Hi Jenny,
Thanks for writing. I'm sorry to hear your plagued with this as well. It
sure
makes life difficult to say the least. So very much has changed. I'm on the
new
drug called Lyrica along with Daypro and Percocet for the most difficult days.
I have to see a neurologist on the 23d. My doctor is trying to get the
swelling
down so he can send me to therapy so he keeps wrapping it. I told him he'd
better find a speedy therapist because as soon as you unwrap it, it swells
again
in about a half hour.
I'm sorry to hear depression has gotten bad for you. I go through down
periods
too but try to not let it get the best of me. The important thing is to
fight. There is
a reason for all things. As bad as this is I have also learned alot like the
handicapped
really don't have it all that easy. I've run into alot of stores that do not
have
electronic doors and elevators that don't pause long enough for a wheelchair,
and
curbs that are way too high with no handicap ramps just to name a few. I've
learned
alot about the kindness of people. I've had so many people assist me or ask if
they
could help. It makes you appreciate what you had that you took for granted
and
never will again should the RSD go into remission.
When I get depressed I try to find good in something around me, just the
things
I can enjoy even if it's the birds singing and if it's a real low I think that
it could be
worse, it's not cancer, it's not going to kill me. My brother has cancer and
he is
only 53, I think of him.
I too am divorced, don't let things you can't control get to you. You
have enough
to concern yourself with, with your health. Now is the time to focus on you
and
keep on going as difficult as it may be. It's when we stop that the RSD fully
has
it's way, so keep moving even if it's at a snails pace like myself, I still
move and
those around me who are able to rush....... well they can just go around me.
It's
funny, they look at me and I think hopefully they are thinking of how
fortunate
they are. They have no idea how quickly that can change. You and I and so
many others have a purpose if only to remind others.
Good luck to you , and write any time. Friends are the best support.
Especially those who truely know what it is and what it's like to live with.
Juniee
pruittjl <pruittjl@...> wrote:
Just wanted ti introduce myself. My name is Jenny, I've had RSD for
almost years. Started in my left arm and is now spreading all over my
body. My depression is getting worse. I'm on Effexor for that. I
have ordered a cane to help me get around. Just looking to make
friends that understand. People don't understand what we go through.
I feel like all I do is fight lately, a divorce, insurance and the RSD.
Thanks,
Jenny
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