Dawn, you are blessed and yes the only time he sees anything wrong is when I am
all swelled up. He will ask me what is wrong and I tell him I am hurting but he
just shrugs it off and tells me to go get some rest. If I do that nothing gets
done except I have an even bigger mess. The pain has been getting worse and I
believe it is on the move again. Thank you again for showing me what I should
have and defiantly deserve. The more of you that respond the more strength I
get, and tell me honestly and I don't mind and won't get mad, I'll just get
stronger. Thanks Dawn, Jeanette



----- Original Message ----
From: "ddasunshine_1@..." <ddasunshine_1@...>
To: rsdsupport1@yahoogroups.com
Sent: Monday, June 2, 2008 11:45:26 PM
Subject: [RSDSupport1] Re: Husband Problems Just let me add



Jeanette,

My name is Dawn I have now had RSD/Cprsd for over 3years now. I met my
husband on the on set, he has gone to every appointment with me we
sitdown and write a list of questions like what drugs we can back off of
and just life questions of our daily living. you may not know me I am on
the other site more offten than this one. I have rsd started in right
arm moved to left arm and now back moving to leggs. I have also had many
other compications( other body parts shuting down) I have printed all I
can find on it(RSD) and I share with my whole family because I was a
very strong independant lady till this hit. I no longer can work or do
just about any thing around the house and my husband thank the lord
takes the time to read the info. my kids and grandkids also I make sure
they all know the updates. RSD is the most unbeliveble thing that can
happen. It is like living dead... The pain and all the med's --I have a
spinal cord implant and it helps but I do not think I will ever be off
the meds . As far as going back to work you may ask him how he could
work with one arm and one leg(strong I know) but This is why we are
here, we live this silent torcher every day...

Has he read any post we put up? Have you ask him to read the other
sights? You have to be aggressive to save what you have!!! Ask him to
please go just once to the dr with you it will not take to much out of
his day.

I am blessed I have broken enough dishes I don't have to do them any
more!!!LOL!! ! We are here for you don't feel alone alot of people do
not understand because we look normal (if we were in body cast they
would understand)

I know your frustration if you ever need to talk please feel free to
e-mail me or call my cell 210-827-4647 I can't always answer but I will
call you back when I can get to my phone I am home bound so should be no
problem.

Take care and just take one day at a time..

God Bless you

xoxo Dawn
--- In rsdsupport1@ yahoogroups. com, "jeanette" <turkeylips_ sammon@.. .>
wrote:
>
> Unfortunately I have a husband that does not believe in RSD because he
> has never heard of it. He is also playing a dangerous game by telling
> his
> friends what I am on for the pain, which I signed a contract NOT to
do.
> He has never even met my Pharmisists or any of my Drs at the pain
> center I go to and just wants them to do anything to get me off the
> pain medicine. I tell him that since he has not read any information
on
> my disease not to tell me to get off medicene that helps. I don't like
> the feeling I get when I drive but he does not believe that I can't. I
> don't feel I can
> judge distance to the point that I feel I am a danger to myself and
> others. I just don't think I will have the correct reaction if
> something was to happen. June 3 is the 2nd year anniversity of the
main
> injury that developed into this RSD. I know you all can relate to
being
> in pain year in and year out. He also does not understand that extra
> stress makes it worse and he thinks if I go off the medicene that I
> could go back to work and bring in the only income that we have. Of
> course there is more but I was just hoping, not for anyone to have the
> extra stress, but someone out there to be able to relate to my
delimas.
>






[Non-text portions of this message have been removed]