Dave,
No, have not heard from u in a long time. So u sound as bad as I am. I
got a secondary disease from the rsd, fybrosis, it is when the legs swell so bad
that the skin splts and u get open wounds that leak and just won't heal. Have u
ever gotten that? I mean the rsd is a secondary disease to whatever pain problem
you have, now there is one attacjed to that one!!! I have been like this for 3
mths. now, they just won't heal, the rest of the skin is like old dried out
leather, all cracked and peeling-real attractive-LOL. So addd that to the
nueropathy in my feet that are all purple/black looking, I just can't imagine
what I will wear in the heat! I know exactly what u mean about the bedroom
situation, personally for me I have not wanted anything for over 3 years, but aI
do try to take care of hubbie best I can, not fair to them, and let me tell u I
have been married 36 years, my h is a construction worker and he comes home and
helps me cook dinner, washes the dishes,
the floors, vacuums, does the laundry, the food shopping and all the errands. i
dust!!! But I am at the point I am in a wheelchair 75% of the time, so if this
was a normal guy he would have gone out for a beer 3 years ago and never have
come home. I am very blessed that way. I have a drug infusion pump in stomach
and eat pain pills all day and still am normally at a 10 scale, there is just
nothing else they can seem to do, I have actually gotten used to being at a 10
and that's terrible. I honestly don't think i have had no pain at all in over 4
yrs., except right after surgery! Are u able to get around at all? i am
mostly housebound, I walk 5 feet and it is all over. So believe me, u r not
alone out there, I know exactly how u feel. Anytime u want to talk, just drop me
a line, I am in rsd2 group. Take care.
Anna

Dave themotivater <themotivater@...> wrote:
Hellow all i havent wrote for a wile i am still alive,if ya can call
it that.I know how ya feel unless you have rsd you dont have a clue on the
amount of pain ya have.I some times think my wife understands,best she can i
guess.She said something the other day like she feels as if she is mean to me i
told here she was juat so she has no daught.She is a sex a holic and that is bad
for me cause i take aloght of meds that hurt us both in the bed room,as i am
sure some of you can relate.or not.I guess it is diffrent for every body but
there is a lott of strain on my mairge,the list is kinda long.Stress is a
killer.Boo hoo.O well shit happens usely to me & mine.

bye bye.

----- Original Message ----
From: porscheboxstergirl <porscheboxstergirl@...>
To: rsdsupport1@yahoogroups.com
Sent: Saturday, May 31, 2008 7:08:36 PM
Subject: [RSDSupport1] Re: Husband Problems when it comes to RSD

--- In rsdsupport1@ yahoogroups. com, "jeanette" <turkeylips_ sammon@.. .>
wrote:
>
> Unfortunately I have a husband that does not believe in RSD because he
> has never heard of it. He is also playing a dangerous game by telling
> his
> friends what I am on for the pain, which I signed a contract NOT to do.
> He has never even met my Pharmisists or any of my Drs at the pain
> center I go to and just wants them to do anything to get me off the
> pain medicine. I tell him that since he has not read any information on
> my disease not to tell me to get off medicene that helps. I don't like
> the feeling I get when I drive but he does not believe that I can't. I
> don't feel I can
> judge distance to the point that I feel I am a danger to myself and
> others. I just don't think I will have the correct reaction if
> something was to happen. June 3 is the 2nd year anniversity of the main
> injury that developed into this RSD. I know you all can relate to being
> in pain year in and year out. He also does not understand that extra
> stress makes it worse and he thinks if I go off the medicene that I
> could go back to work and bring in the only income that we have. Of
> course there is more but I was just hoping, not for anyone to have the
> extra stress, but someone out there to be able to relate to my delimas.
>
Hi, I'm new to the group and wanted to say hi. I just passed my second
anniversary on May 20 suffering with RSD/CRPS. I have tried so many
different types of meds which has created a roller coaster of
emotions, depression, etc. That has really put a strain on our
marriage. My husband understands to a degree and he knows there is a
lot of pain but unless you have actually suffered this type of pain,
it's hard to truly know what it's like to live with.He is supportive
in some ways, but was not in others. It nearly cost him our marriage.
Your husband really needs to get information from someone on your
"care team". If he is computer inclined, there are several sites that
he could read some info on RSD and medication if he hasn't already.
Sorry you have this added stress, it certainly doesn't help. Hope
things start to look up!

[Non-text portions of this message have been removed]






Anna Daley
`Unique Jewelry for the woman who dares to be different'
http://www.Picturetrail.com/Beadfuldelights
http:/www.Homegrownmarket.com/annmarie
and for the younger scene:
http://www.Flickr.com/photos/atrag



[Non-text portions of this message have been removed]