My dear,,, is great that you have freinds. What ever no turn loose of
friends that you have . is only been freinds that is pulling me thru all
of this. Insurance companys are a real pain. I know that they really
create nitemares for us!!!! They do love too act like God but only thing
behind them is greed n more greed. Seems tho the question too ask them
is what is rite treatment for rsd. And let me have it. It is my body
and I need relief!!!!!!! That is what put insurance company behind
me!!!!!!!
--- In rsdsupport1@yahoogroups.com, jeanette polk
<turkeylips_sammon@...> wrote:
>
>
>
>
> ----- Original Message ----
> From: jeanette polk turkeylips_sammon@...
> To: rsdsupport1@yahoogroups.com
> Sent: Wednesday, June 4, 2008 11:03:17 AM
> Subject: Re: [RSDSupport1] Re: Husband Problems Just let me add
>
>
> Anna, it is enlightening to hear from you again. As far as treatment
my insurance won't cover the stimulator. The Dr. tried recoding the
medical condition all we got from the insurance is that"SCS is not the
right treatment for RSD" the Dr's agree they have no idea where BC&BS of
Alabama gets their information about the treatment of RSD because the
> sympathetic blocks worked. Even so they still won't pay for it. Now my
Dr's want to put me on the Prialt, who will pay for the medicine to put
in the pump however I have no pump so now we have a battle with that.
Something needs to be done because even on the pain meds my pain ranks
an 8-9 now that the blocks have worn off completely. I have a lawyer on
my SSD case but I haven't heard anything from her or SSD. As far as the
husband, if I get to the point where I need someone to take care of me
and he does not step up to the plate I have a girlfriend whom has
discussed this with her husband, they said they would take care of me.
Also my husband is an alcoholic and is a different person when he stays
sober. So I pray for his sobriety so I can have the man I married back,
that man would take care of me. I can't make him get sober but I can
pray for him to find his way. Again thank you for your honesty and when
I can't do this anymore, meaning the house
> crap, I will be able to get strength from you and all those who can
actually see my pain. Thank you, Jeanette
>
>
>
> ----- Original Message ----
> From: Anna Daley atrag2@...
> To: rsdsupport1@yahoogroups.com
> Sent: Tuesday, June 3, 2008 10:04:16 PM
> Subject: Re: [RSDSupport1] Re: Husband Problems Just let me add
>
>
> Jeanette,
> dawn had a good idea, why don't u have him read all these posts? How
old r u if u don't mind my asking? I am 58 and sound about the
equivalent of Dawn illness wise, plus the large type is because I am
blind in one eye and have cateracts, a side effect of the Rh. Arthritis,
I also have that in part of my brain. I feel so badly for you, I cannot
imagine my husband being that way, I really wish you or someone could
reach him and make him understand. Dawn, you said u have a stimulator,
do u mean the rods? I considered them but spoke to 2 people and they
said the vibrating drove them nuts, is that true because I have a drug
infusion implant, my second, and I have delaudid, biprivicane and
morphine in it and I still eat pills all day! The pain is relentless,
not just the rsd, but my sciatic nerve is totally compressed, so I have
no use of my legs, I mean I can walk about 5' and it is over! All I know
is after 4 years and 6 surgeries later I am no better by any
> means, I would say worse actually. Plus these dr.'s, and I tell them
they are maintainance men, just want to push the pills, especially when
u r a multi problem person like myself. I have actually gotten letters
from dr.'s that I went to for a consult to hopefully become one of their
patients that they would not take me on because I had so many problems!
> So ladies, both stay strong, J, work on that man of yours, if u r too
ill to do the dishes leave them there till they are falling out of the
sink, leave the laundry till he has nothing left, do it consistantly and
maybe he might get the hint!
> Take care and bless u both
> Anna---rsd group 2
> jeanette polk <turkeylips_sammon@ yahoo.com> wrote:
> Dawn, you are blessed and yes the only time he sees anything wrong is
when I am all swelled up. He will ask me what is wrong and I tell him I
am hurting but he just shrugs it off and tells me to go get some rest.
If I do that nothing gets done except I have an even bigger mess. The
pain has been getting worse and I believe it is on the move again. Thank
you again for showing me what I should have and defiantly deserve. The
more of you that respond the more strength I get, and tell me honestly
and I don't mind and won't get mad, I'll just get stronger. Thanks Dawn,
Jeanette
>
> ----- Original Message ----
> From: "ddasunshine_ 1@sbcglobal. net" <ddasunshine_ 1@sbcglobal. net>
> To: rsdsupport1@ yahoogroups. com
> Sent: Monday, June 2, 2008 11:45:26 PM
> Subject: [RSDSupport1] Re: Husband Problems Just let me add
>
> Jeanette,
>
> My name is Dawn I have now had RSD/Cprsd for over 3years now. I met my
> husband on the on set, he has gone to every appointment with me we
> sitdown and write a list of questions like what drugs we can back off
of
> and just life questions of our daily living. you may not know me I am
on
> the other site more offten than this one. I have rsd started in right
> arm moved to left arm and now back moving to leggs. I have also had
many
> other compications( other body parts shuting down) I have printed all
I
> can find on it(RSD) and I share with my whole family because I was a
> very strong independant lady till this hit. I no longer can work or do
> just about any thing around the house and my husband thank the lord
> takes the time to read the info. my kids and grandkids also I make
sure
> they all know the updates. RSD is the most unbeliveble thing that can
> happen. It is like living dead... The pain and all the med's --I have
a
> spinal cord implant and it helps but I do not think I will ever be off
> the meds . As far as going back to work you may ask him how he could
> work with one arm and one leg(strong I know) but This is why we are
> here, we live this silent torcher every day...
>
> Has he read any post we put up? Have you ask him to read the other
> sights? You have to be aggressive to save what you have!!! Ask him to
> please go just once to the dr with you it will not take to much out of
> his day.
>
> I am blessed I have broken enough dishes I don't have to do them any
> more!!!LOL!! ! We are here for you don't feel alone alot of people do
> not understand because we look normal (if we were in body cast they
> would understand)
>
> I know your frustration if you ever need to talk please feel free to
> e-mail me or call my cell 210-827-4647 I can't always answer but I
will
> call you back when I can get to my phone I am home bound so should be
no
> problem.
>
> Take care and just take one day at a time..
>
> God Bless you
>
> xoxo Dawn
> --- In rsdsupport1@ yahoogroups. com, "jeanette" <turkeylips_ sammon@
.>
> wrote:
> >
> > Unfortunately I have a husband that does not believe in RSD because
he
> > has never heard of it. He is also playing a dangerous game by
telling
> > his
> > friends what I am on for the pain, which I signed a contract NOT to
> do.
> > He has never even met my Pharmisists or any of my Drs at the pain
> > center I go to and just wants them to do anything to get me off the
> > pain medicine. I tell him that since he has not read any information
> on
> > my disease not to tell me to get off medicene that helps. I don't
like
> > the feeling I get when I drive but he does not believe that I can't.
I
> > don't feel I can
> > judge distance to the point that I feel I am a danger to myself and
> > others. I just don't think I will have the correct reaction if
> > something was to happen. June 3 is the 2nd year anniversity of the
> main
> > injury that developed into this RSD. I know you all can relate to
> being
> > in pain year in and year out. He also does not understand that extra
> > stress makes it worse and he thinks if I go off the medicene that I
> > could go back to work and bring in the only income that we have. Of
> > course there is more but I was just hoping, not for anyone to have
the
> > extra stress, but someone out there to be able to relate to my
> delimas.
> >
>
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>
> Anna Daley
> `Unique Jewelry for the woman who dares to be different'
> http://www.Picturet rail.com/ Beadfuldelights
> http:/www.Homegrown market.com/ annmarie
> and for the younger scene:
> http://www.Flickr. com/photos/ atrag
>
>
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>
>
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>
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