--- In rsdsupport1@yahoogroups.com, Dawn Alexander <ddasunshine_1@...>
wrote:
>
> Karla, Thank you for the congrat's.
> You just hang in there! I am not sure but this winter weather seems to
have taken a toll on all of us. I still do not completely understand all
the RSD facts and studys, but I can tell you I also have had a hard time
with it. Just remember to let your daughter know how much you appreciate
her. She sounds to be standing strong with you, try to let her know
there are alot of people out there who have no body to help them and she
is a blessing to you. You know if she did not want to help she probably
would not. Getting through the pain in itself is enough to worry about,
so let her help and if she gets frustrated well she is allowed to. RSD
is hard on everyone around us.Please try to have a good day I hope your
pain level will be low today. I will pray for you both.
> Take Care
> Dawn
>
> "Karla C." krenee032003@... wrote:
> Hi Dawn,
>
> Congratulations on your up and coming marriage. I am happy that you
have such a cool guy you are very lucky in that. I have not been online
for awhile I have been fighting some powerful rsd demons of my own. I
hope you had a very good holiday. My daughter is the one who goes
through the bulk of my rsd with me, she is awesome most of the time but
I believe it wears her out and it bugs me that she has to help me at
all. My boyfriend is not so understanding but maybe one day he will be.
Well I hope you have a nice day and a happy new year.
>
> Karla
>
> dawn ddasunshine_1@... wrote:
> Hello to all,
> I hope everyone is haveing a good morning! You know after haveing
> rsd as long as I have( 1-1/2 yrs) and watching it spread as it has.
> Starting in the right arm and moving to the left and NOW from my
> upper left shoulder blade to the base of my neck in my back.It seems
> to be moving fast at this point. All the long waits with the
> insurance company for treatments. All the doctor appointments. All
> the trips to the pharmacy ( none of my pills are due on the same
> date) No longer being able to work, or live my life like before.No
> longer able to do basic care for myslef like bathing, washing my
> hair, drying my hair the big thing no longer able to drive no
> independance at all.
> on the light side but some funny things like I can not do laundry
> any more and dishes are out completly I drop more than I
> wash. I have one care giver that is Bobby, I have
> spoke of him before. He has been with me as a boyfriend from the
> start of RSD. I have to say RSD is definatley very hard on our care
> givers and love ones. Not just the extra work, extra time to take us
> to appointments(it takes us 1 1/2 hours wach way to appointmenst)
> time to drives us for medications,etc....They are dealing with
> watching the ones they love suffer day in and day out. They are
> listening to our fears and cries of pain. They see our frustration.
> They sit helpless. Just as we do, not knowing the future of the
> beast.That has to scare them yet they stand strong. All care givers
> to us with RSD are very special people. They might not think so but
> they are!I think we need to remember that. I remember someone wrote
> a while back about how care givers deal with all this.My only
> example is Bobby. When I cry, he holds me. When I am frustrated
> because I can not do something I use to be able to do, he tries to
> make light of it or sneaks behind me and gets it done anyway.He
> bathes me and dries my hair he is getting pretty good now( no more
> base ball hats) The next task will be makeup, I have not told him
> yet.He goes into the Doctor appointments with me and ask questions
> sometimes I forget questions we have talked about at home and he
> makes sure we understand the answers. He supports my every choice
> but gives input openly. He also has a son who he can talk to openly
> and that helps. I think our care givers must have a outlet . Because
> they are trying to deal with everyday life (jobs,etc..)and a person
> with RSD. I just hope we all take just a moment out of each day to
> let them they are special.
>
> I also have big new Bobby ask me to marry him on Dec 17,2006
> of CORSE I SAID YES
>
> another very specail caregiver who plans not to give up!
>
>
>Wow,, sure is nice that you got caregivers who care n help out on the
things that

is needed. Yes, I have two really nice ones that comes in for the things
that I cannot do. It is really helpful to me.. I am thankful for them..
What do you guys think or do you try any natural things???? I am
wondering,, cause of wanting to try more,, !!!!! I am tired of the side
affects of some of these drugs... I know that I have had rsd longer than
most of ya. That is ok.. Sometimes areas,, go along different lines of
treatments also.. I was really fornuate,, in that they slowed mine
down... It is also spreading now uggzzz. O well,, I am looking n hoping
for something else without side affects tho... Hoping that we all get
thru weekend with less pain. Thanks!!!!!!!!!!!




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