O Anna,,,,,, get hold of me at this addy ,,, I am having horrid nites
also,,, going 3 or 4 days without sleep. Not any funn.. be happy too
chat with u anytime. I have a couple of different id's on yahoo. Am
signed into one or other all time.. Looking forward too chatting . Sure
would like ribbon they need too know
--- In rsdsupport1@yahoogroups.com, Anna Daley <atrag2@...> wrote:
>
> Brook--
> Oh how I feel for you, I have had open. leaking ulcers for 6 months
now, all over my legs, they t all purple, black, red, u name it, and u
r right, the pain is horrible, I sleep in a chair on a 80 degree angle
because of my back deformity, so for month I can't even put my legs up
on a hasack because they can't touch anything, even the lightest touch
makes me want to puke! So I sleep with my legs down, which then in turn
makes the swelling worse-can we ever win?
> Last night we had a desperate one and no one to talk to, I emailed
him and asked if he had i.m., then emailed him again and told him to
contact me, he needed someone to talk to badly, I am horrible w names,
is ther a Jim in your grp? Is yes, it was him, I was hoping to see a
response today but nothing, he sounded so desperate, like he wanted to
eat every pill he had, I hope he is ok, I know he is married because he
said his wife cannot get what he goes thru. So Brook, take care of
yourself and I hope the pain eases up soon, u r all in my prayers,
> U know I am a jewelry designer for over 17 years, I want to make
some rsd ribbons, if you or anyone will like one, it will take me some
time because I am a lot slower now, I will gladly send you one, no
charge, it is virtually an unheard of disease, so a little education
might help some people. Let me know.
> Anna-grp.2
>
>
> Anna Daley
> `Unique Jewelry for the woman who dares to be different'
> http://www.Picturetrail.com/Beadfuldelights
> http:/www.Homegrownmarket.com/annmarie
> and for the younger scene:
> http://www.Flickr.com/photos/atrag
>
>
> --- On Mon, 8/25/08, brook_s2001 brook_s2001@... wrote:
>
> From: brook_s2001 brook_s2001@...
> Subject: [RSDSupport1] Re: Hi Havent Been On
> To: rsdsupport1@yahoogroups.com
> Date: Monday, August 25, 2008, 10:25 PM
>
>
>
>
>
>
> Hi there,,, I have not been around much neither. I been dealing with a
> staff infection for two months now. finally sores cleared n stopped
> draining past week for change. Man that is another type of pain no one
> should have to deal with. drs could not do nothing about that pain
cause
> is on face. swelling n all the shades of colors are still there not
> fading. most of swelling is still there also. Not fun. Not funn at
all.
> I belong too alot of groups with rsd also. U r rite there are not many
> men out there dealing with rsd. I know a few that are coping n dealing
> with. I feel for all that are dealing with this intrusive monster.
> Wishing that I could make it go away completely. Mine onset in 98
after
> my semi accident. at least drs were able too stop it from spreading.
> That is good thing. The weird things is done too foot n leg tho is not
> what I wanted neither. Life is just so unfair at times I wish that I
> could change that. Huggzzzzzzz
> --- In rsdsupport1@ yahoogroups. com, "comenero" comenero@ .> wrote:
> >
> > Hi I mostly just go by rsdno ,I have had RSD since I was a child in
> > 1968 ,I saw one Doctor a couple years ago who said "Hmmm it should
> > have burned itself out by now ,if you just need meds get a RN to
> > prescribe you ,even they can do that" I have a great Doc now this
guy
> > insultedmy pain my meds and I was an RN once upon a time ,3 insults
a
> > minute wow . Sadly RSD is a way of life I wish I was above it .There
> > aren't many men with RSD ,I know ForGrace has a problem with men and
> > there are just so few of us (maybe 10 per cent) I was recently told)
> > anyway I am in Oregon ,Eugene ,it's beautiful here ,.
> > I know a lot of Doctors and other types of therapists if I can ever
> > help anyone ,although I belong to a lot of RSD Groups this is the
only
> > one I read or Post in ,I think the owner has done a great job ,for
me
> > I live in the moment if I get ahead of myself it's too much my
> > memories a lot of pain and I lost my wife when we were 35 in 1989
but
> > I do have a daughter who is a Psychologist my best to you all rsdno
> >
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