Shala, I too read the posts and sometimes if I feel it is important, and I do
think your pain is worth a few words. I can relate to the insurance deal as they
have refused the SCS because they say it is not, in their minds, a suitable
treatment. I too have been frustrated and and even with the meds. the pain is
still an issue. I feel bad most of the time, I don't go anywhere with friends or
family every once in a while I will go to a family gathering in which they can
see the pain in my face. You can't hide from it and when you try to explain it,
nobody has heard of it. With all this you can't let the monster RSD win, there
may be someone out there with the same feelings whom you may give hope. Even if
you take one day at a time or one minute at a time don't give up. There are a
lot of us out here who have the same thoughts from time to time but at the end
of the day when we are so exhausted from the pain, hopefully the dreams of the
night will get you
through the night and give you the strength to keep the hope. Jeanette



----- Original Message ----
From: Winter <winterwhitefox@...>
To: rsdsupport1@yahoogroups.com
Sent: Friday, June 6, 2008 10:34:15 PM
Subject: [RSDSupport1] i read


i sit quietly and read all of the stories and weep because i feel like
i am reading about my own life and pain and it is so scarey. The pain
is non relenting and eats away at me and the pain meds keep it at an
11 on a scale from 1 to 10...It's scarey knowing that some insurance
companies dont agree with what the doctors are doing and it has taken
me a year to get an appoitment with dr. schwartzman. What happens if
the insurance says no to what he wants to do, then what??suicide
perhaps? would that make them listen more or think more. This RSD is
the worst pain ive ever had in my life that never quits.
Perhaps you could ask about the lollipops they have for breakthru
pain..see how it works. i myself am on 100 micrograms of duragesic
every 3 days, depakote 2 times a day and nuerotin 2 times a day and
ambien to sleep and lots and lots of vitamins.... .i wish u all well
and just because i dont say much doesnt mean im not watching and
listening and learning and praying for you all......Shala






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