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Reply | Forward Message #2590 of 2699 |
Re: [RSDSupport1] CRSD

Vanessa,
  Excuse large print, am blind in 1 eye, so this makes it easier.
  First of all u  r  on too many drugs that  do not help at all!!! I have had
severe rsd for 4 years, right now I am bandaged from my toes to my knees bcause
theu swelled so bad the skin split open, I then got open wounds that would not
heal, I have been like this for 6 mths., now. There are not to many dr.'s that
really understand rsd, I had to educate mine on several issues, all they want to
do is give u more and more pills and think that is the answer. Methadone-the
worst, don't even consider going back to it, all I did was puke and sleep!
  I have a drug infusion implant pump in my stomach, it holds dauludid and
Beprivicaine, whic barely keeps me at a 10 pain level, O also take Endocet, 10mg
7 times a day, Percocet 5mg. 4 times and Valium 10mg. 3 times a day, and am
still the same.
  You do know there is no cure for rsd, it does go into remission, but anything
that is a shock to your body will re-activate it. You said you had rods, have
you considered another alternative?  I do think by what u described you should
seek a 2nd opinion, it sounds like yoyur dr. is paranoid, and with all the drugs
he is giving u, he should be. I have to go, have dr. appt., so please, get back
to me and we will con't conversation. Give me some more info about your
condition if possible.
 Anna--rsd grp. 2


Anna Daley
`Unique Jewelry for the woman who dares to be different'
http://www.Picturetrail.com/Beadfuldelights
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and for the younger scene:
http://www.Flickr.com/photos/atrag
 

--- On Wed, 7/23/08, Vannessa <nessa4631@...> wrote:

From: Vannessa <nessa4631@...>
Subject: [RSDSupport1] CRSD
To: rsdsupport1@yahoogroups.com
Date: Wednesday, July 23, 2008, 1:37 PM






Hi,

My Name is Vannessa Hicks,I was diagnosed with RSD,in 2006.I have
been to so many doctors.I have a spinal cord stimulator that controls
my right leg,were it first started,now it has traveled to my left leg
and in my back.

I am so scared I have been released to a primary doctor,for two
years now for medication control.All he will give me is

1)Lyrica 150 mg 3 x day

2)Loratab 10 mg 2 x day

3)xanax 1 mg 2 x day

4)metoprolol 100 mg 1 x a day

5)lexapro 20mg 1 x a day

6)ipratropium bromide every 6 hours(for copd)

Now he is so scared of the DEA that he is wanting to reduce my
medications and put me on methadone. I have taken it before and
wasn't able to function. I am at the end of my rope and just don't
know what to do anymore. Any help that you can give me would be most
appreciated.

Sincerely,

Vanessa Hicks















[Non-text portions of this message have been removed]




Wed Jul 23, 2008 6:09 pm

atrag2
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Message #2590 of 2699 |
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Hi, My Name is Vannessa Hicks,I was diagnosed with RSD,in 2006.I have been to so many doctors.I have a spinal cord stimulator that controls my right leg,were...
Vannessa
nessa4631
Offline Send Email
Jul 23, 2008
5:37 pm

Vanessa,   Excuse large print, am blind in 1 eye, so this makes it easier.   First of all u  r  on too many drugs that  do not help at all!!! I have had...
Anna Daley
atrag2
Offline Send Email
Jul 23, 2008
6:09 pm

Hi ther Vannessa ,,,, so sorry that is happened to you. There are not many people that I know that can function on meth. Let alone the other meds. Sad that we...
brook_s2001
Offline Send Email
Jul 29, 2008
1:42 am

Hi Ladies,   Don't know why they removed my part of the text, you can read it in the mess. line at the bottom of the email, I don't think  I said anything...
Anna Daley
atrag2
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Jul 29, 2008
2:35 am

Brook I haven't talked to you yet but I am on the methadone treatment which is regulated to the extreme. I couldn't function for at least a month but now I am...
jeanette polk
turkeylips_s...
Online Now Send Email
Aug 1, 2008
11:54 am

Good too read your typing. so sorry that anyone has to go thru any of this. I know is hard on us and just as hard for them around us as well. My dear,, the...
brook_s2001
Offline Send Email
Aug 6, 2008
9:05 am
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