Hi there,,,, so sorry that you have too live with this.
Unfortunautely,,,, all of this goes along with the RSD. Horrid stuff it
is. Thankfully I do not have the kind of pain that all of you do. I have
no feeling from waist down too bottom of my feet. That does not mean
that I do not have pain. I most certainly do. With the MS. am not
always certain as to what or why pain levels goes up. We just keep
searching for the answers that will make the changes that we do need.
Hoping that your weekend if funfilled. I am having alot going on with
the blocks n having to go in to foot dr for shoes n prosisies in them.
Grrrrr,, will not ever be able too wear normal shoes again. alot of
adjustments tha we have too make. We grow into them . I have been
sick and still not feeling well. Hope you are doing better than me.
Annie
--- In rsdsupport1@yahoogroups.com, Anna Daley <atrag2@...> wrote:
>
> Hi Mary,
> I belong to red grp. 2, but read the posts anyway. I have had it
over 5 years now. It is from my knee doen thru my toes. Mine came as a
strong sudden onset due to living in a 10+++ pain level for all those
years. That was caused by 2 failed back surgeries that resulted in a
totally compressed perm. damaged sciatic nerve. My legs are all
black/brown, feet are just about black, when I am an active state they
swell 4-5 times their size resulting in the skin splitting open, leaking
and if I can't get them to heal turn into open ulcers which then take
months to heal. When u have a sudden onset, or even once u have it a
while you also have very rapid hair growth, I am 58 and have not shaved
my legs more than once a month for years, now u can braid the hair!!!
The other horrible side effect is that within the first 90 days over 80%
of all people lose their teth, I happened to be one of those who did,
now again, this is with a sudden severe onset.
> Yes your bones hurt, it is a very painful disease, muscle spasms,
charlie horses in the toes, oh yes. Eventually your skin turns to a
leather like quality yet is so sensitive to the touch that I cringe even
when I touch or brush against something, I cannot wear pants at all
anymore. Even tho it takes on a leather appearance you cannot shave, use
nair because actually the skin is super thin and that can lead to
infections. I was hoping it would remain confined to my legs but I now
have it from my elbow almost down to my wrist. I have a million things
wrong w me, you name it I have it, am in a wheelchair, going blind in 1
eye, have severe scoliosis, but the worst was last week, I had a stroke,
thank God it was not a serious one, tho I still do not have full
function of my hand, and might never again, but it could have been
devestating, but out of everythibng I have I thinj I hate the rsd the
most, there is no cure, it is permenant, comes and goes as it
> wants to, stress is a major trigger as are viruses and pain. So r u on
any pain meds? If u want to learn more go to the American Journal of
Medicine and research it a little. It can get very overwhelming and
depressing, so if u ever want to talk, just drop me a line, I will be
glad to chat w you.
> Take care and keep me posted on your progress.
> Anna-rsd grp. 2
>
>
> Anna Daley
> `Unique Jewelry for the woman who dares to be different'
> http://www.Picturetrail.com/Beadfuldelights
> http:/www.Homegrownmarket.com/annmarie
> and for the younger scene:
> http://www.Flickr.com/photos/atrag
>
>
> --- On Sat, 10/25/08, kittie13662 kittie13662@... wrote:
>
> From: kittie13662 kittie13662@...
> Subject: [RSDSupport1] new to the group
> To: rsdsupport1@yahoogroups.com
> Date: Saturday, October 25, 2008, 8:36 PM
>
>
>
>
>
>
> hi everyone, my name is mary, i was diagnosed with rsd in 2003. i
broke
> &dislocated my ring finger. during my physical theraphy, for 8 weeks
ni
> did not have surgery. because the doctor said, my finger would end of
> stiff. for life. because the break was just below my nuckle. thats
when
> they diagnosed me with rsd. today i cant make a fist or bend my finger
> tips. it now has went up my arm. bone pain, and have lost alot of
> tissue. in my arm. i been having alot of muscle spasms, does anyone
> know if muscle spasms and bone pain, are part of rsd. thank you glad
to
> have found this group. mary
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>



[Non-text portions of this message have been removed]