Hello i am dave i should say thank god you have only had it months i have had it
years since 99 in fact.They say the sooner they catch it the sooner they treat
it and maby chance of remission i pray this is true for rsd is bad knews i know
i suffer like i cant eaven explain it just gets worse for me but maby since they
caught it so soon let them treat it maby it will go away i hope it does many
prayers ill say so maby it will go away.

kim <kbella202@...> wrote: --- In rsdsupport1@yahoogroups.com,
"njuniee" <njuniee@...> wrote:
>
> Hi Everyone,
> Sad to say, I'm joining the club. Recently diagnosed with RSD
> and looking for friends to talk to. I think I'm beginning to wear
> out the ears of co-workers and family.
> I think sometimes they think I should put my mind somewhere else
> and not think so much on it but it's so hard to explain to anyone
> who doesn't have it that it's impossible to "not" think about it,
it
> doesn't let you think outside of it. It's hard not to think of how
> much it changes your life and what it is capable of beyond of where
> your at.
> On minute I'm walking and going about life and the next I can
> barely walk on crutches and rely on a wheelchair. So many people
> have never even heard of it and can't understand the concept of "no
> cure." On top of that, I don't know about all of you but I am so
> tired of people asking me if I'm feeling better... They don't
> really want to hear me talk of it anymore yet they ask a question
> that requires an honest answer and when I say "no" they're at a
> loss. If I say "I'm doing ok" then they get all excited and say "
> Oh !! Is your leg getting better ?!" What part of "no cure" do
they
> not understand.
> I guess I'm just frustrated as I have had it three months and
it's
> all still so new and so many adjustments and phases I'm still going
> through. I don't mean to come here to air out on you. Lord knows
> your the last folks that should have to listen to me as I know how
> each of you suffer as I do. I guess that is why I'm saying all
this
> because you "do" understand. Unfortunatley for all of you...
> you "do" understand.
> I hope one day they find the answer to it for all our sake. I
> will get through I know I will as I'm strong in spirit and will but
> sometimes like today, I guess I'm tired of being strong and that's
> ok too. We all deserve those days.
>
> God Bless All Who Have to Enter Here,
>

>HELLO JUNIEE

THIS IS KIM FROM LOUISIANA I Recently diagnosed with RSD IN MY RIGHT
FOOT AND LEFT. i am new to this and just finding out about r s d
wold like to know what you know and if you care to share i am here.

i am 39, from kenner louisiana i love country music , yes my
computer and i have a cat nem bella. i dont drive any more have to
all ways count on someone. when i go shoping i realized that its hard
for me to walk so i get in the cart lol learn how to drive that
fast. hope we can be r s d pals thanks kim






have a nice day! Smile god loves ya.

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