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Reply | Forward Message #2431 of 2699 |
Re: Newbie Intro

Hi! I'm a newbie too. I am so sorry to hear about what you have
gone through. I very much feel your pain. I am dealing with this
occupational disease since 10/2005. It started on my right elbow, I
was diagnosed w/ lateral epicondylitis. Then over time, my left
elbow hurt so bad and I was diagnosed w/ lateral epicondylitis. I
was receiving therapy for both. My right elbow pain has resolved in
2006. However, my left elbow has been in constant pain. I get
better, then it gets worse again. Now, my left arm swelled up, sharp
pains, discoloration on my whole arm, hands bluish color. I was
recently diagnosed by an orthopaedic surgeon w/ RSD. I saw a
neurologist and she said I might be developing eary signs of RSD.
She prescribed Nortryptiline to calm the nerves. My primary care
physician gave me samples of LEXAPRO. Nortryptyline helped. I can't
take any NSAID. My doctor said that I'm intolerant w/ NSAID. I am
also on a trial basis therapy. I do contrast baths am & pm. I also
do my nerve glide exercises. We have to keep doing what we think is
helping. I understand that it is not only the pain that we have to
go thru everyday, we have to deal w/ people who don't understand us.
Other than the pain, I have to deal w/ worker's comp and the thought
of loosing my job is a nightmare. I have days that I feel like I'm
loosing my mind. Suicidal thoughts are just around the corner. But
we have to be strong so we can help & educate others. Experience is
the best teacher. It is a very hard battle for all of us here. Take
care always. I hope you find the right remedy for you.

--- In rsdsupport1@yahoogroups.com, "brook_s2001" <brook_s2001@...>
wrote:
>
> Hey there,,, So sorry that we all have too go thru this. Hon,,,
sure
> appreciate,,,your posting tho..Email me,,, I will give you the addy
too
> the moderated group,,,, so that we do not have the spammers
hitting us
> in the moderated group... There. Let us know what the drs tell
you..
> So happy that therapists are not drs. I had one that said weather
was
> a excuse for me,,, would not accept that weather bothers us at all.
> Well he will learn that one!!!!!!!! So hoping that u have as pain
> free day as is possible... chats soon dear!!!!!
> --- In rsdsupport1@yahoogroups.com, whirley_da_cheesehead1
> <no_reply@> wrote:
> >
> > My orthopedic has diagnosed me with the posiibility of RSD. I
> > sustained two fractures as well as ligamint / tendon damage to my
> > right foot /ankle back in February. Physical therapy has done no
> > good. I am still unable to stand or tolerate any mobility for a
time
> > of 30 mins with out later suffering from swelling and shooting
pains.
> >
> > I recieved a bone scan last week, the person there said I had no
> > inconsistencies in blood flow in comparrison to "good" foot. He
did
> > not think it was RSD.
> >
> > I am having a consult with another othropedic, the back to my
primary
> > orthopedic to reach conclusions as to why no healing in foot and
why
> > so much pain.
> >
> > I have done some mild research on RSD and I exhibit the signs of
RSD.
> >
> > I am a female 42 years of age. I am diabetic (diet controled). Up
> > until this injury I was very active.
> >
> > I am hoping to hear from someone who went threw some hoops being
> > diagnosed as I am at my last wits trying to figure out how to deal
> > with constant pain and horrible night time shooters that generally
> > see's me getting little or no sleep.
> >
> > I had been on vicoden for several months but consulted with
pharmacist
> > as I feared addiction and Doc switched me to muscle relaxer and
> > darvocet. I am one who rarley takes asprin and now rely on a mix
of
> > pills to get a few hours sleep.
> >
> > Any advice, pointers ( what to ask doc), or "ya I went threw that
> > stories" greatly appreciated as I feel like Im loosing my mind!
> >
> > Best,
> >
> > KB
> >
>
>
>
> [Non-text portions of this message have been removed]
>





Wed Jul 4, 2007 5:18 pm

luckyjym24
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Forward
Message #2431 of 2699 |
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My orthopedic has diagnosed me with the posiibility of RSD. I sustained two fractures as well as ligamint / tendon damage to my right foot /ankle back in...
whirley_da_cheesehead1
whirley_da_c...
Offline
Jun 13, 2007
9:10 pm

--Most of us moved to a new site without all the spam. If you e~mail me I will give you the site address. We WILL NOT POST IT HERE so spammerswont get it- In...
leonard_2480
Offline Send Email
Jun 14, 2007
4:39 pm

KB dont loose your mind thers plenty of time for that...first drs dont have a clue it took them oaver a year to diagnose mine.so dont feel like the lone ranger...
Dave themotivater
TheMotivater
Offline Send Email
Jun 25, 2007
8:21 pm

Feel for you KB,,, hoping that they decide what n how pretty soon... We all have been there at times each way with each dr. Till one we see knows how too...
brook_s2001
Offline Send Email
Jun 26, 2007
4:27 am

Bone scan done last week revealed nothing. I was told the bone scan was a tell all to diagnosing RSD. I am now being told Regional Pain Dystrophy. I thought...
whirley_da_cheesehead1
whirley_da_c...
Offline
Jun 27, 2007
10:58 pm

-You mentioned seiz meds. That is protocal in RSD. It suppositdly stops the stabbing shock like pain. Most didnt work for me. topamax did in combo with...
leonard_2480
Offline Send Email
Jun 29, 2007
1:25 am

Hey there,,, So sorry that we all have too go thru this. Hon,,, sure appreciate,,,your posting tho..Email me,,, I will give you the addy too the moderated...
brook_s2001
Offline Send Email
Jun 14, 2007
6:06 pm

Hi! I'm a newbie too. I am so sorry to hear about what you have gone through. I very much feel your pain. I am dealing with this occupational disease since...
luckyjym24
Offline Send Email
Jul 4, 2007
5:20 pm

Thanks so much for the feedback. Jeepers, I've read so many horror stories with diagnosis process and then treaments. Even worse are those in Workmens Comp...
whirley_da_cheesehead1
whirley_da_c...
Offline
Jul 5, 2007
2:39 pm

Hi there kathy,,,,, in no way accept any kind of settlement dear!!! WC,,, is messing around with you... And with being late,, all the time ,,, n...
brook_s2001
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Jul 5, 2007
7:41 pm

Let me tell u my WC story please. WC HATES the possibility of an RSD diagnosis. They know that it means big time $$$ for them. So when my doctors were advising...
Janice Gould
dressrider2000
Offline Send Email
Jul 6, 2007
3:49 pm

Hi Janice, Jeepers! yet another story about WC and thier unfair treatment. I have made three calls this week to WC claim specialist, one to her supervisor as...
whirley_da_cheesehead1
whirley_da_c...
Offline
Jul 6, 2007
5:00 pm

You know these drs. sure have attitudes where insurance takes in. Sure does suxx with insurance also.. I was really blessed with having great drs. n great...
brook_s2001
Offline Send Email
Jul 7, 2007
3:47 pm

Hi there,,, I have had the blocks.. I was still in hospital when the rsd set in mine. So the insurance had too take care of all of mine. The specialists were...
brook_s2001
Offline Send Email
Jul 7, 2007
3:41 pm
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