----- Original Message ----
From: jeanette polk <turkeylips_sammon@...>
To: rsdsupport1@yahoogroups.com
Sent: Wednesday, June 4, 2008 11:03:17 AM
Subject: Re: [RSDSupport1] Re: Husband Problems Just let me add


Anna, it is enlightening to hear from you again. As far as treatment my
insurance won't cover the stimulator. The Dr. tried recoding the medical
condition all we got from the insurance is that"SCS is not the right treatment
for RSD" the Dr's agree they have no idea where BC&BS of Alabama gets their
information about the treatment of RSD because the
sympathetic blocks worked. Even so they still won't pay for it. Now my Dr's want
to put me on the Prialt, who will pay for the medicine to put in the pump
however I have no pump so now we have a battle with that. Something needs to be
done because even on the pain meds my pain ranks an 8-9 now that the blocks have
worn off completely. I have a lawyer on my SSD case but I haven't heard anything
from her or SSD. As far as the husband, if I get to the point where I need
someone to take care of me and he does not step up to the plate I have a
girlfriend whom has discussed this with her husband, they said they would take
care of me. Also my husband is an alcoholic and is a different person when he
stays sober. So I pray for his sobriety so I can have the man I married back,
that man would take care of me. I can't make him get sober but I can pray for
him to find his way. Again thank you for your honesty and when I can't do this
anymore, meaning the house
crap, I will be able to get strength from you and all those who can actually
see my pain. Thank you, Jeanette



----- Original Message ----
From: Anna Daley <atrag2@...>
To: rsdsupport1@yahoogroups.com
Sent: Tuesday, June 3, 2008 10:04:16 PM
Subject: Re: [RSDSupport1] Re: Husband Problems Just let me add


Jeanette,
dawn had a good idea, why don't u have him read all these posts? How old r u if
u don't mind my asking? I am 58 and sound about the equivalent of Dawn illness
wise, plus the large type is because I am blind in one eye and have cateracts, a
side effect of the Rh. Arthritis, I also have that in part of my brain. I feel
so badly for you, I cannot imagine my husband being that way, I really wish you
or someone could reach him and make him understand. Dawn, you said u have a
stimulator, do u mean the rods? I considered them but spoke to 2 people and they
said the vibrating drove them nuts, is that true because I have a drug infusion
implant, my second, and I have delaudid, biprivicane and morphine in it and I
still eat pills all day! The pain is relentless, not just the rsd, but my
sciatic nerve is totally compressed, so I have no use of my legs, I mean I can
walk about 5' and it is over! All I know is after 4 years and 6 surgeries later
I am no better by any
means, I would say worse actually. Plus these dr.'s, and I tell them they are
maintainance men, just want to push the pills, especially when u r a multi
problem person like myself. I have actually gotten letters from dr.'s that I
went to for a consult to hopefully become one of their patients that they would
not take me on because I had so many problems!
So ladies, both stay strong, J, work on that man of yours, if u r too ill to do
the dishes leave them there till they are falling out of the sink, leave the
laundry till he has nothing left, do it consistantly and maybe he might get the
hint!
Take care and bless u both
Anna---rsd group 2
jeanette polk <turkeylips_sammon@ yahoo.com> wrote:
Dawn, you are blessed and yes the only time he sees anything wrong is when I am
all swelled up. He will ask me what is wrong and I tell him I am hurting but he
just shrugs it off and tells me to go get some rest. If I do that nothing gets
done except I have an even bigger mess. The pain has been getting worse and I
believe it is on the move again. Thank you again for showing me what I should
have and defiantly deserve. The more of you that respond the more strength I
get, and tell me honestly and I don't mind and won't get mad, I'll just get
stronger. Thanks Dawn, Jeanette

----- Original Message ----
From: "ddasunshine_ 1@sbcglobal. net" <ddasunshine_ 1@sbcglobal. net>
To: rsdsupport1@ yahoogroups. com
Sent: Monday, June 2, 2008 11:45:26 PM
Subject: [RSDSupport1] Re: Husband Problems Just let me add

Jeanette,

My name is Dawn I have now had RSD/Cprsd for over 3years now. I met my
husband on the on set, he has gone to every appointment with me we
sitdown and write a list of questions like what drugs we can back off of
and just life questions of our daily living. you may not know me I am on
the other site more offten than this one. I have rsd started in right
arm moved to left arm and now back moving to leggs. I have also had many
other compications( other body parts shuting down) I have printed all I
can find on it(RSD) and I share with my whole family because I was a
very strong independant lady till this hit. I no longer can work or do
just about any thing around the house and my husband thank the lord
takes the time to read the info. my kids and grandkids also I make sure
they all know the updates. RSD is the most unbeliveble thing that can
happen. It is like living dead... The pain and all the med's --I have a
spinal cord implant and it helps but I do not think I will ever be off
the meds . As far as going back to work you may ask him how he could
work with one arm and one leg(strong I know) but This is why we are
here, we live this silent torcher every day...

Has he read any post we put up? Have you ask him to read the other
sights? You have to be aggressive to save what you have!!! Ask him to
please go just once to the dr with you it will not take to much out of
his day.

I am blessed I have broken enough dishes I don't have to do them any
more!!!LOL!! ! We are here for you don't feel alone alot of people do
not understand because we look normal (if we were in body cast they
would understand)

I know your frustration if you ever need to talk please feel free to
e-mail me or call my cell 210-827-4647 I can't always answer but I will
call you back when I can get to my phone I am home bound so should be no
problem.

Take care and just take one day at a time..

God Bless you

xoxo Dawn
--- In rsdsupport1@ yahoogroups. com, "jeanette" <turkeylips_ sammon@.. .>
wrote:
>
> Unfortunately I have a husband that does not believe in RSD because he
> has never heard of it. He is also playing a dangerous game by telling
> his
> friends what I am on for the pain, which I signed a contract NOT to
do.
> He has never even met my Pharmisists or any of my Drs at the pain
> center I go to and just wants them to do anything to get me off the
> pain medicine. I tell him that since he has not read any information
on
> my disease not to tell me to get off medicene that helps. I don't like
> the feeling I get when I drive but he does not believe that I can't. I
> don't feel I can
> judge distance to the point that I feel I am a danger to myself and
> others. I just don't think I will have the correct reaction if
> something was to happen. June 3 is the 2nd year anniversity of the
main
> injury that developed into this RSD. I know you all can relate to
being
> in pain year in and year out. He also does not understand that extra
> stress makes it worse and he thinks if I go off the medicene that I
> could go back to work and bring in the only income that we have. Of
> course there is more but I was just hoping, not for anyone to have the
> extra stress, but someone out there to be able to relate to my
delimas.
>

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Anna Daley
`Unique Jewelry for the woman who dares to be different'
http://www.Picturet rail.com/ Beadfuldelights
http:/www.Homegrown market.com/ annmarie
and for the younger scene:
http://www.Flickr. com/photos/ atrag


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