Hello,

I have had this for almost 2 years now. I'm sorry that you have RSD, but I'm
glad that you found this group. God Bless you. Sandy

njuniee <njuniee@...> wrote:
Hi Everyone,
Sad to say, I'm joining the club. Recently diagnosed with RSD
and looking for friends to talk to. I think I'm beginning to wear
out the ears of co-workers and family.
I think sometimes they think I should put my mind somewhere else
and not think so much on it but it's so hard to explain to anyone
who doesn't have it that it's impossible to "not" think about it, it
doesn't let you think outside of it. It's hard not to think of how
much it changes your life and what it is capable of beyond of where
your at.
On minute I'm walking and going about life and the next I can
barely walk on crutches and rely on a wheelchair. So many people
have never even heard of it and can't understand the concept of "no
cure." On top of that, I don't know about all of you but I am so
tired of people asking me if I'm feeling better... They don't
really want to hear me talk of it anymore yet they ask a question
that requires an honest answer and when I say "no" they're at a
loss. If I say "I'm doing ok" then they get all excited and say "
Oh !! Is your leg getting better ?!" What part of "no cure" do they
not understand.
I guess I'm just frustrated as I have had it three months and it's
all still so new and so many adjustments and phases I'm still going
through. I don't mean to come here to air out on you. Lord knows
your the last folks that should have to listen to me as I know how
each of you suffer as I do. I guess that is why I'm saying all this
because you "do" understand. Unfortunatley for all of you...
you "do" understand.
I hope one day they find the answer to it for all our sake. I
will get through I know I will as I'm strong in spirit and will but
sometimes like today, I guess I'm tired of being strong and that's
ok too. We all deserve those days.

God Bless All Who Have to Enter Here,
Juniee







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