Hellow all i havent wrote for a wile i am still alive,if ya can call it that.I know how ya feel unless you have rsd you dont have a clue on the amount of pain...
Dave, No, have not heard from u in a long time. So u sound as bad as I am. I got a secondary disease from the rsd, fybrosis, it is when the legs swell so bad...
Jeanette, My name is Dawn I have now had RSD/Cprsd for over 3years now. I met my husband on the on set, he has gone to every appointment with me we sitdown and...
Dawn, you are blessed and yes the only time he sees anything wrong is when I am all swelled up. He will ask me what is wrong and I tell him I am hurting but he...
Jeanette, dawn had a good idea, why don't u have him read all these posts? How old r u if u don't mind my asking? I am 58 and sound about the equivalent...
Anna, it is enlightening to hear from you again. As far as treatment my insurance won't cover the stimulator. The Dr. tried recoding the medical condition all...
... From: jeanette polk <turkeylips_sammon@...> To: rsdsupport1@yahoogroups.com Sent: Wednesday, June 4, 2008 11:03:17 AM Subject: Re: [RSDSupport1] Re:...
i sit quietly and read all of the stories and weep because i feel like i am reading about my own life and pain and it is so scarey. The pain is non relenting...
Shala, We are all here for one reason to help each other. We need to be here because alot of people do not understand out pain because they can't see it. The...
Shala, I too read the posts and sometimes if I feel it is important, and I do think your pain is worth a few words. I can relate to the insurance deal as they...
Shala, Well I definately can feeel for you, there have been so many days I have just wanted to walk out into the traffic, I cannot see myself at 58 living the...
My dear Shala,,, So sorry that I have been slow about getting in my emails too see this post. My dear,,, you have too deal with insurance companys n drs on...
My dear,,, is great that you have freinds. What ever no turn loose of friends that you have . is only been freinds that is pulling me thru all of this....
Ladies, Brooke, I agree w just about all u said. I have been put thru hell for the last 23 months because I want a scooter and the insurance wants me to have...
... the last 23 months because I want a scooter and the insurance wants me to have an electric wheelchair. Why, because it is more expensive, they do not care...
Hi, My Name is Vannessa Hicks,I was diagnosed with RSD,in 2006.I have been to so many doctors.I have a spinal cord stimulator that controls my right leg,were...
Hi ther Vannessa ,,,, so sorry that is happened to you. There are not many people that I know that can function on meth. Let alone the other meds. Sad that we...
Hi Ladies, Don't know why they removed my part of the text, you can read it in the mess. line at the bottom of the email, I don't think I said anything...
Brook I haven't talked to you yet but I am on the methadone treatment which is regulated to the extreme. I couldn't function for at least a month but now I am...
Good too read your typing. so sorry that anyone has to go thru any of this. I know is hard on us and just as hard for them around us as well. My dear,, the...
Hi I mostly just go by rsdno ,I have had RSD since I was a child in 1968 ,I saw one Doctor a couple years ago who said "Hmmm it should have burned itself out...
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