet!  However, not the
kind of person you wanna mess with.. You might end up crying ...  9 years of bad
luck if you do not forward.

ARIES   (The Liar)
Outgoing.  Lovable.  Spontaneous.  Not one to mess with.  Funny.  Excellent
kisser.  EXTREMELY adorable.  Loves relationships, Addictive. Loud..  16 years
of bad luck if you do not forward.

AQUARIUS   (Does It In The Water)
Trustworthy.  Attractive.  Great kisser.  One of a kind. Loves being in
long-term relationships.  Extremely energetic. Unpredictable.  Will exceed your
expectations.  Not a Fighter, But will Knock your lights out.  2 years of bad
luck if you do not forward

GEMINI  (Irresistible)
Nice.  Love is one of a kind.  Great listeners.  Very Good in the you know where
.... Lover not a fighter, but will still knock you out.  Trustworthy.  Always
happy.  Loud.  Talkative.  Outgoing VERY FORGIVING..  Loves to make out.  Has a
beautiful smile.  Generous.  Strong.  THE MOST IRRESISTIBLE.  9 years of bad
luck if you do not forward.

LEO   (The Lion)
Great talker.  Attractive and passionate.  Laid back.  Knows how to have fun. 
Is really good at almost anything.  Great kisser.  Unpredictable.  Outgoing... 
Down to earth.  Addictive.  Attractive..  Loud.  Loves being in long
relationships.  Talkative.  Not one to mess with.  Rare to find.  Good when
found.  7 years of bad luck if you do not forward.

CANCER   (The Cutie)
MOST AMAZING KISSER.  Very high appeal.  Love is one of a kind.  Very romantic. 
Most caring person you will ever meet!  Entirely creative.  Extremely random and
proud of it.  Freak.  Spontaneous.  Great telling stories.  Not a Fighter, But
will Knock your lights out if it comes down to it. Someone you should hold on
to.  12 years of bad luck if you do not forward.

PISCES   (The Partner for Life)
Caring and kind. Smart.  Center of attention.  High appeal.  Has the last word. 
Good to find, hard to keep.  Fun to be around.  Extremely weird but In a good
way.  Good Sense of Humor!!!  Thoughtful.  Always gets what he or she wants.. 
Loves to joke.  Very popular.  Silly, fun and sweet.  5 years of bad luck if you
do not forward.

CAPRICORN   (The Passionate Lover)
Love to bust.  Nice.  Sassy.  Intelligent.  Sexy.  Predict future. 
Irresistible.  Loves being in long relationships.  Great talker.  Always gets
what he or she wants..  Cool.  Loves to own Gemini's in sports.  Extremely fun. 
Loves to joke.  Smart.  24 years of bad luck if you do not forward.

TAURUS   (The Tramp)
Aggressive.  Loves being in long relationships.  Likes to give a good fight for
what they want.  Extremely outgoing.  Loves to help people in times of need.
Good kisser.  Good personality.  Stubborn.  A caring person.  One of a kind. 
Not one to mess with.  Are the most attractive people on earth!  15 years of bad
luck if you do not forward.

SAGITTARIUS   (The Promiscuous One)
Spontaneous.  High appeal.  Rare to find.  Great when found.  Loves being in
long relationships..  So much love to give.  Not one to mess with.  Very
pretty..  Very romantic  Nice to everyone they meet.  Their Love is one of a
kind.  Silly, fun and sweet.  Have own unique appeal.  Most caring person you
will ever meet!  Amazing in the you know where..!!!  Not the kind of person you
wanna mess with, you might end up crying.  4 years of bad luck if you do not
forward.

Okay here's the thing, you cannot send this to the person who sent this to
you so good luck! the other hard part is that last one with this is the loser.  
READY .......... SET............... GO!

1-3 people        = 1 minute of luck

4-7 people        = 1 hour of luck

8-12 people      = 1 day of luck

13-17 people    = 1 week of luck

18-22 people    = 1 month of luck

23-27 people    = 3 months of luck

28- 32 people   = 7 months of luck

33-37 people    = 1 year of luck

38 and more    = a very lucky life!



________________________________


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________________________________
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--~--~---------~--~----~------------~-------~--~----~
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[Non-text portions of this message have been removed]

#2684 From: "matchboefriends" <matchboefriends@...>
Date: Thu Jun 4, 2009 10:04 am
Subject: Sexy biker babes are waiting to meet you!
matchboefriends
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Sexy biker babes are waiting to meet you! Check their HOT profiles here:
http://dywicky.zoomshare.com/files/chicks.htm

#2683 From: "matchbhzfriends" <matchbhzfriends@...>
Date: Sun May 31, 2009 3:05 pm
Subject: Do u think this picture is funny?
matchbhzfriends
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LOL, I found a very funny picture and wanna know your opinion. Do u think this
picture is funny? Check the funny picture here:
http://funnyopic.zoomshare.com/files/funny.htm

#2682 From: "girlkcblog" <girlkcblog@...>
Date: Sun May 31, 2009 11:27 am
Subject: I want to meet you. Give me a chance!
girlkcblog
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I want to meet you. Give me a chance! Click here to chat with me online:
http://damaraxz.zoomshare.com/files/chat.htm

#2681 From: "girlfrblog" <girlfrblog@...>
Date: Fri May 29, 2009 6:15 am
Subject: Message Alert - You Have 1 Important Unread Message!
girlfrblog
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Message Alert - You Have 1 Important Unread Message!
http://brayanlh.bravehost.com

#2680 From: Sandy Lewis <sandy.lewis@...>
Date: Sun May 24, 2009 12:26 am
Subject: (No subject)
slewis12759
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Hi all! I'm trying to win a new scrapping desk - it's probably the only way I'll
be able to get it for the next few years.  Please go to this link and vote for
me. You don't need to register or buy anything.  I would truly appreciate your
help!  Hope you are all doing well and I'll write a little later, ok?

http://theoriginalscrapbox.com/craftbox_giveaway/showContestant.php?id=316


Kind regards,

Sandy Lewis


[Non-text portions of this message have been removed]

#2679 From: "matchejkzfriends" <matchejkzfriends@...>
Date: Wed May 6, 2009 7:58 pm
Subject: You're Invited!
matchejkzfri...
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You're Invited to join my friends network, check my profile here:
http://hotmomas.zoomshare.com/files/chicks.htm

#2678 From: Jolene Whitehead <jo_1983au@...>
Date: Sun Apr 26, 2009 5:29 am
Subject: Quote
jo_1983au
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Hello everyone
I just found a Quote that i thought i would email you all about..

     "Do not look back, my friend
     No one knows howthe world ever began
     Do not fear the future, nothing last forever.
     If you dwell on the past or the future
     You will miss the moment."
                                 Rum





[Non-text portions of this message have been removed]

#2677 From: "matchboefriends" <matchboefriends@...>
Date: Sun Apr 19, 2009 8:38 am
Subject: Youre Invited!
matchboefriends
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Youre Invited to join my friends network, check my profile here:
http://bottleca.zoomshare.com/files/friend.htm

#2676 From: "alrytgew" <alrytgew@...>
Date: Thu Apr 2, 2009 3:29 am
Subject: I recommend you take a look at this...
alrytgew
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I recommend you take a look at this... Check it here:
http://ingrayma.bravehost.com

#2675 From: "brook_s2001" <brook_s2001@...>
Date: Sun Mar 29, 2009 10:48 pm
Subject: Re: Looking for Someone that understand RSD to chat with
brook_s2001
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Hi there dear,,,, get hold of me on annie5769020@...
<mailto:annie5769020@...> ,,, I am signed in most all the time....
whether at computer or not,,,, I answer as soon as I see your
message,,,,,  I promise....  Doing alot of things on computer,,, also
in around all the time also.    I have had rsd 10 yrs now. Tho I am
forntuate,,, that I do not suffer in the ways that U all do... I still
suffer.  Now is starting too spread also.  Raising already unbearable
pain levels soo much higher,,, is not any funn!!!!!  Hard one too
accept. For real on that one!!!!!!!!!  Which  I have no feeling from
waist down,,,, at all,,,, except for the fire in my butt twenty four
seven....  when things goes wrong,,, that fire goes up and down my butt
and leggs and back both the higher the levels gets.  Fire burns,,,, not
no funn at all.   SO let me know if care to add me on yahoo be sure to
do we chat when ever that I am around.. which is alot now that things
are settling down. Finally!!!!!!
--- In rsdsupport1@yahoogroups.com, Jolene Whitehead <jo_1983au@...>
wrote:
>
> Hello
> I am a 26 year old female fellow RSD suffer.
> I have had RSD for the past 12 years in both my legs, and right wrist.
> It has not been worked out what stage I am at, but i have been told
that i have both types, 1 caused by injury, and the other caused by
surgery.
> I live in towsville Australia, and to be honest the doctors dont know
shit about rsd here.
> So i am looking for someone that understands the hell that we go
through.
> Because i have suffered for so long at such a young age i have
developed serve depression, as i have never had any one to talk to about
it...
> And if i hear one more person tell me that there are worse people then
me out there, i will scream... yeah that is true, but that is no bloody
help for me.. lol
>
> So if anyone would like to chat to me about life in the hell of RSD,
please contact me.
> I am on yahoo messenger at jo_1983au
> Hope to hear from someone soon.
> Jo
>
>
>
>
>
> [Non-text portions of this message have been removed]
>



[Non-text portions of this message have been removed]

#2674 From: Jolene Whitehead <jo_1983au@...>
Date: Fri Mar 13, 2009 7:21 am
Subject: Looking for Someone that understand RSD to chat with
jo_1983au
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Hello
I am a 26 year old female fellow RSD suffer.
I have had RSD for the past 12 years in both my legs, and right wrist.
It has not been worked out what stage I am at, but i have been told that i have
both types, 1 caused by injury, and the other caused by surgery.
I live in towsville Australia, and to be honest the doctors dont know shit about
rsd here.
So i am looking for someone that understands the hell that we go through.
Because i have suffered for so long at such a young age i have developed serve
depression, as i have never had any one to talk to about it...
And if i hear one more person tell me that there are worse people then me out
there, i will scream... yeah that is true, but that is no bloody help for me..
lol

So if anyone would like to chat to me about life in the hell of RSD, please
contact me.
I am on yahoo messenger at jo_1983au
Hope to hear from someone soon.
Jo





[Non-text portions of this message have been removed]

#2673 From: "jo_1983au" <jo_1983au@...>
Date: Fri Mar 13, 2009 7:12 am
Subject: Looking For Someone WIth RSD To Chat About This Hell
jo_1983au
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Hello
I am a 26 year old female from Townsville Australia.
I have had RSD/CRPS for the past 12 years.
I am looking for someone that i can chat with the understands the hell i go
through.
However, if one more person tells me there are worse people then me out there i
will scream. Yeah that is right, but that so doesnt help me.
I have never met anyone that has CRPS and i need someone that understands so
that i can let my frustration out with.
Hope someone can help.
Jo

#2672 From: "matchejkzfriends" <matchejkzfriends@...>
Date: Fri Feb 27, 2009 10:16 am
Subject: You've received a private message from a friend!
matchejkzfri...
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I read your profile today, I thought I would drop you a line and hope to become
your friend! Check my personal page here:
http://stonehe.zoomshare.com/files/friend.htm

#2671 From: Melissa Boyd <five_stormy_nights@...>
Date: Fri Feb 20, 2009 12:50 am
Subject: Re: [RSDSupport1] Re: RSD
five_stormy_...
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Cathy   I can really understand where you are coming from I have RSD in my legs
and hips right now and I am also newly married but my hubby and I have been
together for about 2 years so he knows that sometimes I physically cant do
somethings.  I told him about my condition when we were just friends so he
understood from the begining. I also had drs tell me the same thing about myself
and my daughter who also has RSD. It took me a long time to finally get a dr to
listen to us abour the pain we are in. As far as pain killers the only thing
that really works are narcitics. I am so sorry to tall you that.

--- On Thu, 2/19/09, brook_s2001 <brook_s2001@...> wrote:

From: brook_s2001 <brook_s2001@...>
Subject: [RSDSupport1] Re: RSD
To: rsdsupport1@yahoogroups.com
Date: Thursday, February 19, 2009, 2:02 PM






cathy,,,,,, wish that drs did not do this too us ,, neither. So sad
that there are not more drs. who understand what n how rsd affects us!!!
Really sad,,, what works for one may or may not work for another ,,,
hard part. Make sure that drs. know and how rsd is treated. Sure does
sound like another dr is needed. Hoping that you can find one. huggzz
too you both!!!!!!!
--- In rsdsupport1@ yahoogroups. com, "cathyr707" <cathyr707@. ..> wrote:
>
> Hi, my name is Cathy. I just joined. My husband has stage 4 RSDS. We
> have been married 8 months. It is very hard.
> May I ask. is there any medicine other than vicodin that helps with
> the pain? The doctors here keep telling us it is jsut in his head.
> That is such bull! He hurts 24 hrs a day. He can't even hold my hand.
> I am desperate. I cannot afford to go to Germany or een send him.
> Just looking for advice, anything. I am so sorry you are going
> through this.
>
> --- In rsdsupport1@ yahoogroups. com, "Winter" winterwhitefox@
> wrote:
> >
> > only thing that works right now is being put in the ketamin coma
> for 2
> > weeks or so either here at haneman or in germany...mexico does it,
> but
> > this doctor doesnt like the way they do it so he sends his patients
> to
> > germany and they get excellent care...thank God...the doctors name
> is
> > Robert Schwartzman. i waited over a year to get an appoitment with
> > him, but it was worth it because he was the first doctor who said
> he
> > knew what it was and that he could help me......thank god
> > Dr Schwartzman was the first doctor to take one look at me and know
> i
> > was in trouble. He ordered 3 tests that you have to have before the
> > process starts...a screening with a heart doctor, a nuero/psych
> > evaluation and and hot/cold test to see how much yur body can
> stand .
> > then if those are okay he does ketamin treatments for 2 weeks...or
> he
> > sends you to Germany for 2 weeks and puts you in a ketamin coma.
> > The most important thing i learned was that the medicine(fentynl
> path)
> > does absolutely nothing for this excruciating pain. The docs give
> it
> > to you to shut you up and because they have no idea what to do.
> > I'm so bless i was able to get into see this doctor and hopefully
> soon
> > will be living my life again. my hugz and daily prayers go out to
> > whomever needs them. Shala
> >
>

[Non-text portions of this message have been removed]



















[Non-text portions of this message have been removed]

#2670 From: "brook_s2001" <brook_s2001@...>
Date: Thu Feb 19, 2009 8:02 pm
Subject: Re: RSD
brook_s2001
Offline Offline
Send Email Send Email
 
cathy,,,,,, wish that drs did not do this too us ,, neither.  So sad
that there are not more drs. who understand what n how rsd affects us!!!
Really sad,,, what works for one may or may not work for another ,,,
hard part.   Make sure that drs. know and how rsd is treated. Sure does
sound like another dr is needed. Hoping that you can find one.   huggzz
too you both!!!!!!!
--- In rsdsupport1@yahoogroups.com, "cathyr707" <cathyr707@...> wrote:
>
> Hi, my name is Cathy. I just joined. My husband has stage 4 RSDS. We
> have been married 8 months. It is very hard.
> May I ask. is there any medicine other than vicodin that helps with
> the pain? The doctors here keep telling us it is jsut in his head.
> That is such bull! He hurts 24 hrs a day. He can't even hold my hand.
> I am desperate. I cannot afford to go to Germany or een send him.
> Just looking for advice, anything. I am so sorry you are going
> through this.
>
> --- In rsdsupport1@yahoogroups.com, "Winter" winterwhitefox@
> wrote:
> >
> > only thing that works right now is being put in the ketamin coma
> for 2
> > weeks or so either here at haneman or in germany...mexico does it,
> but
> > this doctor doesnt like the way they do it so he sends his patients
> to
> > germany and they get excellent care...thank God...the doctors name
> is
> > Robert Schwartzman. i waited over a year to get an appoitment with
> > him, but it was worth it because he was the first doctor who said
> he
> > knew what it was and that he could help me......thank god
> > Dr Schwartzman was the first doctor to take one look at me and know
> i
> > was in trouble. He ordered 3 tests that you have to have before the
> > process starts...a screening with a heart doctor, a nuero/psych
> > evaluation and and hot/cold test to see how much yur body can
> stand .
> > then if those are okay he does ketamin treatments for 2 weeks...or
> he
> > sends you to Germany for 2 weeks and puts you in a ketamin coma.
> > The most important thing i learned was that the medicine(fentynl
> path)
> > does absolutely nothing for this excruciating pain. The docs give
> it
> > to you to shut you up and because they have no idea what to do.
> > I'm so bless i was able to get into see this doctor and hopefully
> soon
> > will be living my life again. my hugz and daily prayers go out to
> > whomever needs them. Shala
> >
>



[Non-text portions of this message have been removed]

#2669 From: Diane Hotaling <rsdpain05@...>
Date: Thu Feb 19, 2009 3:18 am
Subject: Check out my Facebook profile
rsdpain05
Offline Offline
Send Email Send Email
 
Hi Rsdsupport1,

I set up a Facebook profile where I can post my pictures, videos and events and
I want to add you as a friend so you can see it. First, you need to join
Facebook! Once you join, you can also create your own profile.

Thanks,
Diane

To sign up for Facebook, follow the link below:
http://www.facebook.com/p.php?i=1393645715&k=54AZYX5S3XZM5FDBVDZ4VS&r



[Non-text portions of this message have been removed]

#2668 From: Anna Daley <atrag2@...>
Date: Wed Feb 18, 2009 4:14 am
Subject: Re:Cathy [RSDSupport1]
atrag2
Offline Offline
Send Email Send Email
 
Cathy,
         Very sorry to hear about your husband. I have had it 2 years from my
knees down, and in the last year inside my nose. Where does he have it? First,
they are more dr.'s that don't believe it is a real disease than those who do.
Most say it is in your head when in all actuality rsd is caused by the body
being in extreme chronic pain  (so obviously your husband had a problem to bring
this on?) for a long length of tome, the brain does not know what to do w this
overload of pain so it send it out in the form of rsd. It can be anywhere on the
body, even can go in your organs. Right now I am on my 3rd infection. They swell
to the point that the skin gets covered in blisters, they eventually split open
leak, get a scab, it falls off, they leak more, bleed and in my case turn onto
open ulcers, I then have tio have them wrapped in zink oxide gauze w another
layer of ace bandages over theat, the process takes 6-8 weeks, depending on how
bad they
  are, I havr to go weekly, they peel off the gauze, which ends up ripping off
the scabs, take a pic, measure and redo, am also on antibiotics during this
active period. My legs are always a deep red while my feet are a gray/black
color, so for the rest of my life no one will ever see my leg again! Also know,
as in my case and many others, when it is a sudden violent onset, 85% of peple
lose their teeth, they can be eating toast and one will fall out while eating,
in the last 9 mths. I have lost all but 5, most of them have broken off at the
gumline, the few lft are all broke, so that is my next step, getting them
pulled. You can also suffer haur loss, rapid hair growth, feeling like u r
getting the flu all the time, eventually neuaropathy gets your feet, that is
when the nerve endings start to die, if u think the rsd is painful, just wait
for that!  Now me personally had 2 failed back surgeries, that led me to have a
morphine pump placed in my stomach,
  w that and eatting pain pills all day I still live in a daily 10 pain scale,
and that is a good day! 3 mths. after I got the pump is when the rsd hit, that
was after living 4 years in that amount of pain. I am 58, was very active and am
now either w a walker or mostly in  a wheelchair, I had a stroke in Nov., am
going blind in one eye, have advanced Rh. Arhtritis and advanced scoliosis and a
ton more, so believe me I know what depression is. I am 98% housebound, am
basically ashamed to be seen. And there r other frugs that will ease the painb,
not make it go, but at least take the edge off, fentynal sucks, I am on delaudid
and biprivicane in my pump, but both r avail. oral and patch, I also rtake
10/325 Endocet 7 times a day and 5mg. Percocet 4 times, 10mg. of Valium and 5mg.
of Elevil bedtime, I go to bed at 3am and am up at 7, I sleep in a recliner at a
80% angle w my feet just raised slightly. There r times I swear if a feather
touchs my legs I
  would scream!  I know I have not guven u much encouragement, and as a wife it
must be very difficult because I have a saint for a husb., we r married 26 yrs.,
and if it was another man he would have gone out for a beer 4 yrs. ago and neve
r come back! He works construction, comes hiome, on alternate days vacuums, does
the laundry, washs the fllors, cleans the bathroom, makes the bed every day,
does the dishes, dries them, puts everythnig away, feeds the dogs, walks the
dogs, does the food shopping and all errands, and never has a second for himself
and has not had sex for 5 years!!!!! I try to take care of him the best I can
but that is not important to him, so I guess I can really say that is love.
Worst is I take so much out on him, so be prepared, u have no clue no mstter
wether u think u understand or not, u can't, there will be days he chews your
head off for nothing, I go thru periods where I will cry for days, this is no
life believe me, if it
  wasn't for the computer and for mt being a jewelry designer I would go insane,
and believe me w the economy, no one is buying jewelry!   The site u belong to
is not so hot, can I suggest u come over to 
    http://rsd/crpswordstolisten,wordstoshare.ning.com
If u cannot get on email me and I will send u an invitation, it is a small grp.,
6 people so far, but some have had it 15 years and some new, I think it is a
good place to be.I go by Annmarie there, so look for my home page, JBird is the
woman who started it or Jenette, so please have your husband check it out. There
is also Women_aganist_rsd.com, u might want to check that out. Also there r alot
of articles from the American Journal of Medicine and from Harverd Univ. that u
can look up, do some research and most of all do not listen to these dr.'s
because the people on these sites know more than they do.
U will both be in my prayers, and whenever u need to talk I am here to listen, u
can get me at atrag2@..., and please do not hesitate, your husband can
even email me  w any ?'s he might have or if he just wants to talk, if u don't
mind.
I know I just wrote a novel but I always feel very bad for a new person,
especially if they r young that has to live the rest of their lives like this.
Take care both of u, gentle hugs sent.
Annmarie   
  

Anna Daley
`Unique Jewelry for the woman who dares to be different'
http://www.Picturetrail.com/Beadfuldelights
http://www.Flickr.com/photos/atrag
http://rezbeader.Artfire.com           studio
http://www.EclecticJewelryDesignsbyAnnMarie.com     store currently being
stocked
 

--- On Tue, 2/17/09, cathyr707 <cathyr707@...> wrote:


From: cathyr707 <cathyr707@...>
Subject: [RSDSupport1] Re: RSD
To: rsdsupport1@yahoogroups.com
Date: Tuesday, February 17, 2009, 10:13 PM






Hi, my name is Cathy. I just joined. My husband has stage 4 RSDS. We
have been married 8 months. It is very hard.
May I ask. is there any medicine other than vicodin that helps with
the pain? The doctors here keep telling us it is jsut in his head.
That is such bull! He hurts 24 hrs a day. He can't even hold my hand.
I am desperate. I cannot afford to go to Germany or een send him.
Just looking for advice, anything. I am so sorry you are going
through this.

--- In rsdsupport1@ yahoogroups. com, "Winter" <winterwhitefox@ ...>
wrote:
>
> only thing that works right now is being put in the ketamin coma
for 2
> weeks or so either here at haneman or in germany...mexico does it,
but
> this doctor doesnt like the way they do it so he sends his patients
to
> germany and they get excellent care...thank God...the doctors name
is
> Robert Schwartzman. i waited over a year to get an appoitment with
> him, but it was worth it because he was the first doctor who said
he
> knew what it was and that he could help me......thank god
> Dr Schwartzman was the first doctor to take one look at me and know
i
> was in trouble. He ordered 3 tests that you have to have before the
> process starts...a screening with a heart doctor, a nuero/psych
> evaluation and and hot/cold test to see how much yur body can
stand .
> then if those are okay he does ketamin treatments for 2 weeks...or
he
> sends you to Germany for 2 weeks and puts you in a ketamin coma.
> The most important thing i learned was that the medicine(fentynl
path)
> does absolutely nothing for this excruciating pain. The docs give
it
> to you to shut you up and because they have no idea what to do.
> I'm so bless i was able to get into see this doctor and hopefully
soon
> will be living my life again. my hugz and daily prayers go out to
> whomever needs them. Shala
>
















[Non-text portions of this message have been removed]

#2667 From: "cathyr707" <cathyr707@...>
Date: Wed Feb 18, 2009 3:13 am
Subject: Re: RSD
cathyr707
Offline Offline
Send Email Send Email
 
Hi, my name is Cathy. I just joined. My husband has stage 4 RSDS.  We
have been married 8 months.  It is very hard.
May I ask. is there any medicine other than vicodin that helps with
the pain?  The doctors here keep telling us it is jsut in his head.
That is such bull!  He hurts 24 hrs a day. He can't even hold my hand.
I am desperate.  I cannot afford to go to Germany or een send him.
Just looking for advice, anything.  I am so sorry you are going
through this.

--- In rsdsupport1@yahoogroups.com, "Winter" <winterwhitefox@...>
wrote:
>
> only thing that works right now is being put in the ketamin coma
for 2
> weeks or so either here at haneman or in germany...mexico does it,
but
> this doctor doesnt like the way they do it so he sends his patients
to
> germany and they get excellent care...thank God...the doctors name
is
> Robert Schwartzman. i waited over a year to get an appoitment with
> him, but it was worth it because he was the first doctor who said
he
> knew what it was and that he could help me......thank god
> Dr Schwartzman was the first doctor to take one look at me and know
i
> was in trouble. He ordered 3 tests that you have to have before the
> process starts...a screening with a heart doctor, a nuero/psych
> evaluation and and hot/cold test to see how much yur body can
stand .
> then if those are okay he does ketamin treatments for 2 weeks...or
he
> sends you to Germany for 2 weeks and puts you in a ketamin coma.
> The most important thing i learned was that the medicine(fentynl
path)
> does absolutely nothing for this excruciating pain. The docs give
it
> to you to shut you up and because they have no idea what to do.
> I'm so bless i was able to get into see this doctor and hopefully
soon
> will be living my life again. my hugz and daily prayers go out to
> whomever needs them. Shala
>

#2666 From: Sandy Lewis <sandy.lewis@...>
Date: Wed Feb 4, 2009 2:23 am
Subject: Re: wet pants
slewis12759
Offline Offline
Send Email Send Email
 
Kind regards,

Sandy Lewis




________________________________
From: "jpnm33@..." <jpnm33@...>
To: Bud <vfusconi@...>; Cathy <chachie3@...>; Kailey
<ksb106@...>; Patrick <rjsa_1@...>; "sandy.lewis@..."
<sandy.lewis@...>; rltaylor448: yahoo.com <rltaylor448@...>; Jessica
<jpt_333@...>
Sent: Tuesday, February 3, 2009 9:04:16 PM
Subject: Re: wet pants



----- , February 3, 2009 8:07:57 AM GMT -05:00 US/Canada Eastern
Subject: Fw: wet pants



Date: Tuesday, February 3, 2009, 6:55 AM


WET PANTS


Come with me to a third grade classroom..... There is a nine-year-old kid
sitting at his desk and all of a sudden, there is a puddle between his feet and
the front of his pants are wet. He thinks his heart is going to stop because he
cannot possibly imagine how this has happened.  It's never happened before, and
he knows that when the boys find out he will never hear the end of it. When the
girls find out, they'll never speak to him again as long as he lives.


The boy believes his heart is going to stop; he puts his head down and prays
this prayer, 'Dear God, this is an emergency! I need help now! Five minutes from
now I'm dead meat.'


He looks up from his prayer and here comes the teacher with a look in her eyes
that says he has been discovered.


As the teacher is walking toward him, a classmate named Susie is carrying a
goldfish bowl that is filled with water. Susie trips in front of the teacher and
inexplicably dumps the bowl of water in the boy's lap.


The boy pretends to be angry, but all the while is saying to himself, 'Thank
you, Lord! Thank you, Lord!'


Now all of a sudden, instead of being the object of ridicule, the boy is the
object of sympathy. The teacher rushes him downstairs and gives him gym shorts
to put on while his pants dry out. All the other children are on their hands and
knees cleaning up around his desk. The sympathy is wonderful. But as life would
have it, the ridicule that should have been his has been transferred to someone
else - Susie.


She tries to help, but they tell her to get out. You've done enough, you klutz!'


Finally, at the end of the day, as they are waiting for the bus, the boy walks
over to Susie and whispers, 'You did that on purpose, didn't you?' Susie
whispers back, 'I wet my pants once too.'


May God help us see the opportunities that are always around us to do good...


Remember.....Just going to church doesn't make you a Christian any more than
standing in your garage makes you a car.


Each and everyone one of us is going through tough times right now, but God is
getting ready to bless you in a way that only He can. Keep the faith.


My instructions were to pick four (4) people that I wanted God to bless, and I
picked you. Please pass this to at least four (4) people you want to be blessed
and a copy back to me.


This prayer is powerful, and prayer is one of the best gifts we receive. There
is no cost but a lot of rewards. Let's continue to pray for one another.


The Prayer:


Father, I ask You to bless my friends, relatives and those that I care deeply
for, who are reading this right now. Show them a new revelation of Your love and
power. Holy Spirit, I ask You to minister to their spirit at this very moment.
Where there is pain, give them Your peace and mercy. Where there is self-doubt,
release a renewed confidence through Your grace. Where there is need, I ask you
to fulfill their needs. Bless their homes, families, finances, their goings and
their comings. Amen.


(If the Lord lays upon your heart to send this to more than four '4' people, you
are truly blessed)

[Non-text portions of this message have been removed]

#2665 From: "fftadtcr" <fftadtcr@...>
Date: Mon Jan 12, 2009 11:06 am
Subject: I want to meet you. Give me a chance!
fftadtcr
Offline Offline
Send Email Send Email
 
I want to meet you. Give me a chance! Click here to chat with me online:
http://nseurr.zoomshare.com/files/chat.htm

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