Hi Dawn,

Congratulations on your up and coming marriage. I am happy that you have such
a cool guy you are very lucky in that. I have not been online for awhile I have
been fighting some powerful rsd demons of my own. I hope you had a very good
holiday. My daughter is the one who goes through the bulk of my rsd with me, she
is awesome most of the time but I believe it wears her out and it bugs me that
she has to help me at all. My boyfriend is not so understanding but maybe one
day he will be. Well I hope you have a nice day and a happy new year.

Karla

dawn <ddasunshine_1@...> wrote:
Hello to all,
I hope everyone is haveing a good morning! You know after haveing
rsd as long as I have( 1-1/2 yrs) and watching it spread as it has.
Starting in the right arm and moving to the left and NOW from my
upper left shoulder blade to the base of my neck in my back.It seems
to be moving fast at this point. All the long waits with the
insurance company for treatments. All the doctor appointments. All
the trips to the pharmacy ( none of my pills are due on the same
date) No longer being able to work, or live my life like before.No
longer able to do basic care for myslef like bathing, washing my
hair, drying my hair the big thing no longer able to drive no
independance at all.
on the light side but some funny things like I can not do laundry
any more and dishes are out completly I drop more than I
wash. I have one care giver that is Bobby, I have
spoke of him before. He has been with me as a boyfriend from the
start of RSD. I have to say RSD is definatley very hard on our care
givers and love ones. Not just the extra work, extra time to take us
to appointments(it takes us 1 1/2 hours wach way to appointmenst)
time to drives us for medications,etc....They are dealing with
watching the ones they love suffer day in and day out. They are
listening to our fears and cries of pain. They see our frustration.
They sit helpless. Just as we do, not knowing the future of the
beast.That has to scare them yet they stand strong. All care givers
to us with RSD are very special people. They might not think so but
they are!I think we need to remember that. I remember someone wrote
a while back about how care givers deal with all this.My only
example is Bobby. When I cry, he holds me. When I am frustrated
because I can not do something I use to be able to do, he tries to
make light of it or sneaks behind me and gets it done anyway.He
bathes me and dries my hair he is getting pretty good now( no more
base ball hats) The next task will be makeup, I have not told him
yet.He goes into the Doctor appointments with me and ask questions
sometimes I forget questions we have talked about at home and he
makes sure we understand the answers. He supports my every choice
but gives input openly. He also has a son who he can talk to openly
and that helps. I think our care givers must have a outlet . Because
they are trying to deal with everyday life (jobs,etc..)and a person
with RSD. I just hope we all take just a moment out of each day to
let them they are special.

I also have big new Bobby ask me to marry him on Dec 17,2006
of CORSE I SAID YES

another very specail caregiver who plans not to give up!





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