Hi Mary,
     I belong to red grp. 2, but read the posts anyway. I have had it over 5
years now. It is from my knee doen thru my toes. Mine came as a strong sudden
onset due to  living in a 10+++ pain level for all those years. That was caused
by 2 failed back surgeries that resulted in a totally compressed perm. damaged
sciatic nerve. My legs are all black/brown, feet are just about black, when I am
an active state they swell 4-5 times their size resulting in the skin splitting
open, leaking and if I can't get them to heal turn into open ulcers which then
take months to heal. When u have a sudden onset, or even once u have it a while
you also have very rapid hair growth, I am 58 and have not shaved my legs more
than once a month for years, now u can braid the hair!!! The other horrible side
effect is that within the first 90 days over 80% of all people lose their teth,
I happened to be one of those who did, now again, this is  with a sudden severe
onset.
Yes your bones hurt, it is a very painful disease, muscle spasms, charlie
horses in the toes, oh yes. Eventually your skin turns to a leather like quality
yet is so sensitive to the touch that I cringe even when I touch or brush
against something, I cannot wear pants at all anymore. Even tho it takes on a
leather appearance you cannot shave, use nair because actually the skin is super
thin and that can lead to infections. I was hoping it would remain confined to
my legs but I now have it from my elbow almost down to my wrist. I have a
million things wrong w me, you name it I have it, am in a wheelchair, going
blind in 1 eye, have severe scoliosis, but the worst was last week, I had a
stroke, thank God it was not a serious one, tho I still do not have  full
function of my hand, and might never again, but it could have been devestating,
but out of everythibng I have I thinj I hate the rsd the most, there is no cure,
it is permenant, comes and goes as it
wants to, stress is a major trigger as are viruses and pain. So r u on any
pain meds? If u want to learn more go to the American Journal of Medicine and
research it a little. It can get very overwhelming and depressing, so if u ever
want to talk, just drop me a line, I will be glad to chat w you.
Take care and keep me posted on your progress.
 Anna-rsd grp. 2


Anna Daley
`Unique Jewelry for the woman who dares to be different'
http://www.Picturetrail.com/Beadfuldelights
http:/www.Homegrownmarket.com/annmarie
and for the younger scene:
http://www.Flickr.com/photos/atrag
 

--- On Sat, 10/25/08, kittie13662 <kittie13662@...> wrote:

From: kittie13662 <kittie13662@...>
Subject: [RSDSupport1] new to the group
To: rsdsupport1@yahoogroups.com
Date: Saturday, October 25, 2008, 8:36 PM






hi everyone, my name is mary, i was diagnosed with rsd in 2003. i broke
&dislocated my ring finger. during my physical theraphy, for 8 weeks ni
did not have surgery. because the doctor said, my finger would end of
stiff. for life. because the break was just below my nuckle. thats when
they diagnosed me with rsd. today i cant make a fist or bend my finger
tips. it now has went up my arm. bone pain, and have lost alot of
tissue. in my arm. i been having alot of muscle spasms, does anyone
know if muscle spasms and bone pain, are part of rsd. thank you glad to
have found this group. mary















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