Cathy   I can really understand where you are coming from I have RSD in my legs
and hips right now and I am also newly married but my hubby and I have been
together for about 2 years so he knows that sometimes I physically cant do
somethings.  I told him about my condition when we were just friends so he
understood from the begining. I also had drs tell me the same thing about myself
and my daughter who also has RSD. It took me a long time to finally get a dr to
listen to us abour the pain we are in. As far as pain killers the only thing
that really works are narcitics. I am so sorry to tall you that.

--- On Thu, 2/19/09, brook_s2001 <brook_s2001@...> wrote:

From: brook_s2001 <brook_s2001@...>
Subject: [RSDSupport1] Re: RSD
To: rsdsupport1@yahoogroups.com
Date: Thursday, February 19, 2009, 2:02 PM






cathy,,,,,, wish that drs did not do this too us ,, neither. So sad
that there are not more drs. who understand what n how rsd affects us!!!
Really sad,,, what works for one may or may not work for another ,,,
hard part. Make sure that drs. know and how rsd is treated. Sure does
sound like another dr is needed. Hoping that you can find one. huggzz
too you both!!!!!!!
--- In rsdsupport1@ yahoogroups. com, "cathyr707" <cathyr707@. ..> wrote:
>
> Hi, my name is Cathy. I just joined. My husband has stage 4 RSDS. We
> have been married 8 months. It is very hard.
> May I ask. is there any medicine other than vicodin that helps with
> the pain? The doctors here keep telling us it is jsut in his head.
> That is such bull! He hurts 24 hrs a day. He can't even hold my hand.
> I am desperate. I cannot afford to go to Germany or een send him.
> Just looking for advice, anything. I am so sorry you are going
> through this.
>
> --- In rsdsupport1@ yahoogroups. com, "Winter" winterwhitefox@
> wrote:
> >
> > only thing that works right now is being put in the ketamin coma
> for 2
> > weeks or so either here at haneman or in germany...mexico does it,
> but
> > this doctor doesnt like the way they do it so he sends his patients
> to
> > germany and they get excellent care...thank God...the doctors name
> is
> > Robert Schwartzman. i waited over a year to get an appoitment with
> > him, but it was worth it because he was the first doctor who said
> he
> > knew what it was and that he could help me......thank god
> > Dr Schwartzman was the first doctor to take one look at me and know
> i
> > was in trouble. He ordered 3 tests that you have to have before the
> > process starts...a screening with a heart doctor, a nuero/psych
> > evaluation and and hot/cold test to see how much yur body can
> stand .
> > then if those are okay he does ketamin treatments for 2 weeks...or
> he
> > sends you to Germany for 2 weeks and puts you in a ketamin coma.
> > The most important thing i learned was that the medicine(fentynl
> path)
> > does absolutely nothing for this excruciating pain. The docs give
> it
> > to you to shut you up and because they have no idea what to do.
> > I'm so bless i was able to get into see this doctor and hopefully
> soon
> > will be living my life again. my hugz and daily prayers go out to
> > whomever needs them. Shala
> >
>

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