Shala,
Well I definately can feeel for you, there have been so many days I have
just wanted to walk out into the traffic, I cannot see myself at 58 living the
rest of my life like this. I can no longer walk, well not more than 5 feet, and
people when they see me are always saying are u ok? The pain which is 24/7,
a 10+++ always, is very visable. The meds that r available that would probably
help I am allergic to, Lyrica, Cymbalta, I have seizures, etc, even neuronton,
soma, you name it, so that is my delema, there is nothing except ehat I have
livd on for 5 years, Endocet 10/325, Percocet 5's, valium, my pump holds
delaudid, morphine and biprivicane and I am still in that amount of pain. SO I
just try to take one day at a time and do the best I can. I am extremely bitchy
and have to learn to control it, but after all these years in this amount of
pain it does change your personality and entire outlook on life. I am literally
housebound, have not been in a store for over
a year! So please, do not let yourself get to where I am, it is not worth it,
the pwoplw that caRE THE MOST END UP TURNING AGAINST YOU JUST BECAUSE OF YOUR
ATTITTUDE, you can tell I am also blind in 1 eye and have cateract in other,
look at the type!!!!
Please hang in there and anytime u want to talk just give a yell at
atrag2@..., I am in rsd group #2.
Anna

jeanette polk <turkeylips_sammon@...> wrote:
Shala, I too read the posts and sometimes if I feel it is important,
and I do think your pain is worth a few words. I can relate to the insurance
deal as they have refused the SCS because they say it is not, in their minds, a
suitable treatment. I too have been frustrated and and even with the meds. the
pain is still an issue. I feel bad most of the time, I don't go anywhere with
friends or family every once in a while I will go to a family gathering in which
they can see the pain in my face. You can't hide from it and when you try to
explain it, nobody has heard of it. With all this you can't let the monster RSD
win, there may be someone out there with the same feelings whom you may give
hope. Even if you take one day at a time or one minute at a time don't give up.
There are a lot of us out here who have the same thoughts from time to time but
at the end of the day when we are so exhausted from the pain, hopefully the
dreams of the night will get you
through the night and give you the strength to keep the hope. Jeanette

----- Original Message ----
From: Winter <winterwhitefox@...>
To: rsdsupport1@yahoogroups.com
Sent: Friday, June 6, 2008 10:34:15 PM
Subject: [RSDSupport1] i read

i sit quietly and read all of the stories and weep because i feel like
i am reading about my own life and pain and it is so scarey. The pain
is non relenting and eats away at me and the pain meds keep it at an
11 on a scale from 1 to 10...It's scarey knowing that some insurance
companies dont agree with what the doctors are doing and it has taken
me a year to get an appoitment with dr. schwartzman. What happens if
the insurance says no to what he wants to do, then what??suicide
perhaps? would that make them listen more or think more. This RSD is
the worst pain ive ever had in my life that never quits.
Perhaps you could ask about the lollipops they have for breakthru
pain..see how it works. i myself am on 100 micrograms of duragesic
every 3 days, depakote 2 times a day and nuerotin 2 times a day and
ambien to sleep and lots and lots of vitamins.... .i wish u all well
and just because i dont say much doesnt mean im not watching and
listening and learning and praying for you all......Shala

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Anna Daley
`Unique Jewelry for the woman who dares to be different'
http://www.Picturetrail.com/Beadfuldelights
http:/www.Homegrownmarket.com/annmarie
and for the younger scene:
http://www.Flickr.com/photos/atrag



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