My dear Shala,,, So sorry that I have been slow about getting in my
emails too see this post. My dear,,, you have too deal with insurance
companys n drs on your terms. Letting them know it is your body n your
pain. Sometimes you have too put them people on the spot. In my
dealings, when they were wanting to say NO with n to the dr. I stopped
them asking them,, what would you do with this kind of pain in your
body? What n how would you deal with this stuff n with ones that have no
understanding with what is going on in this body of mine????? This
helped in getting my drs n insurance company working with me. If they
are all on your side working for YOU and YOU alone, this will make
them deal alot differently!!!!!!!! In my situation,, I added the fact
to this,,, with,,, If 3 drs were dealing with this all,,,, 2 of them
would have committed suicide long before this meeting I am feeling
mighty retarded that I have let this go on like this!!!!! We all
have to do what we know is rite. We cannot loose focus on our future n
what all it can n does hold for us!!!! At least we are knowing that
there are drs behind the scene working on finding answers for us!!!!
There are no doubts of that for us!!!!! Know that we do care. Maybe
slow in answering,,, we all have issues that we are dealing with. But
we are here and we do care. Just alot for any of too deal with... The
pain is awhole lot too deal with cause of it taking so much from
us!!!!!! Now,,, please talk with the dr about the Neurotin that rotten
drugg with take n do alot more than u want it too... Especially in
adding to pain. The medical bible tells the drs about adding too pain n
robbing us of our teeth n alot more!!!!!!!!!! Non of them phsyco druggs
we need ,,,, we sure do not need the kind of addiction those put on us
in no way!!!!!!!! Them kind of drugs we certainly do not need as they
add more n more negative thots into our brains that we certainly do not
need. The physical problems that they add n create in us we most
certainl do not need. Hope that this helps.. Huggzzz Annie
--- In rsdsupport1@yahoogroups.com, jeanette polk
<turkeylips_sammon@...> wrote:
>
> Shala, I too read the posts and sometimes if I feel it is important,
and I do think your pain is worth a few words. I can relate to the
insurance deal as they have refused the SCS because they say it is not,
in their minds, a suitable treatment. I too have been frustrated and and
even with the meds. the pain is still an issue. I feel bad most of the
time, I don't go anywhere with friends or family every once in a while I
will go to a family gathering in which they can see the pain in my face.
You can't hide from it and when you try to explain it, nobody has heard
of it. With all this you can't let the monster RSD win, there may be
someone out there with the same feelings whom you may give hope. Even if
you take one day at a time or one minute at a time don't give up. There
are a lot of us out here who have the same thoughts from time to time
but at the end of the day when we are so exhausted from the pain,
hopefully the dreams of the night will get you
> through the night and give you the strength to keep the hope. Jeanette
>
>
>
> ----- Original Message ----
> From: Winter winterwhitefox@...
> To: rsdsupport1@yahoogroups.com
> Sent: Friday, June 6, 2008 10:34:15 PM
> Subject: [RSDSupport1] i read
>
>
> i sit quietly and read all of the stories and weep because i feel like
> i am reading about my own life and pain and it is so scarey. The pain
> is non relenting and eats away at me and the pain meds keep it at an
> 11 on a scale from 1 to 10...It's scarey knowing that some insurance
> companies dont agree with what the doctors are doing and it has taken
> me a year to get an appoitment with dr. schwartzman. What happens if
> the insurance says no to what he wants to do, then what??suicide
> perhaps? would that make them listen more or think more. This RSD is
> the worst pain ive ever had in my life that never quits.
> Perhaps you could ask about the lollipops they have for breakthru
> pain..see how it works. i myself am on 100 micrograms of duragesic
> every 3 days, depakote 2 times a day and nuerotin 2 times a day and
> ambien to sleep and lots and lots of vitamins.... .i wish u all well
> and just because i dont say much doesnt mean im not watching and
> listening and learning and praying for you all......Shala
>
>
>
>
>
>
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>



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