Brook--
   Oh how I feel for you, I have had open. leaking ulcers for 6 months now, all
over my legs, they t all purple, black, red, u name it, and u  r  right, the
pain is horrible, I sleep in a chair on a 80 degree angle because of my back
deformity, so for month I can't even put my legs up on a hasack because they
can't touch anything, even the lightest touch makes me want to puke!  So I sleep
with my legs down, which then in turn makes the swelling worse-can we ever win?
  Last night we had a desperate one and no one to talk to, I emailed him and
asked if he had i.m., then emailed  him again and told him to contact me, he
needed someone to talk to badly, I am horrible w names, is ther a Jim in your
grp? Is yes, it was him, I was hoping to see a response today but nothing, he
sounded so desperate, like he wanted to eat every pill he had, I hope he is ok,
I know he is married because he said his wife cannot get what he goes thru.  So
Brook, take care of yourself and I hope the pain eases up soon, u  r  all in my
prayers,
  U know I am a jewelry designer for over 17 years, I want to make some rsd
ribbons, if you or anyone will like one, it will take me some time because I am
a lot slower now, I will gladly send you one, no charge, it is virtually an
unheard of disease, so a little education might help some people.  Let me know.
Anna-grp.2 


Anna Daley
`Unique Jewelry for the woman who dares to be different'
http://www.Picturetrail.com/Beadfuldelights
http:/www.Homegrownmarket.com/annmarie
and for the younger scene:
http://www.Flickr.com/photos/atrag
 

--- On Mon, 8/25/08, brook_s2001 <brook_s2001@...> wrote:

From: brook_s2001 <brook_s2001@...>
Subject: [RSDSupport1] Re: Hi Havent Been On
To: rsdsupport1@yahoogroups.com
Date: Monday, August 25, 2008, 10:25 PM






Hi there,,, I have not been around much neither. I been dealing with a
staff infection for two months now. finally sores cleared n stopped
draining past week for change. Man that is another type of pain no one
should have to deal with. drs could not do nothing about that pain cause
is on face. swelling n all the shades of colors are still there not
fading. most of swelling is still there also. Not fun. Not funn at all.
I belong too alot of groups with rsd also. U r rite there are not many
men out there dealing with rsd. I know a few that are coping n dealing
with. I feel for all that are dealing with this intrusive monster.
Wishing that I could make it go away completely. Mine onset in 98 after
my semi accident. at least drs were able too stop it from spreading.
That is good thing. The weird things is done too foot n leg tho is not
what I wanted neither. Life is just so unfair at times I wish that I
could change that. Huggzzzzzzz
--- In rsdsupport1@ yahoogroups. com, "comenero" <comenero@.. .> wrote:
>
> Hi I mostly just go by rsdno ,I have had RSD since I was a child in
> 1968 ,I saw one Doctor a couple years ago who said "Hmmm it should
> have burned itself out by now ,if you just need meds get a RN to
> prescribe you ,even they can do that" I have a great Doc now this guy
> insultedmy pain my meds and I was an RN once upon a time ,3 insults a
> minute wow . Sadly RSD is a way of life I wish I was above it .There
> aren't many men with RSD ,I know ForGrace has a problem with men and
> there are just so few of us (maybe 10 per cent) I was recently told)
> anyway I am in Oregon ,Eugene ,it's beautiful here ,.
> I know a lot of Doctors and other types of therapists if I can ever
> help anyone ,although I belong to a lot of RSD Groups this is the only
> one I read or Post in ,I think the owner has done a great job ,for me
> I live in the moment if I get ahead of myself it's too much my
> memories a lot of pain and I lost my wife when we were 35 in 1989 but
> I do have a daughter who is a Psychologist my best to you all rsdno
>

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