Hi Ladies,
  Don't know why they removed my part of the text, you can read it in the mess.
line at the bottom of the email, I don't think
 I said anything out of line!! Well Vanessa, have u made any progress?  Have u
looked/found any new pain management yet? And how abput getting off of some of
those drugs.
 I have a great one--I found out last week, the 1st pump I had last year, they
had to remove because the tethers broke and it was migrating all over, it
actually made chop meat out of my muscles so now I have none between my 1st and
2nd ribs, so I am always falling to the left!! The best part was that that pump
was recalled by the fda for missing propelllors and NO ONE ever informed me! My
surgeon insists it was not on the list, but I went to the site looked it up and
both the serial # and the vin # matched, now the 2nd one I have in me was also
recalled, can u believe this, but only the serial # matches, but they tell u
that it does not mean your pump has no problem just because the vin # is not
there. Then the pimp comp. asks me where is the pump??!!! By law it has to be
returned to the comp. I'm like how the hell do I know what happpened to the
pump, then they tell me to please call my surgeon and find out what he did w it,
well do your job, you
call him and find your own pump, they probably knew it was recalled and who
knows where it ended up. So since this one is also acting up, it re-activated
the rsd soooo bad that I have open wounds all over my legs from them swelling so
bad that the skin split open and they ended up getting infected. So I am wrapped
in layers of gauze with zinc oxide, then ace bandages from my toes to my knees,
they said it would take at least a month to heal and they are only wrapped 1
week, so I go tomorrow to have  them checked and cleaned, horrible, with all the
diseases I have had in my life, this is one of the top most horrible, between
the heat, all the wrapping, the pain, all that hair I just do'nt know anymore. 
Sometimes it juist gets to u. I have contacted a lawyer over this pump issue as
the 1st surgeon made me suffer for 3 mths. saying it was all in my head, that
there was nothing wrong with it yet he refused to give me an appt. to see him,
when I went to
the e.r. he didn't even come down to see me, he let a resident make the
determination, it took 6 weeks to find a surg. that would see me and he even
asked me who butchered me and could not believe that I was alllowed to stay that
way for 3 mths. So believe me, he deserves whatever he gets!
  So again, I hope u r both hanging in there,  and u r both in my prayers.
 Anna-rsd grp. 2
 
 

Anna Daley
`Unique Jewelry for the woman who dares to be different'
http://www.Picturetrail.com/Beadfuldelights
http:/www.Homegrownmarket.com/annmarie
and for the younger scene:
http://www.Flickr.com/photos/atrag
 

--- On Mon, 7/28/08, brook_s2001 <brook_s2001@...> wrote:

From: brook_s2001 <brook_s2001@...>
Subject: [RSDSupport1] Re: CRSD
To: rsdsupport1@yahoogroups.com
Date: Monday, July 28, 2008, 9:41 PM






Hi ther Vannessa ,,,, so sorry that is happened to you. There are not
many people that I know that can function on meth. Let alone the other
meds. Sad that we all haveto go thru this. I would talk to dr about
another route. Or seeing if there is a pain dr management around close
to you. It is hard one with rsd for real. We all have had a nitemares
with drs that is for real. Hope that there is a pain management dr
around. Really do.
--- In rsdsupport1@ yahoogroups. com, "Vannessa" <nessa4631@. ..> wrote:
>
> Hi,
>
> My Name is Vannessa Hicks,I was diagnosed with RSD,in 2006.I have
> been to so many doctors.I have a spinal cord stimulator that controls
> my right leg,were it first started,now it has traveled to my left leg
> and in my back.
>
> I am so scared I have been released to a primary doctor,for two
> years now for medication control.All he will give me is
>
> 1)Lyrica 150 mg 3 x day
>
> 2)Loratab 10 mg 2 x day
>
> 3)xanax 1 mg 2 x day
>
> 4)metoprolol 100 mg 1 x a day
>
> 5)lexapro 20mg 1 x a day
>
> 6)ipratropium bromide every 6 hours(for copd)
>
> Now he is so scared of the DEA that he is wanting to reduce my
> medications and put me on methadone. I have taken it before and
> wasn't able to function. I am at the end of my rope and just don't
> know what to do anymore. Any help that you can give me would be most
> appreciated.
>
>
>
>
> Sincerely,
>
>
> Vanessa Hicks
>

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