--- In rsdsupport1@yahoogroups.com, "jeanette" <turkeylips_sammon@...>
wrote:
>
> Unfortunately I have a husband that does not believe in RSD because he
> has never heard of it. He is also playing a dangerous game by telling
> his
> friends what I am on for the pain, which I signed a contract NOT to do.
> He has never even met my Pharmisists or any of my Drs at the pain
> center I go to and just wants them to do anything to get me off the
> pain medicine. I tell him that since he has not read any information on
> my disease not to tell me to get off medicene that helps. I don't like
> the feeling I get when I drive but he does not believe that I can't. I
> don't feel I can
> judge distance to the point that I feel I am a danger to myself and
> others. I just don't think I will have the correct reaction if
> something was to happen. June 3 is the 2nd year anniversity of the main
> injury that developed into this RSD. I know you all can relate to being
> in pain year in and year out. He also does not understand that extra
> stress makes it worse and he thinks if I go off the medicene that I
> could go back to work and bring in the only income that we have. Of
> course there is more but I was just hoping, not for anyone to have the
> extra stress, but someone out there to be able to relate to my delimas.
>
Hi, I'm new to the group and wanted to say hi. I just passed my second
anniversary on May 20 suffering with RSD/CRPS. I have tried so many
different types of meds which has created a roller coaster of
emotions, depression, etc. That has really put a strain on our
marriage. My husband understands to a degree and he knows there is a
lot of pain but unless you have actually suffered this type of pain,
it's hard to truly know what it's like to live with.He is supportive
in some ways, but was not in others. It nearly cost him our marriage.
Your husband really needs to get information from someone on your
"care team". If he is computer inclined, there are several sites that
he could read some info on RSD and medication if he hasn't already.
Sorry you have this added stress, it certainly doesn't help. Hope
things start to look up!