I RECEIVED YESTERDAY AN E-MAIL ABOUT THE PASSING OF ONE OF THE MEMBERS OF THE RSD COMMUNITY. HER NAME IS VIKKI AKA SATINNLEIC. SHE PASSED AWAY ON HALLOWEEN. ...
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I was recently diagnosed with RSD and have had it for about five yers. By the time it was diagnosed it was well into the advanced stages and system wide. I...
jeff i have been diagnosed with rsd for 6 years but they think i probably had it way longer and that my injury triggered it. Welcome to the group hope you like...
Hello and welcome Jeff yes I have it full body man it is just horrendous I wonder why no one dies from such severe pain myself. It is a shock when it was in...
Thanks for the reply. I will be grateful each time it is not burning. so far it is getting into my eyes and face and other parts of my body. I did have a...
Hi Eve I am sorry to hear you are full body and so severe I used to be an extremely active person working two jobs the gym six time a week etc. And now I two...
Jeff I am glad today was a fairly good day for you. I had an amazingly good day I recently quit smoking I hope that has something to do with me being in a ...
Susan I know what you mean about the pain is so horrendous and woundering how long people can go on this way. I feel like that often times myself or did a lot...
Hi susan, sorry to hear that the narcotics are not working for you. Believe me if they did work for me I would probably take them, even though I am a drug...
Hi... I am new on this site, I was just diagnosed with RSD after rotator cuff surgery(shoulder). The pain is indescribable... I take 900 ml of neurotin, and...
Hello and Welcome! I was just recently diagnosed myself, but have had the disease since about 1998 after many surgeries folowing a car accident. I cerrtainly...
HELLO, MY NAME IS RJ AND I LIVE IN MONTANA. I AM SO SORRY FOR ALL THE PAIN AND SUFFERING THAT ALL ARE GOING THRU. I HAVE HAD RSD/CRPS SINCE 1999 AND I HAVE 2...
Hi there. My name is Karen and I am 42 years old. I have had RSD for over 3 years now. It started with an injury to my right knee at work and has progressed...
HI Karen, glad you are posting. I have been on oxy for over 3 years now but my doc said I can stay on it. I also take prosac and that sure helped me with all...
Dear Lori: I'm still around too but things haven't been to great either, but still Battling and more:-) But Karen Lori's a great gal too, and nice to see some...
Hello, my name is Chris, I am 32 and live in Ca.I have had RSD since I was 18. At the time my RSD originated in my left ankle after an injury. After 8 years...
Hi, I have been reading messages on this group for a couple of months now but haven't introduced myself until now. I actually read a few of the rsd groups on...
Hi Kari, I too am new to the group today, but I have been dealing with RSD for 13 years. I'm also 32, I've been married for 2 years, and we don't have any kids...
Hi Chris, Thank you for the supportive message. I am doing whatever I can to keep active on the leg I have RSD in. I have not been in a wheelchair yet and ...
Please, everyone who has experience with this, any information you could contribute would be much appreciated. My doctor has suggested a Spinal Cord...
Chris, I've had a stimulator since `99, and it has done wonders for me. It hasn't totally gotten rid of my pain but it is managable. I had even stopped most of...
Anyone who can answer this: What is the stimulator and where does it go... how is it placed... etc?? I have done no research on this yet but my ortho doc has...
Kari- Commonly, (I've been researching this a lot since my last doctors visit!) the stimulator is implanted in the lower back, in the lumbar. My doctor is...
Welcome Kari and Hello Chris, Yes I would have said the same in where to look up the info on the SCS. So, I'll go back into my reading and saying hello to...
HI, Just wanted to say hi, I read your post and I am so sorry you have rd. I am one of those in the 20% that has no idea how I got rsd. No accident or surgery...
